THE FIBROUS DYSPLASIA FOUNDATION

EIN: 020715210 501(c)(3) Diseases & Disorders

BETHESDA, MD

Total Revenue
$245,764
Total Expenses
$270,098
Total Assets
$243,546
Net Assets
$5,820
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Financial Vulnerability Assessment (Tuckman-Chang)

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Financial Trends

Organization Details

Formation Year
2004
Legal Domicile
FL
Principal Officer
ANNE CORVELLE
Phone
3014678979
Tax Period
2024-07-01 to 2025-06-30

THE FIBROUS DYSPLASIA FOUNDATION, founded in 2004, is a small nonprofit in the Diseases & Disorders sector that reported $246K in total revenue in fiscal year 2024. Revenue fell 24% from the prior year — a significant decline worth monitoring.

Mission

THE FIBROUS DYSPLASIA FOUNDATION SERVES PEOPLE AFFECTED WITH FIBROUS DYSPLASIA/MCCUNE-ALBRIGHT SYNDROME THROUGH PROGRAMS OF RESEARCH, EDUCATION, AWARENESS AND SUPPORT.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $238,806
Program Service Revenue $0
Investment Income $6,958
Other Revenue $0
TOTAL REVENUE $245,764

Expense Breakdown

Grants Paid $0
Salaries & Benefits $200,293
Fundraising Expenses $21,407
Program Expenses $200,715
Other Expenses $69,805
TOTAL EXPENSES $270,098

Year-over-Year Comparison

2024 2023 Change
Revenue $245,764 $322,942 -0.2%
Expenses $270,098 $388,138 -0.3%
Net Income $-24,334 $-65,196 -0.6%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

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Governance

Voting Members
11
Independent Members
11
Employees
3
Volunteers
100

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
5
$88,857
Total Directors
10
$0
Key Employees
0
$0
Highest Compensated
0
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
ADRIENNE MCBRIDE EXECUTIVE DI 40.00
Officer
$88,857 $0 $88,857
ANNE CORVELLE BOARD PRESID 2.00
Officer Director
$0 $0 $0
CINDI BRANDT LEVIN BOARD VICE P 2.00
Officer Director
$0 $0 $0
CHRISTOPHER GUEST TREASURER 2.00
Officer Director
$0 $0 $0
MALISSA KENNEY SECRETARY 2.00
Officer Director
$0 $0 $0
MICHAEL COLLINS DIRECTOR 0.50
Director
$0 $0 $0
JUSTIN COHEN DIRECTOR 0.50
Director
$0 $0 $0
JUSTIN HEALY DIRECTOR 0.50
Director
$0 $0 $0
ERIC CHIEN-WEI LIAO DIRECTOR 0.50
Director
$0 $0 $0
GARY POLLASTRO DIRECTOR 0.50
Director
$0 $0 $0
CARMEL SHEMMESH-RAFALOWSKY DIRECTOR 0.50
Director
$0 $0 $0
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2025 $245,764 $270,098 $243,546 $-24,334
2024 $322,942 $388,138 $267,364 $-65,196
2023 $282,768 $377,909 $329,399 $-95,141
2022 $397,986 $376,503 $427,498 $21,483
2021 $395,077 $350,971 $421,680 $44,106
2020 $245,035 $223,636 $269,119 $21,399
2019 $210,770 $295,962 $158,006 $-85,192
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