NEUROFIBROMATOSIS INC NORTHEAST

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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Legal Domicile

Principal Officer

JOHN MANTH

Phone

7812729936

Tax Period

2023-01-01 to 2023-12-31

NEUROFIBROMATOSIS INC NORTHEAST is a small nonprofit that reported $559K in total revenue in fiscal year 2023. Revenue decreased 9% compared to the prior year. Expenses of $642K exceeded revenue, resulting in a 15% operating deficit.

Mission

THE DIAGNOSIS AND TREATMENT AND TO SUPPORT PROGRAMS INTENDED TO INCREASE AWARENESS OF NEUROFIBROMATOSIS.

Program Service Accomplishments

Program 1

Expenses: $20,000

RESEARCH- SUPPORT AND REASEARCH THROUGH MAKING GRANTS FOR THE STUDY INTO THE CAUSES, CURE AND TREATMENT OF NEUROFIBORMATOSIS.

Program 2

Expenses: $293,340

PATIENT AND FAMILY SUPPORT - NEUROFIBROMATOSIS, INC. NORTHEAST ACTS AS A RESOURCE FOR PATIENTS WHO ARE LOOKING FOR PHYSICIANS AND SPECIALISTS AT THE NF CLINICS. THE ORGANIZATION ENCOURAGES...

PATIENT AND FAMILY SUPPORT - NEUROFIBROMATOSIS, INC. NORTHEAST ACTS AS A RESOURCE FOR PATIENTS WHO ARE LOOKING FOR PHYSICIANS AND SPECIALISTS AT THE NF CLINICS. THE ORGANIZATION ENCOURAGES VOLUNTEERISM AT OUR EVENTS WHERE NEUROFIBROMATOSIS PATIENTS CAN MEET OTHERS WHO ARE AFFECTED. THE ORGANIZATION ORGANIZES GATHERINGS OF PATIENTS, FAMILIES AND FRIENDS, WHERE THEY ARE PROVIDED RESEARCH, MEDICAL UPDATES AND SCHOLARSHIPS FOR CHILDREN TO ATTEND NEUROFIBORMATOSIS CAMP.

Program 3

Expenses: $25,035

LOBBYING- NEUROFIBROMATOSIS, INC. NORTHEAST LOBBIED CONGRESS FOR INCREASED FUNDING FOR NEUROFIBROMATOSIS RESEARCH AT BOTH THE NATIONAL INSTITUTE OF HEALTH AND THE ARMY'S NEUROFIBROMATOSIS RESEARCH...

LOBBYING- NEUROFIBROMATOSIS, INC. NORTHEAST LOBBIED CONGRESS FOR INCREASED FUNDING FOR NEUROFIBROMATOSIS RESEARCH AT BOTH THE NATIONAL INSTITUTE OF HEALTH AND THE ARMY'S NEUROFIBROMATOSIS RESEARCH PROGRAM.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

Financial Overview (2023)

Revenue Breakdown

Contributions & Grants $383,694

Program Service Revenue $0

Investment Income $1,150

Other Revenue $174,132

TOTAL REVENUE $558,976

Expense Breakdown

Grants Paid $20,000

Salaries & Benefits $400,169

Fundraising Expenses $115,424

Program Expenses $338,375

Other Expenses $222,278

TOTAL EXPENSES $642,447

Year-over-Year Comparison

	2023	2022	Change
Revenue	$558,976	$616,977	-0.1%
Expenses	$642,447	$651,825	0.0%
Net Income	$-83,471	$-34,848	+1.4%

Key Indicators

✓ Grants to Organizations ✗ Grants to Individuals ✓ Lobbying ✗ Political Activity ✗ Foreign Activities ✗ Donor Advised Fund ✓ Schedule B Required

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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

Governance

Voting Members

Independent Members

Employees

Volunteers

N/A

Governance Policies

✗ Conflict of Interest Policy

✗ Whistleblower Policy

✗ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School

✗ Operated a Hospital

✗ Provided First Class Travel

⚠ Reported Conflict of Interest

✗ Reported Asset Diversion

✗ Excess Benefit Transaction

✗ Made Political Expenditures

✓ Engaged in Lobbying

✗ Operated Donor Advised Fund

✗ Maintained Art Collections

✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers

$137,997

Total Directors

Key Employees

Highest Compensated

reported

Name	Title	Hours/Week	Role	Reportable Comp	Other Comp	Total
SHARON KLEIN	EXECUTIVE DI	40.00	Officer	$133,692	$4,305	$137,997
FRANK BUONO	DIRECTOR	N/A	Director	$0	$0	$0
BEN BUTTRICK	DIRECTOR	N/A	Director	$0	$0	$0
PATRICK CALLAHAN	DIRECTOR	N/A	Director	$0	$0	$0
ALEXANDRA POWERS CELLUCCI	DIRECTOR	N/A	Director	$0	$0	$0
TAMARA INDIANER	DIRECTOR	N/A	Director	$0	$0	$0
JUSTIN JORDAN	DIRECTOR	N/A	Director	$0	$0	$0
ANDRES LESSING	DIRECTOR	N/A	Director	$0	$0	$0
ANDRES LESSING	TREASURER	N/A	Officer Director	$0	$0	$0
MELISSA SHEA MALERBA	DIRECTOR/ SE	N/A	Officer Director	$0	$0	$0
JOHN MANTH	CHAIRPERSON	N/A	Officer Director	$0	$0	$0
THERESA OWHADY	DIRECTOR	N/A	Director	$0	$0	$0
NICOLE ULLRICH MD PHD	DIRECTOR	N/A	Director	$0	$0	$0
KRISTINA RATH	DIRECTOR	N/A	Director	$0	$0	$0
MARYBETH SHAW	DIRECTOR	N/A	Director	$0	$0	$0
JOHN SHEA	DIRECTOR	N/A	Director	$0	$0	$0
JOHN THOMSON	DIRECTOR	N/A	Director	$0	$0	$0

Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year	Revenue	Expenses	Assets	Net Income
2024	No data	No data	No data	No data
2023	$558,976	$642,447	$784,530	$-83,471
2022	$616,977	$651,825	$842,757	$-34,848
2021	$737,666	$451,337	$973,512	$286,329
2020	$439,880	$484,116	$701,178	$-44,236
2019	$687,701	$676,597	$708,938	$11,104
2018	$679,566	$688,256	$671,681	$-8,690