NEUROFIBROMATOSIS INC NORTHEAST

EIN: 043013709 501(c)(3)

BURLINGTON, MA

Total Revenue
$558,976
Total Expenses
$642,447
Total Assets
$784,530
Net Assets
$759,077
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Financial Vulnerability Assessment (Tuckman-Chang)

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Financial Trends

Organization Details

Legal Domicile
MA
Principal Officer
JOHN MANTH
Phone
7812729936
Tax Period
2023-01-01 to 2023-12-31

NEUROFIBROMATOSIS INC NORTHEAST is a small nonprofit that reported $559K in total revenue in fiscal year 2023. Revenue decreased 9% compared to the prior year. Expenses of $642K exceeded revenue, resulting in a 15% operating deficit.

Mission

THE MISSION OF NEUROFIBROMATOSIS, INC. NORTHEAST IS TO RAISE FUNDS TO SUPPORT THE RESEARCH OF HTE CAUSES, CURE NAD TREATMENT OF A DISEASE DESCRIBED AS NEUROFIBROMATOSIS, TO PROMOTE AND PROVIDE SUPPORT SERVICES TO PATIENTSS AND THEIR FAMILIES, TO SUPPORT CLINICS DEDICATED TO DIAGNOSIS AND TREATMENT AND TO SUPPORT PROGRAMS INTENDED TO INCREASE AWARENESS OF THE DISEASE.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2023)

Revenue Breakdown

Contributions & Grants $383,694
Program Service Revenue $0
Investment Income $1,150
Other Revenue $174,132
TOTAL REVENUE $558,976

Expense Breakdown

Grants Paid $20,000
Salaries & Benefits $400,169
Fundraising Expenses $115,424
Program Expenses $338,375
Other Expenses $222,278
TOTAL EXPENSES $642,447

Year-over-Year Comparison

2023 2022 Change
Revenue $558,976 $616,977 -0.1%
Expenses $642,447 $651,825 0.0%
Net Income $-83,471 $-34,848 +1.4%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Financial Health Indicators

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Liquidity & Cash Position

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Governance

Voting Members
15
Independent Members
15
Employees
6
Volunteers
N/A

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
4
$137,997
Total Directors
16
$0
Key Employees
0
$0
Highest Compensated
0
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
SHARON KLEIN EXECUTIVE DI 40.00
Officer
$133,692 $4,305 $137,997
FRANK BUONO DIRECTOR N/A
Director
$0 $0 $0
BEN BUTTRICK DIRECTOR N/A
Director
$0 $0 $0
PATRICK CALLAHAN DIRECTOR N/A
Director
$0 $0 $0
ALEXANDRA POWERS CELLUCCI DIRECTOR N/A
Director
$0 $0 $0
TAMARA INDIANER DIRECTOR N/A
Director
$0 $0 $0
JUSTIN JORDAN DIRECTOR N/A
Director
$0 $0 $0
ANDRES LESSING DIRECTOR N/A
Director
$0 $0 $0
ANDRES LESSING TREASURER N/A
Officer Director
$0 $0 $0
MELISSA SHEA MALERBA DIRECTOR/ SE N/A
Officer Director
$0 $0 $0
JOHN MANTH CHAIRPERSON N/A
Officer Director
$0 $0 $0
THERESA OWHADY DIRECTOR N/A
Director
$0 $0 $0
NICOLE ULLRICH MD PHD DIRECTOR N/A
Director
$0 $0 $0
KRISTINA RATH DIRECTOR N/A
Director
$0 $0 $0
MARYBETH SHAW DIRECTOR N/A
Director
$0 $0 $0
JOHN SHEA DIRECTOR N/A
Director
$0 $0 $0
JOHN THOMSON DIRECTOR N/A
Director
$0 $0 $0
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2024 No data No data No data No data
2023 $558,976 $642,447 $784,530 $-83,471
2022 $616,977 $651,825 $842,757 $-34,848
2021 $737,666 $451,337 $973,512 $286,329
2020 $439,880 $484,116 $701,178 $-44,236
2019 $687,701 $676,597 $708,938 $11,104
2018 $679,566 $688,256 $671,681 $-8,690
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