JETT FOUNDATION INC

DIRECT SERVICES : CAMP PROMISE, JETT GIVING FUND, FAMILY WORSHOPS/COMMUNITY WEBINAR SERIES, THE COMMUNITY AMBASSADOR PROGRAM, AND FAMILY SUPPORT/PORCH NITE. JETT FOUNDATION'S SUMMER CAMP, CAMP PROMISE, HAS BEEN THE ONLY CAMP IN THE COUNTRY FOR KIDS, TEENS, AND ADULTS WITH MUSCULAR DYSTROPHY AND NEUROMUSCULAR DISEASES SINCE 2009. WITH NO UPPER AGE LIMIT AND A COMPLETE ON-SITE, 24-HOUR MEDICAL TEAM, JETT PROVIDES A FREE AND UNIQUE OPPORTUNITY FOR CAMPERS TO EXPERIENCE A WEEK OF INDEPENDENCE, FREEDOM AND NEW OPPORTUNITIES AWAY FROM THE ROUTINE OF DAILY LIFE. CAMP PROMISE SERVED 153 CAMPERS IN PERSON AT SEVEN LOCATIONS AND ONE WEEK OF VIRTUAL CAMP SERVING 80 CAMPERS. IN TOTAL WE SERVED 233 CAMPERS WITH THE SUPPORT OF 200 VOLUNTEERS. MORE THAN 77% OF CAMPERS WERE OVER THE AGE OF 18 (AND HAVE AGED OUT OF OTHER CAMP OPTIONS). JETT CONTINUES TO HOST MONTHLY EVENTS INCLUDING TRIVIA NIGHTS, GAME SHOWS AND MORE.THE JETT GIVING FUND INCLUDES THREE FINANCIAL ASSISTANCE PROGRAMS: THE ACCESSIBLE VEHICLE FUND, THE EMERGENCY FUND, AND THE EQUIPMENT ASSISTANCE FUND.IN 2025, THE ACCESSIBLE VEHICLE FUND PROVIDED 16 ACCESSIBLE VEHICLES, OFTEN TO LOW-INCOME FAMILIES (UNDER $50,000 HOUSEHOLD INCOME) LACKING SAFE TRANSPORTATION; FIVE FAMILIES HAD MULTIPLE CHILDREN WITH DUCHENNE. SINCE ITS LAUNCH, THE JETT GIVING FUND HAS PROVIDED OVER $6.5 MILLION IN ACCESSIBILITY EQUIPMENT THANKS TO SPONSORS.ESTABLISHED IN 2020, THE EMERGENCY FUND OFFERS IMMEDIATE, FLEXIBLE SUPPORT FOR FAMILIES FACING UNEXPECTED CRISES. IN 2025, IT AWARDED 90 GRANTS TOTALING OVER $130,000 FOR NECESSITIES LIKE FOOD, UTILITIES, MOVING COSTS, AND EVICTION PREVENTION, ENSURING DUCHENNE FAMILIES DON'T HAVE TO CHOOSE BETWEEN BASIC NEEDS. ALL GRANTS WERE REVIEWED AND AWARDED WITHIN A 14-DAY TURNAROUND. JETT FOUNDATION FAMILY WORKSHOPS ARE A NATIONAL EDUCATIONAL PROGRAM THAT BRINGS CLINICIANS, RESEARCHERS, AND FAMILIES AFFECTED BY DUCHENNE TOGETHER TO LEARN ABOUT CARE, CRUCIAL INFORMATION AND RESOURCES IN MANY CITIES EACH YEAR. THE MISSION OF THIS PROGRAM IS TO EMPOWER PATIENTS AND FAMILIES WITH THE KNOWLEDGE NEEDED TO BE THEIR OWN BEST ADVOCATES, SPREAD AWARENESS ABOUT DUCHENNE IN THE MEDICAL FIELD, AND HELP ACCELERATE RESEARCH AND DEVELOPMENT.IN 2025, JETT FOUNDATION WAS ABLE TO CONTINUE IN PERSON EVENTS AS WELL AS HOSTING VIRTUAL OUR COMMUNITY WEBINAR SERIES. JETT HOSTED 18 WEBINARS FEATURING CLINICAL TRIALS, DUCHENNE CARE AND WELLNESS WITH OVER 400 REGISTERED PARTICIPANTS. LAUNCHED IN 2017, THE COMMUNITY AMBASSADOR PROGRAM SPREADS AWARENESS ABOUT DUCHENNE AND THE PROGRAMS AND SERVICES THAT JETT FOUNDATION PROVIDES, THROUGH COMMUNITY AMBASSADORS (MOMS, DADS, GRANDPARENTS, AND SIBLINGS) WHO ARE ALREADY FAMILIAR WITH THE DUCHENNE LANDSCAPE. IN 2025, 34 JETT FOUNDATION AMBASSADORS FROM 20 STATES ENGAGED WITH FAMILIES AFFECTED BY DUCHENNE THROUGHOUT THE COUNTRY. FAMILY SUPPORT/PORCH NITE IS A NATIONAL CAREGIVER SUPPORT PROGRAM WHICH FOCUSES ON BUILDING STRONGER SUPPORT SYSTEMS FOR FAMILIES AFFECTED BY DUCHENNE IN THEIR LOCAL COMMUNITY THROUGH STORY-TELLING, EDUCATION, AND GRIEF-MANAGEMENT. IN 2025, THE ORGANIZATION HOSTED 17 VIRTUAL PORCH NITES WITH 250 PARTICIPANTS.