SPASTIC PARAPLEGIA FOUNDATION INC

EIN: 043594491 501(c)(3) Diseases & Disorders

O Fallon, MO

Total Revenue
$1,324,845
Total Expenses
$1,928,614
Total Assets
$3,308,442
Net Assets
$1,031,357
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Financial Vulnerability Assessment (Tuckman-Chang)

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Financial Trends

Organization Details

Formation Year
2002
Legal Domicile
MA
Principal Officer
Greg Pruitt
Phone
8777734483
Tax Period
2023-01-01 to 2023-12-31

SPASTIC PARAPLEGIA FOUNDATION INC, founded in 2002, is a community nonprofit in the Diseases & Disorders sector that reported $1.3M in total revenue in fiscal year 2023. Expenses of $1.9M exceeded revenue, resulting in a 46% operating deficit.

Mission

1. To fund scientific research to discover the cures for hereditary spastic paraplegia and primary lateral sclerosis. 2. To provide information about the disorders to patients and their loved ones, and to the general public. 3. To provide emotional support to patients and their loved ones

Program Service Accomplishments

Program 1
Expenses: $1,769,938 Revenue: $0

Scientific research grants were awarded to academic researchers in universities both in the United States and internationally. A Scientific Advisory Board reviews and ranks all grant proposals...

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Scientific research grants were awarded to academic researchers in universities both in the United States and internationally. A Scientific Advisory Board reviews and ranks all grant proposals received each year. The Foundation funds only the top ranked proposals. Grants are divided into up to five installments. The first installment is issued after a countersigned Research Grant Agreement is returned to the Foundation. Each of the remaining installments are issued after a satisfactory progress report or final report from the researcher. The amount above reflects the amount of grant payments made in 2023.

Program 2
Expenses: $93,964 Revenue: $30,651

The Foundation holds an annual conference each year for individuals suffering from the disease, their families, and caregivers. Researchers speak about primary lateral sclerosis and hereditary...

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The Foundation holds an annual conference each year for individuals suffering from the disease, their families, and caregivers. Researchers speak about primary lateral sclerosis and hereditary spastic paraplegia, including updates on the current state of their research. Attendees meet others affected by the disorders, typically the first time these individuals have met others with the same condition in person. Attendees pay a registration fee to attend.

Program 3
Expenses: $24,117 Revenue: $0

The Foundation prints and distributes "Synapse", a periodical about the disorders, activities of the Foundation, and articles about research.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2023)

Revenue Breakdown

Contributions & Grants $1,244,568
Program Service Revenue $49,773
Investment Income $30,504
Other Revenue $0
TOTAL REVENUE $1,324,845

Expense Breakdown

Grants Paid $1,930,438
Salaries & Benefits $0
Fundraising Expenses $4,384
Program Expenses $1,896,252
Other Expenses $-1,824
TOTAL EXPENSES $1,928,614

Year-over-Year Comparison

2023 2022 Change
Revenue $1,324,845 $1,249,081 +0.1%
Expenses $1,928,614 $748,400 +1.6%
Net Income $-603,769 $500,681 -2.2%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Governance

Voting Members
12
Independent Members
12
Employees
N/A
Volunteers
100

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
4
$0
Total Directors
11
$0
Key Employees
0
$0
Highest Compensated
0
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
Corey Braastad Director 5
Director
$0 $0 $0
Hank Chiuppi Secretary/Director 30
Officer Director
$0 $0 $0
John Cobb Director 10.00
Director
$0 $0 $0
Tina Croghan Director 10.00
Director
$0 $0 $0
Frank Davis Director 5
Director
$0 $0 $0
Dina Landphair Director 10
Director
$0 $0 $0
David Lewis Treasurer 5
Officer Director
$0 $0 $0
Greg Pruitt President/Director 30
Officer Director
$0 $0 $0
Jim Sheorn Vice President/Director 30
Officer Director
$0 $0 $0
Carina Thurgood Director 5
Director
$0 $0 $0
Jackie Wellman Director 10
Director
$0 $0 $0
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2024 No data No data No data No data
2023 $1,324,845 $1,928,614 $3,308,442 $-603,769
2022 $1,249,081 $748,401 $2,855,492 $500,680
2021 $1,153,340 $715,727 $2,650,188 $437,613
2020 $929,060 $991,817 $2,291,149 $-62,757
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