CORNELIA DE LANGE SYNDROME FOUNDATION

EIN: 061057497 501(c)(3)

AVON, CT

Total Revenue
$945,606
Total Expenses
$993,059
Total Assets
$3,267,499
Net Assets
$3,103,734
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Financial Vulnerability Assessment (Tuckman-Chang)

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Financial Trends

Organization Details

Formation Year
1981
Legal Domicile
MA
Principal Officer
Bonnie Royster
Phone
8606768166
Tax Period
2023-01-01 to 2023-12-31

CORNELIA DE LANGE SYNDROME FOUNDATION, founded in 1981, is a small nonprofit that reported $946K in total revenue in fiscal year 2023. Revenue decreased 13% compared to the prior year. Net assets of $3.1M represent 39 months of operating reserves.

Mission

Family support organization that exists to ensure early and accurate diagnosis of CdLS, promote research into the causes and manifestations, and help people with a diagnosis of CdLS, and others with similar characteristics, make informed decisions throughout their lives.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2023)

Revenue Breakdown

Contributions & Grants $778,290
Program Service Revenue $0
Investment Income $66,822
Other Revenue $100,494
TOTAL REVENUE $945,606

Expense Breakdown

Grants Paid $0
Salaries & Benefits $695,367
Fundraising Expenses $104,346
Program Expenses $756,820
Other Expenses $297,692
TOTAL EXPENSES $993,059

Year-over-Year Comparison

2023 2022 Change
Revenue $945,606 $1,084,533 -0.1%
Expenses $993,059 $1,079,254 -0.1%
Net Income $-47,453 $5,279 -10.0%
Key Indicators
✗ Grants to Organizations ✗ Grants to Individuals ✗ Lobbying ✗ Political Activity ✗ Foreign Activities ✗ Donor Advised Fund ✓ Schedule B Required
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Financial Health Indicators

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Liquidity & Cash Position

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Governance

Voting Members
14
Independent Members
14
Employees
13
Volunteers
250

Governance Policies

✗ Conflict of Interest Policy
✗ Whistleblower Policy
✗ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School
✗ Operated a Hospital
✗ Provided First Class Travel
✗ Reported Conflict of Interest
✗ Reported Asset Diversion
✗ Excess Benefit Transaction
✗ Made Political Expenditures
✗ Engaged in Lobbying
✗ Operated Donor Advised Fund
✗ Maintained Art Collections
✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
6
$130,237
Total Directors
12
$0
Key Employees
0
$0
Highest Compensated
0
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
Morrisette Royster Executive Dir. 40.00
Officer
$116,737 $0 $116,737
Antonie Kline MD MD Director 0.00
Officer
$13,500 $0 $13,500
Mike Feehan Vice President 1.00
Officer Director
$0 $0 $0
Mike Christie Director 0.00
Director
$0 $0 $0
Arthur Lander Director 0.00
Director
$0 $0 $0
Eric Johnson Treasurer 1.00
Officer Director
$0 $0 $0
Steve Snodsmith Director 0.00
Director
$0 $0 $0
Nicholas Jackson Secretary 1.00
Officer Director
$0 $0 $0
Jennifer Gerton Director 0.00
Director
$0 $0 $0
Yvonne Alston Director 0.00
Director
$0 $0 $0
Paul Villani Director 0.00
Director
$0 $0 $0
Katherina Nikzah-Terhune President 1.00
Officer Director
$0 $0 $0
Mary Ann Ehlert Director 0.00
Director
$0 $0 $0
Tricia Wise Director 0.00
Director
$0 $0 $0
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2024 No data No data No data No data
2023 $945,606 $993,059 $3,267,499 $-47,453
2022 $1,084,533 $1,079,254 $3,082,093 $5,279
2022 $1,084,533 $1,077,537 $2,928,508 $6,996
2021 $1,245,385 $921,430 $3,378,142 $323,955
2020 $1,004,423 $932,863 $2,826,787 $71,560
2019 $2,289,148 $954,784 $2,448,230 $1,334,364
2018 $1,031,258 $1,187,690 $999,632 $-156,432
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