The Neuromuscular Disease Foundati… - Form 990 Financial Data

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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year

2006

Legal Domicile

Principal Officer

Coleman Kennedy

Phone

3107211605

Tax Period

2024-01-01 to 2024-12-31

The Neuromuscular Disease Foundation, founded in 2006, is a micro nonprofit in the Diseases & Disorders sector that reported $65K in total revenue in fiscal year 2024. Revenue fell 88% from the prior year — a significant decline worth monitoring. Expenses of $352K exceeded revenue, resulting in a 439% operating deficit.

Mission

THE NEUROMUSCULAR DISEASE FOUNDATIONS (NDF) MISSION mission is to enhance the quality of the lives of people living with GNE Myopathy (also known as HIBM) through advocacy, education, outreach, and funding for critical research focused on treatments and a cure.

Program Service Accomplishments

Program 1

Expenses: $248,068

CLINICAL RESEARCH: Since 2006 NDF has been proactively seeking and funding clinical research projects to help understand GNE Myopathy (HIBM) and to hopefully help find treatments and cures. NDF is a world leader in funding scientists, universities and laboratories, the results of which have proven instrumental in how new studies are built.

Program 2

Expenses: $54,066

Patient & Carrier Advocacy: NDF strives to create a two-way connection between patients and scientists in order to maximize patient understanding about the latest research and treatment options being developed; and for physicians, scientists, and pharmaceutical companies to gain a better perspective, not only about patients needs and experiences, but also about how this impacts families as well.

Program 3

Expenses: $15,902

Outreach & Education: A significant part of NDF's mission is preventing and suppressing the symptoms of GNEM in patients through screening and public education. NDF values the importance of educating physicians about this rare disease. We focus on educating the public about carrier screening aids, particularly for those in populations with higher carrier rates.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $27,471

Program Service Revenue $0

Investment Income $37,948

Other Revenue $0

TOTAL REVENUE $65,419

Expense Breakdown

Grants Paid $187,867

Salaries & Benefits $0

Fundraising Expenses $6,274

Program Expenses $318,036

Other Expenses $164,580

TOTAL EXPENSES $352,447

Year-over-Year Comparison

	2024	2023	Change
Revenue	$65,419	$561,017	-0.9%
Expenses	$352,447	$499,650	-0.3%
Net Income	$-287,028	$61,367	-5.7%

Key Indicators

✓ Grants to Organizations ✗ Grants to Individuals ✗ Lobbying ✗ Political Activity ✗ Foreign Activities ✗ Donor Advised Fund ✓ Schedule B Required

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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

Governance

Voting Members

Independent Members

Employees

N/A

Volunteers

Governance Policies

✗ Conflict of Interest Policy

✗ Whistleblower Policy

✗ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School

✗ Operated a Hospital

✗ Provided First Class Travel

✗ Reported Conflict of Interest

✗ Reported Asset Diversion

✗ Excess Benefit Transaction

✗ Made Political Expenditures

✗ Engaged in Lobbying

✗ Operated Donor Advised Fund

✗ Maintained Art Collections

✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers

Total Directors

Key Employees

Highest Compensated

reported

Name	Title	Hours/Week	Role	Reportable Comp	Other Comp	Total
Navid Rachman	Director	1.00	Director	$0	$0	$0
Tara Voogel	Secretary	1.00	Officer Director	$0	$0	$0
Amy Curran	Director	1.00	Director	$0	$0	$0
Tahseen Mozaffar	Director	1.00	Director	$0	$0	$0
Coleman Kennedy	CEO	1.00	Officer Director	$0	$0	$0
David Golden	CFO	1.00	Officer Director	$0	$0	$0
Suma Rao-Gupta	Director	1.00		$0	$0	$0
David Haverim	Director	1.00		$0	$0	$0
Isabella Tyszler	Director	1.00		$0	$0	$0
David Dahl	Director	1.00		$0	$0	$0

Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year	Revenue	Expenses	Assets	Net Income
2024	$65,419	$352,447	$660,321	$-287,028
2023	$561,017	$499,650	$948,612	$61,367
2022	$442,823	$1,031,908	$886,359	$-589,085
2021	$439,105	$1,152,206	$1,475,338	$-713,101
2020	$438,953	$1,383,468	$2,223,549	$-944,515
2019	$2,630,649	$1,224,659	$3,137,885	$1,405,990
2018	$1,777,080	$606,109	$1,714,349	$1,170,971

The Neuromuscular Disease Foundation