DYSTROPHIC EPIDERMOLYSIS BULLOSA RESEARCH ASSOCIATION OF AMERICA

EIN: 112519726 501(c)(3)

BOULDER, CO

Total Revenue
$3,150,804
Total Expenses
$3,631,440
Total Assets
$1,369,762
Net Assets
$1,260,462
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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year
1979
Legal Domicile
NY
Principal Officer
BRETT KOPELAN
Phone
2128681573
Tax Period
2024-01-01 to 2024-12-31

DYSTROPHIC EPIDERMOLYSIS BULLOSA RESEARCH ASSOCIATION OF AMERICA, founded in 1979, is a community nonprofit that reported $3.2M in total revenue in fiscal year 2024. Revenue surged 21% from the prior year, signaling strong growth momentum. Expenses of $3.6M exceeded revenue, resulting in a 15% operating deficit.

Mission

DEBRA IS DEDICATED TO FINDING A CURE FOR EB THRU RESEARCH EB AFFECTS 1 OUT OF EVERY 50,000 LIVE BIRTHS IN THE U.S.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $2,507,492
Program Service Revenue $0
Investment Income $-22,071
Other Revenue $665,383
TOTAL REVENUE $3,150,804

Expense Breakdown

Grants Paid $0
Salaries & Benefits $1,157,999
Fundraising Expenses $232,254
Program Expenses $3,261,310
Other Expenses $2,473,441
TOTAL EXPENSES $3,631,440

Year-over-Year Comparison

2024 2023 Change
Revenue $3,150,804 $2,604,819 +0.2%
Expenses $3,631,440 $1,572,705 +1.3%
Net Income $-480,636 $1,032,114 -1.5%
Key Indicators
✗ Grants to Organizations ✗ Grants to Individuals ✗ Lobbying ✗ Political Activity ✗ Foreign Activities ✗ Donor Advised Fund ✓ Schedule B Required
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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

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Governance

Voting Members
11
Independent Members
11
Employees
8
Volunteers
11

Governance Policies

✗ Conflict of Interest Policy
✗ Whistleblower Policy
✗ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School
✗ Operated a Hospital
✗ Provided First Class Travel
✗ Reported Conflict of Interest
✗ Reported Asset Diversion
✗ Excess Benefit Transaction
✗ Made Political Expenditures
✗ Engaged in Lobbying
✗ Operated Donor Advised Fund
✗ Maintained Art Collections
✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
5
$314,360
Total Directors
11
$0
Key Employees
0
$0
Highest Compensated
0
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
BRETT KOPELAN EXECUTIVE DIRECTOR 40.0
Officer
$304,910 $9,450 $314,360
J ALEC ALEXANDER TREASURER 1.0
Officer Director
$0 $0 $0
RICHARD GALLAGHER CHAIR EMERITUS 1.0
Director
$0 $0 $0
ROBERT RYAN Ph D DIRECTOR 1.0
Director
$0 $0 $0
JOHN LEE SECRETARY 1.0
Officer Director
$0 $0 $0
WILLIAM CORNMAN DIRECTOR 1.0
Director
$0 $0 $0
JAMES WETRICH DIRECTOR 1.0
Director
$0 $0 $0
LESLIE RADER DIRECTOR 1.0
Director
$0 $0 $0
ANGELA CHRISTIANO PhD DIRECTOR 1.0
Director
$0 $0 $0
RYAN FULLMER President 1.0
Officer Director
$0 $0 $0
ROB RAYL Vice President 1.0
Officer Director
$0 $0 $0
Jouni Uitto Director 1.0
Director
$0 $0 $0
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2025 No data No data No data No data
2024 $3,150,804 $3,631,440 $1,369,762 $-480,636
2023 $2,604,819 $1,572,705 $1,940,472 $1,032,114
2022 $3,356,992 $1,969,058 $2,090,353 $1,387,934
2021 $1,109,789 $1,672,683 $2,216,777 $-562,894
2020 $1,875,849 $1,367,432 $2,976,485 $508,417
2019 $1,561,298 $1,465,695 $2,407,080 $95,603
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