NATIONAL MPS SOCIETY INC

EIN: 112734849 501(c)(3)

DURHAM, NC

Total Revenue
$2,108,438
Total Expenses
$2,506,869
Total Assets
$3,874,160
Net Assets
$3,613,676
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Financial Vulnerability Assessment (Tuckman-Chang)

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Financial Trends

Organization Details

Formation Year
1985
Legal Domicile
NY
Principal Officer
TERRI KLEIN
Phone
9198060101
Tax Period
2024-01-01 to 2024-12-31

NATIONAL MPS SOCIETY INC, founded in 1985, is a community nonprofit that reported $2.1M in total revenue in fiscal year 2024. Revenue decreased 8% compared to the prior year. Expenses of $2.5M exceeded revenue, resulting in a 19% operating deficit.

Mission

THE NATIONAL MPS SOCIETY EXISTS TO CURE, SUPPORT, AND ADVOCATE FOR MUCOPOLYSACCHARIDOSIS (MPS) AND MUCOLIPIDOSIS (ML).

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $1,525,957
Program Service Revenue $414,716
Investment Income $162,666
Other Revenue $5,099
TOTAL REVENUE $2,108,438

Expense Breakdown

Grants Paid $638,917
Salaries & Benefits $914,468
Fundraising Expenses $212,345
Program Expenses $1,978,046
Other Expenses $953,484
TOTAL EXPENSES $2,506,869

Year-over-Year Comparison

2024 2023 Change
Revenue $2,108,438 $2,296,659 -0.1%
Expenses $2,506,869 $2,758,261 -0.1%
Net Income $-398,431 $-461,602 -0.1%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Liquidity & Cash Position

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Governance

Voting Members
12
Independent Members
12
Employees
12
Volunteers
75

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
6
$313,598
Total Directors
12
$0
Key Employees
0
$0
Highest Compensated
0
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
MATTHEW ELLINWOOD CSO 40.00
Officer
$167,019 $5,011 $172,030
TERRI KLEIN PRESIDENT & 55.00
Officer
$137,445 $4,123 $141,568
LYNN SCOTT HOPKINS TREASURER 1.00
Officer Director
$0 $0 $0
MAUREEN COTE SECRETARY 1.00
Officer Director
$0 $0 $0
LISA TODD BOARD CHAIRM 1.00
Officer Director
$0 $0 $0
STEVE AMY HOLLAND VICE CHAIRMA 1.00
Officer Director
$0 $0 $0
STEPHANIE COZINE DIRECTOR 1.00
Director
$0 $0 $0
TAMARA CULLERE DIRECTOR 1.00
Director
$0 $0 $0
LISA BERRY DIRECTOR 1.00
Director
$0 $0 $0
CARL KAPES DIRECTOR 1.00
Director
$0 $0 $0
PATRICIA ESPINAL DIRECTOR 1.00
Director
$0 $0 $0
JASON MADISON DIRECTOR 1.00
Director
$0 $0 $0
STACEY MONTGOMERY DIRECTOR 1.00
Director
$0 $0 $0
SHERI WISE DIRECTOR 1.00
Director
$0 $0 $0
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2024 $2,108,438 $2,506,869 $3,874,160 $-398,431
2023 $2,296,659 $2,758,261 $4,013,909 $-461,602
2022 $1,837,186 $2,686,456 $4,525,008 $-849,270
2021 $1,902,823 $2,087,379 $5,360,039 $-184,556
2020 $2,011,223 $1,741,828 $5,467,051 $269,395
2019 $2,740,255 $1,977,648 $5,077,461 $762,607
2018 $1,816,690 $2,160,441 $3,754,331 $-343,751
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