SJOGREN'S FOUNDATION INC

EIN: 112779073 501(c)(3) Diseases & Disorders

RESTON, VA

Total Revenue
$5,277,586
Total Expenses
$4,223,979
Total Assets
$5,240,223
Net Assets
$4,027,388
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Financial Trends

Organization Details

Formation Year
1983
Legal Domicile
NY
Principal Officer
JANET CHURCH
Phone
3015304420
Tax Period
2024-07-01 to 2025-06-30

SJOGREN'S SYNDROME FOUNDATION INC, founded in 1983, is a community nonprofit in the Diseases & Disorders sector that reported $3.4M in total revenue in fiscal year 2018. Revenue surged 47% from the prior year, signaling strong growth momentum. The organization ran a surplus of $1.1M, a strong 31% operating margin.

Mission

THE FOUNDATION'S MISSION IS TO PROVIDE EDUCATION AND RESOURCES TO SJOGREN'S PATIENTS AND THEIR LOVED ONES, PROVIDE CREDIBLE RESOURCES/EDUCATION TO HEALTHCARE PROFESSIONALS, SERVE AS THE VOICE OF ALL PATIENTS THROUGH ADVOCACY AND FUND INNOVATIVE RESEARCH.

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $4,712,138
Program Service Revenue $502,889
Investment Income $143,224
Other Revenue $-80,665
TOTAL REVENUE $5,277,586

Expense Breakdown

Grants Paid $636,789
Salaries & Benefits $1,937,731
Fundraising Expenses $469,255
Program Expenses $3,551,082
Other Expenses $1,649,459
TOTAL EXPENSES $4,223,979

Year-over-Year Comparison

2024 2023 Change
Revenue $5,277,586 $3,497,666 +0.5%
Expenses $4,223,979 $3,174,412 +0.3%
Net Income $1,053,607 $323,254 +2.3%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Governance

Voting Members
17
Independent Members
17
Employees
16
Volunteers
684

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
5
$368,360
Total Directors
17
$0
Key Employees
1
$189,280
Highest Compensated
4
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
SUSAN BARAJAS CHAIRMAN 2.00
Officer Director
$0 $0 $0
DONALD E THOMAS MD PAST CHAIRMAN 2.00
Officer Director
$0 $0 $0
VIDYA SANKAR DMD MHS TREASURER 2.00
Officer Director
$0 $0 $0
KATIE FORTE SECRETARY 2.00
Officer Director
$0 $0 $0
ALAN BAER MD DIRECTOR, CHAIRMAN OF MSAC 2.00
Director
$0 $0 $0
ALLISSA LATHAM DIRECTOR 2.00
Director
$0 $0 $0
BRENT P GOODMAN MD DIRECTOR 2.00
Director
$0 $0 $0
DANIEL WALLACE MD DIRECTOR 2.00
Director
$0 $0 $0
DAVID SCHRADER DIRECTOR 2.00
Director
$0 $0 $0
NISHANT GUPTA MD DIRECTOR 2.00
Director
$0 $0 $0
ROBYN LAUKIEN DIRECTOR 2.00
Director
$0 $0 $0
RUBENSTEIN LISA DIRECTOR 2.00
Director
$0 $0 $0
SARA MCCOY MD DIRECTOR 2.00
Director
$0 $0 $0
SCOTT LIEBERMAN MD DIRECTOR 2.00
Director
$0 $0 $0
TAMMY DOTSON DIRECTOR 2.00
Director
$0 $0 $0
TOM IATESTA DIRECTOR 2.00
Director
$0 $0 $0
VATINEE BUNYA MD MSCE DIRECTOR 2.00
Director
$0 $0 $0
JANET CHURCH PRESIDENT AND CEO 40.00
Officer
$368,360 $0 $368,360
KATHERINE MORLAND HAMMITT VP OF MEDICAL AND SCIENTIFIC AFFAIRS 40.00
Key Emp
$189,280 $0 $189,280
BEN BASLOE VP OF PHILANTHROPY AND OPERATIONS 40.00
Highest
$135,085 $0 $135,085
LANE DESTRO SR. DIRECTOR, CORPORATE PARTNERSHIPS & STRATEGIC I 40.00
Highest
$125,368 $0 $125,368
MICHELE CHAMPIGNY VP OF PATIENT SERVICES AND EDUCATION 40.00
Highest
$115,761 $0 $115,761
MATTHEW MAKARA SENIOR DIRECTOR OF RESEARCH & SCIENTIFIC AFFAIRS 40.00
Highest
$114,253 $0 $114,253
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2025 $5,277,586 $4,223,979 $5,240,223 $1,053,607
2024 $3,497,666 $3,174,412 $4,167,805 $323,254
2023 $3,324,713 $2,841,846 $3,694,277 $482,867
2022 $2,943,480 $2,322,444 $2,799,424 $621,036
2021 $2,961,602 $2,930,916 $2,612,292 $30,686
2020 $2,468,773 $2,427,639 $2,458,865 $41,134
2019 $3,416,389 $2,342,283 $2,009,972 $1,074,106
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