THE CHILDREN'S CANCER CAUSE INC

ADVOCACY EDUCATION: THE ORGANIZATION LEADS SEVERAL ACTIVITIES FOCUSED ON EDUCATING PATIENTS, SURVIVORS, AND THEIR FAMILIES ABOUT THE IMPACT OF FEDERAL AND STATE HEALTH POLICY ON CHILDHOOD CANCER AND SURVIVORSHIP CARE. EDUCATIONAL PROGRAMS INCLUDE MONTHLY NEWSLETTERS, EMAIL ALERTS ON PENDING LEGISLATION AND A TOOLKIT PROVIDING STRATEGIES AND TACTICS ON EFFECTIVE ADVOCACY. THE ORGANIZATION WORKS TO EDUCATE LEGISLATIVE AND REGULATORY DECISION MAKERS ON THE CHILDHOOD CANCER EXPERIENCE AND POLICY NEEDS. EACH MONTH THE ORGANIZATION ENGAGES IN A THOUGHTFUL, ANALYTICAL PROCESS REVIEWING TIMELY AND RELEVANT POLICY ISSUES IMPACTING CHILDREN WITH CANCER. THIS INFORMATION IS DISTRIBUTED THROUGH A VARIETY OF ELECTRONIC MEDIA TO PATIENTS, SURVIVORS AND FAMILIES AND INFORMS THE POLICY AGENDA FOR THE ORGANIZATION AND OTHER CHILDHOOD CANCER FOUNDATIONS.WE PROMOTE POLICIES AND PROGRAMS THAT AIM TO ACCELERATE THE DEVELOPMENT OF SAFER, MORE EFFECTIVE CANCER THERAPIES FOR CHILDREN AND BETTER ADDRESS THE UNIQUE NEEDS AND LIFELONG HEALTH CHALLENGES EXPERIENCED BY CHILDHOOD CANCER SURVIVORS AND THEIR FAMILIES.CHILDREN'S CANCER AWARENESS AND ADVOCACY DAY: THIS DAY BRINGS TOGETHER PEDIATRIC PATIENTS, YOUNG ADULT SURVIVORS, AND FAMILIES FOR A DAY OF MOBILIZING AGAINST CHILDHOOD CANCER. THE ORGANIZATION PARTNERS WITH OTHER ORGANIZATIONS TO OFFER A TRAINING WORKSHOP FOR THE LOBBY DAY WHICH FAMILIARIZES SURVIVORS WITH THE FEDERAL LEGISLATIVE AND APPROPRIATIONS PROCESS AND INSTRUCTS ATTENDEES ON EFFECTIVE MESSAGING STRATEGIES FOR VISITS WITH CONGRESSIONAL MEMBERS AND STAFF. PUBLIC POLICY ADVOCACY: WORKING CLOSELY WITH LEADERS IN CONGRESS, FEDERAL AGENCIES, INDUSTRY, AND THE BROADER CANCER COMMUNITY, WE SERVE AS A DEDICATED VOICE OF CHILDREN WITH CANCER, FAMILIES, AND SURVIVORS IN NATIONAL DEBATES ON HEALTH CARE AND CANCER POLICY. THROUGH GRASSROOTS ADVOCACY AND PRESENTATIONS TO GOVERNMENT AGENCIES, POLICY MAKERS, COALITIONS, AND STAKEHOLDERS, THIS PROGRAM PROVIDES INFORMATION ON THE IMPACT OF FEDERAL POLICY ON CHILDREN WITH CANCER AND SURVIVORS. THE PURPOSE IS TO FACILITATE THE DEVELOPMENT AND APPROVAL OF MORE EFFECTIVE AND LESS TOXIC THERAPIES FOR CHILDREN WITH CANCER AND ENSURES APPROPRIATE CARE FOR SURVIVORS THROUGH EDUCATION ON THE BARRIERS TO DRUG DEVELOPMENT AND THE CONSEQUENCES OF CURRENT TREATMENTS. WORKING CLOSELY WITH LEADERS IN CONGRESS, FEDERAL AGENCIES, INDUSTRY, AND THE BROADER CANCER COMMUNITY, WE SERVE AS A DEDICATED VOICE OF CHILDREN WITH CANCER, FAMILIES, AND SURVIVORS IN NATIONAL DEBATES ON HEALTH CARE AND CANCER POLICY. THE ORGANIZATION ALSO UTILIZES WEBSITE EDUCATION, AN ADVOCACY TOOLKIT AND MONTHLY NEWSLETTERS TO FACILITATE ITS CAUSE. IN ADDITION THE ORGANIZATION HAS INITIATED A 'COLLEGE SCHOLARS' PROGRAM PROVIDING SCHOLARSHIPS TO SURVIVORS OF CHILDHOOD CANCER.