MUSCULAR DYSTROPHY ASSOCIATION INC (EIN 131665552) - Form 990 Financial Analysis & Trantor Score

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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year

1950

Legal Domicile

Principal Officer

SHARON HESTERLEE PHD

Phone

3122605900

Tax Period

2025-01-01 to 2025-12-31

MUSCULAR DYSTROPHY ASSOCIATION INC, founded in 1950, is a mid-sized nonprofit in the Diseases & Disorders sector that reported $64.2M in total revenue in fiscal year 2025. Expenses of $61.7M left a modest 4% surplus.

Mission

MUSCULAR DYSTROPHY ASSOCIATION (MDA) IS THE #1 VOLUNTARY HEALTH ORGANIZATION IN THE UNITED STATES FOR PEOPLE LIVING WITH MUSCULAR DYSTROPHY, ALS, AND RELATED NEUROMUSCULAR DISEASES. FOR OVER 70 YEARS, MDA HAS LED THE WAY IN ACCELERATING RESEARCH, ADVANCING CARE, AND ADVOCATING FOR THE SUPPORT OF OUR FAMILIES. MDA'S MISSION IS TO EMPOWER THE PEOPLE WE SERVE TO LIVE LONGER, MORE INDEPENDENT LIVES.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

Financial Overview (2025)

Revenue Breakdown

Contributions & Grants $54,355,588

Program Service Revenue $0

Investment Income $4,498,056

Other Revenue $5,306,388

TOTAL REVENUE $64,160,032

Expense Breakdown

Grants Paid $14,147,711

Salaries & Benefits $29,175,286

Fundraising Expenses $14,758,982

Program Expenses $43,809,908

Other Expenses $17,272,380

TOTAL EXPENSES $61,748,106

Year-over-Year Comparison

	2025	2024	Change
Revenue	$64,160,032	$60,356,244	+0.1%
Expenses	$61,748,106	$65,965,386	-0.1%
Net Income	$2,411,926	$-5,609,142	-1.4%

Key Indicators

✓ Grants to Organizations ✗ Grants to Individuals ✓ Lobbying ✗ Political Activity ✓ Foreign Activities ✗ Donor Advised Fund ✓ Schedule B Required

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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

Governance

Voting Members

Independent Members

Employees

272

Volunteers

934

Governance Policies

✓ Conflict of Interest Policy

✓ Whistleblower Policy

✓ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School

✗ Operated a Hospital

✗ Provided First Class Travel

✗ Reported Conflict of Interest

✗ Reported Asset Diversion

✗ Excess Benefit Transaction

✗ Made Political Expenditures

✓ Engaged in Lobbying

✗ Operated Donor Advised Fund

✗ Maintained Art Collections

✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers

$1,778,962

Total Directors

Key Employees

$261,209

Highest Compensated

reported

Name	Title	Hours/Week	Role	Reportable Comp	Other Comp	Total
ANJAN ARALIHALLI	DIRECTOR	1.00	Director	$0	$0	$0
BARRY BYRNE MD PHD	DIRECTOR	1.00	Director	$0	$0	$0
BENJAMIN CUMBO III	DIRECTOR	1.00	Director	$0	$0	$0
CHARLES D SCHOOR ESQ	DIRECTOR	1.00	Director	$0	$0	$0
CHRISTOPHER ROSA	VICE CHAIRMAN	5.00	Officer Director	$0	$0	$0
DAN FRIES	DIRECTOR	1.00	Director	$0	$0	$0
ELIZABETH MCNALLY MD PHD	DIRECTOR	1.00	Director	$0	$0	$0
GOVERNOR BRAD HENRY	CHAIRMAN	5.00	Officer Director	$0	$0	$0
HON ROBERT E PIPIA	DIRECTOR	1.00	Director	$0	$0	$0
JOHN COSTANTINO	DIRECTOR	1.00	Director	$0	$0	$0
JOHN E HOWELL	DIRECTOR	1.00	Director	$0	$0	$0
LILIAN WU PHD	DIRECTOR	1.00	Director	$0	$0	$0
LOUIS KUNKEL PHD	DIRECTOR	1.00	Director	$0	$0	$0
MARK SMITH	DIRECTOR	1.00	Director	$0	$0	$0
MATT PLUMMER	DIRECTOR	1.00	Director	$0	$0	$0
MIKE ROWLETT	OUTGOING DIRECTOR	1.00	Director	$0	$0	$0
NANCY KINDELAN	DIRECTOR	1.00	Director	$0	$0	$0
STEVE FURNARY	DIRECTOR	1.00	Director	$0	$0	$0
TOM SIMON	DIRECTOR	1.00	Director	$0	$0	$0
DONALD WOOD	OUTGOING PRESIDENT & CEO	50.00	Officer	$662,437	$17,405	$679,842
HENRY LANMAN	COO & CHIEF LEGAL OFFICER	50.00	Officer	$380,303	$56,441	$436,744
MICHAEL KENNEDY	OUTGOING TREASURER & CFO	50.00	Officer	$158,297	$11,653	$169,950
SHARON HESTERLEE	PRESIDENT & CEO	50.00	Officer	$421,661	$70,765	$492,426
JON VAN COTT	INTERIM CFO & CONTROLLER	50.00	Key Emp	$213,151	$48,058	$261,209
ANGELA LEK	CHIEF RESEARCH OFFICER	50.00	Highest	$221,940	$13,910	$235,850
MARY ROTH	CHIEF MARKETING OFFICER	50.00	Highest	$259,355	$54,791	$314,146
NORA CAPOCCI	EVP, HEALTHCARE SERVICES	50.00	Highest	$227,925	$24,094	$252,019
PERIPEDES GONDIM	OUTGOING EVP, HR & VOLUNTEERS	50.00	Highest	$235,864	$15,493	$251,357
RUTH DAILEY	CHIEF DEVELOPMENT OFFICER	50.00	Highest	$304,413	$29,955	$334,368

Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year	Revenue	Expenses	Assets	Net Income
2025	$64,160,032	$61,748,106	$50,874,216	$2,411,926
2024	No data	No data	No data	No data
2023	$59,437,892	$62,127,770	$66,561,388	$-2,689,878
2022	$63,227,837	$58,970,307	$64,403,820	$4,257,530
2021	$63,393,990	$53,419,636	$75,564,994	$9,974,354
2020	$63,707,273	$68,372,442	$71,915,435	$-4,665,169
2019	$100,972,775	$112,749,799	$81,509,086	$-11,777,024
2018	$110,657,553	$107,797,032	$83,664,541	$2,860,521

MUSCULAR DYSTROPHY ASSOCIATION INC