NATIONAL TAY-SACHS & ALLIED DISEASES ASS

EIN: 131912877 501(c)(3) Diseases & Disorders

BRIGHTON, MA

Total Revenue
$1,397,598
Total Expenses
$1,448,700
Total Assets
$2,769,718
Net Assets
$2,754,711
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Financial Vulnerability Assessment (Tuckman-Chang)

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Financial Trends

Organization Details

Formation Year
1957
Legal Domicile
MA
Principal Officer
KATHLEEN M FLYNN
Phone
6172774463
Tax Period
2024-07-01 to 2025-06-30

NATIONAL TAY-SACHS & ALLIED DISEASES ASS, founded in 1957, is a community nonprofit in the Diseases & Disorders sector that reported $1.4M in total revenue in fiscal year 2024.

Mission

TO DETECT, PREVENT AND RESEARCH TAY-SACHS AND ALLIED DISEASES. THE ORGANIZATION ALSO PROVIDES SERVICES TO FAMILIES AND CHILDREN THAT ARE LIVING WITH THE DISEASES.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $819,762
Program Service Revenue $311,837
Investment Income $65,747
Other Revenue $200,252
TOTAL REVENUE $1,397,598

Expense Breakdown

Grants Paid $0
Salaries & Benefits $506,441
Fundraising Expenses $116,481
Program Expenses $1,250,852
Other Expenses $942,259
TOTAL EXPENSES $1,448,700

Year-over-Year Comparison

2024 2023 Change
Revenue $1,397,598 $1,376,815 +0.0%
Expenses $1,448,700 $1,344,428 +0.1%
Net Income $-51,102 $32,387 -2.6%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Financial Health Indicators

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Liquidity & Cash Position

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Governance

Voting Members
19
Independent Members
19
Employees
8
Volunteers
N/A

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
4
$0
Total Directors
19
$0
Key Employees
0
$0
Highest Compensated
1
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
ORALEA MARQUARDT DIRECTOR 2.50
Director
$0 $0 $0
SARA SCAPAROTTI PRESIDENT 2.50
Officer Director
$0 $0 $0
MICHAEL RICHARDS TREASURER 2.50
Officer Director
$0 $0 $0
LISAJANE ROMER SECRETARY 2.50
Officer Director
$0 $0 $0
LAUREN CELANO DIRECTOR 2.50
Director
$0 $0 $0
MATTHEW GOLDSTEIN DIRECTOR 2.50
Director
$0 $0 $0
GERRY COX DIRECTOR 2.50
Director
$0 $0 $0
BONNIE DAVIS DIRECTOR 2.50
Director
$0 $0 $0
AMBER FRANZEN DIRECTOR 2.50
Director
$0 $0 $0
STACI KALLISH DIRECTOR 2.50
Director
$0 $0 $0
JONATHAN KATZ DIRECTOR 2.50
Director
$0 $0 $0
MARTHA KLEINMAN DIRECTOR 2.50
Director
$0 $0 $0
DAWN LANEY DIRECTOR 2.50
Director
$0 $0 $0
JONATHAN LAWRENCE VICE PRESIDENT 2.50
Officer Director
$0 $0 $0
JAMIE RING DIRECTOR 2.50
Director
$0 $0 $0
SUSAN RODEN DIRECTOR 2.50
Director
$0 $0 $0
ABBY ROGERS DIRECTOR 2.50
Director
$0 $0 $0
DEBORAH SANDERS DIRECTOR 2.50
Director
$0 $0 $0
CARLA STECKMAN DIRECTOR 2.50
Director
$0 $0 $0
KATHLEEN FLYNN CEO 40.00
Highest
$169,733 $0 $169,733
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2025 $1,397,598 $1,448,700 $2,769,718 $-51,102
2024 $1,376,815 $1,344,428 $2,853,352 $32,387
2023 $1,177,492 $1,507,806 $2,868,442 $-330,314
2022 $1,253,108 $770,790 $3,116,145 $482,318
2021 $1,320,048 $748,295 $2,686,792 $571,753
2020 $1,163,793 $676,801 $2,169,529 $486,992
2019 $1,100,075 $907,900 $1,597,631 $192,175
2018 $1,253,531 $899,379 $1,380,185 $354,152
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