CHILDREN'S TUMOR FOUNDATION

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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year

1978

Legal Domicile

Principal Officer

ANNETTE BAKKER PHD

Phone

2123446633

Tax Period

2024-01-01 to 2024-12-31

CHILDREN'S TUMOR FOUNDATION, founded in 1978, is a mid-sized nonprofit in the Medical Research sector that reported $19.7M in total revenue in fiscal year 2024. Revenue surged 20% from the prior year, signaling strong growth momentum. Expenses of $19.0M left a modest 4% surplus.

Mission

OUR MISSION: DRIVE RESEARCH, EXPAND KNOWLEDGE, AND ADVANCE CARE FOR THE NF COMMUNITY. OUR VISION: END NF.

Program Service Accomplishments

Program 1

Expenses: $11,061,408 Revenue: $108,732

RESEARCH - THE CHILDREN'S TUMOR FOUNDATION SUPPORTS NF RESEARCH THROUGH A RANGE OF FUNDING MECHANISMS. OUR INVESTMENTS IN RESEARCH ARE THREE-FOLD: 1) TO ATTRACT TALENTED INVESTIGATORS TO NF RESEARCH; 2) TO SUPPORT INNOVATIVE RESEARCH; AND 3) TO FOSTER COLLABORATIVE EFFORTS TO FIND TREATMENTS AND CURES FOR NEUROFIBROMATOSIS. THE FOUNDATION HAS BEEN AT THE FOREFRONT OF KEY ADVANCES IN NF RESEARCH INCLUDING FUNDING THE LABORATORIES THAT DISCOVERED THE NF1 AND NF2 GENES, SUPPORTING GROUNDBREAKING CLINICAL TRIALS, AND ESTABLISHING THE FIRST NATIONWIDE NF CLINIC NETWORK AND NF PATIENT REGISTRY. THE FOUNDATION SPONSORS AN ANNUAL SCIENTIFIC CONFERENCE WHICH BRINGS RESEARCHERS TOGETHER TO DISCUSS THE LATEST SCIENTIFIC DEVELOPMENTS RELATED TO NF. ADDITONALLY, OUR PORGRAMS ARE DESIGNED TO INTEGRATE WITH AND SUPPORT LARGER FEDERALLY FUNDED PROJECTS THROUGH THE CONGRESSIONALLY DIRECTED MEDICAL RESEARCH PROGRAM (CDMRP) AND NIH.

Program 2

Expenses: $4,863,943

PUBLIC EDUCATION AND PATIENT SUPPORT - THE CHILDREN'S TUMOR FOUNDATION ENGAGES IN PUBLIC EDUCATION THROUGH ITS WEBSITE, QUARTERLY NEWSLETTERS, MEDIA COVERAGE, AND ITS NATIONAL PROGRAMS. THROUGH OUR NF ENDURANCE AND NF WALK PROGRAMS, THE FOUNDATION HIGHLIGHTS NF HEROES AND THEIR TRIUMPHANT SPIRITS. THE FOUNDATION ALSO SPONSORS BENEFIT DINNERS AND REGIONAL AND LOCAL EVENTS TO PROMOTE AWARENESS. THE CHILDREN'S TUMOR FOUNDATION IS DEDICATED TO SUPPORTING PATIENTS WITH NF AS WELL AS THEIR FAMILY MEMBERS. THROUGH THE NF CLINIC NETWORK AND THE ANNUAL NF FORUM, THE FOUNDATION BRINGS RESEARCHERS, PROVIDERS, AND FAMILIES TOGETHER TO DISCUSS DEVELOPMENTS IN TREATMENTS. THE FOUNDATION ALSO SPONSORS THE ANNUAL NF CAMP WHICH BRINGS NF TEENS TOGETHER FOR ONE WEEK TO ENJOY THE SUPPORT AND FELLOWSHIP OF THEIR PEERS. REGIONAL SYMPOSIA ARE ALSO HELD THROUGHOUT THE YEAR.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $18,893,523

Program Service Revenue $25,665

Investment Income $853,571

Other Revenue $-34,119

TOTAL REVENUE $19,738,640

Expense Breakdown

Grants Paid $5,493,525

Salaries & Benefits $6,787,095

Fundraising Expenses $1,557,993

Program Expenses $15,925,351

Other Expenses $6,728,872

TOTAL EXPENSES $19,009,492

Year-over-Year Comparison

	2024	2023	Change
Revenue	$19,738,640	$16,447,289	+0.2%
Expenses	$19,009,492	$18,828,152	+0.0%
Net Income	$729,148	$-2,380,863	-1.3%

Key Indicators

✓ Grants to Organizations ✓ Grants to Individuals ✓ Lobbying ✗ Political Activity ✓ Foreign Activities ✗ Donor Advised Fund ✓ Schedule B Required

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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

Governance

Voting Members

Independent Members

Employees

Volunteers

1000

Governance Policies

✓ Conflict of Interest Policy

✓ Whistleblower Policy

✓ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School

✗ Operated a Hospital

✗ Provided First Class Travel

✗ Reported Conflict of Interest

✗ Reported Asset Diversion

✗ Excess Benefit Transaction

✗ Made Political Expenditures

✓ Engaged in Lobbying

✗ Operated Donor Advised Fund

✗ Maintained Art Collections

✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers

$1,624,551

Total Directors

Key Employees

Highest Compensated

reported

Name	Title	Hours/Week	Role	Reportable Comp	Other Comp	Total
CAROL KALAGHER	BOARD MEMBER (OUTGOING)	1.00	Director	$0	$0	$0
DANIEL ALTMAN	BOARD MEMBER	1.00	Director	$0	$0	$0
DANIEL GILBERT	BOARD MEMBER (OUTGOING)	1.00	Director	$0	$0	$0
ED STERN	BOARD MEMBER (OUTGOING)	1.00	Director	$0	$0	$0
EMILY PARKER	BOARD MEMBER	1.00	Director	$0	$0	$0
FRANK HAUGHTON	BOARD MEMBER	1.00	Director	$0	$0	$0
GABRIEL GROISMAN	CHAIR	1.00	Officer Director	$0	$0	$0
GEORGE THURONYI	BOARD MEMBER	1.00	Director	$0	$0	$0
JAISHRI BLAKELEY	BOARD MEMBER	1.00	Director	$0	$0	$0
KENNETH RUDD	BOARD MEMBER	1.00	Director	$0	$0	$0
LAURA GRANNEMAN	BOARD MEMBER	1.00	Director	$0	$0	$0
LINDA H MARTIN	CHAIR EMERITUS	1.00	Director	$0	$0	$0
LIZ RODBELL	VICE CHAIR	1.00	Officer Director	$0	$0	$0
LU LE	BOARD MEMBER	1.00	Director	$0	$0	$0
MARK OPPENHEIMER	BOARD MEMBER	1.00	Director	$0	$0	$0
MONTSE MONTANER PICART	BOARD MEMBER	1.00	Director	$0	$0	$0
RANDALL STANICKY	BOARD MEMBER	1.00	Director	$0	$0	$0
RB HARRISON	TREASURER	1.00	Officer Director	$0	$0	$0
RICHARD HORVITZ	CHAIR EMERITUS	1.00	Director	$0	$0	$0
RICHARD SOLL	BOARD MEMBER	1.00	Director	$0	$0	$0
ROBERT BRAININ	BOARD MEMBER (OUTGOING)	1.00	Director	$0	$0	$0
ROGER - KETCHA NGASSAM	BOARD MEMBER	1.00	Director	$0	$0	$0
SALLY GOTTESMAN	BOARD MEMBER	1.00	Director	$0	$0	$0
SCOTT PLOTKIN	BOARD MEMBER	1.00	Director	$0	$0	$0
SIMONE MANSO	BOARD MEMBER	1.00	Director	$0	$0	$0
STEVEN MCKENZIE	BOARD MEMBER	1.00	Director	$0	$0	$0
TRACY GALLOWAY	BOARD MEMBER	1.00	Director	$0	$0	$0
VICKI MATCH SUNA	BOARD MEMBER	1.00	Director	$0	$0	$0
WADE CLAPP	BOARD MEMBER	1.00	Director	$0	$0	$0
ANNETTE BAKKER	PRESIDENT	37.50	Officer	$404,743	$63,609	$468,352
BRIGID GARELIK	CHIEF MEDICAL OFFICER	37.50	Officer	$343,266	$61,369	$404,635
MONICA SOHN	CHIEF GROWTH OFFICER	37.50	Officer	$258,750	$12,578	$271,328
SARAH BOURNE	SR. VP, FINANCE AND OPERATIONS	37.50	Officer	$194,226	$9,091	$203,317
SIMON VUKELJ	CHIEF MARKETING OFFICER	37.50	Officer	$246,075	$30,844	$276,919
AMY BOULAS	VP DEV. PTP AND FIELD BASED EVENTS	37.50	Highest	$151,528	$34,925	$186,453
BARBARA GALLAGHER	VICE PRESIDENT OF DEV.	37.50	Highest	$172,066	$43,386	$215,452
IRENE MORGANSTERN	DIRECTOR, PRECLINICAL INITIATIVES	37.50	Highest	$183,952	$54,103	$238,055
JENNIFER CHING	DIRECTOR, HUMAN RESOURCES	37.50	Highest	$160,108	$38,274	$198,382
MICHELE PRZYPYSZNY	CHIEF ADVANCEMENT OFFICER	37.50	Highest	$166,864	$4,026	$170,890

Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year	Revenue	Expenses	Assets	Net Income
2024	$19,738,640	$19,009,492	$30,677,831	$729,148
2023	$16,447,289	$18,828,152	$30,074,603	$-2,380,863
2022	$16,990,325	$15,815,548	$32,079,774	$1,174,777
2021	$16,779,578	$10,418,437	$29,600,801	$6,361,141
2020	$12,831,946	$10,393,620	$23,094,143	$2,438,326
2019	$17,897,687	$11,267,232	$19,223,379	$6,630,455
2018	$12,490,368	$12,403,939	$11,722,094	$86,429