NATIONAL DOWN SYNDROME SOCIETY (EIN 132992567) - Form 990 Financial Analysis & Trantor Score

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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year

1979

Legal Domicile

Principal Officer

KANDI PICKARD

Phone

8002214602

Tax Period

2024-07-01 to 2025-06-30

NATIONAL DOWN SYNDROME SOCIETY, founded in 1979, is a community nonprofit that reported $4.7M in total revenue in fiscal year 2024. Revenue grew 17% year-over-year, indicating healthy expansion. Expenses of $5.7M exceeded revenue, resulting in a 22% operating deficit.

Mission

The National Down Syndrome Society empowers individuals with Down syndrome and their families by driving policy change, providing resources, engaging with local communities, and shifting public perceptions.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $3,173,086

Program Service Revenue $370,245

Investment Income $760,829

Other Revenue $398,618

TOTAL REVENUE $4,702,778

Expense Breakdown

Grants Paid $172,025

Salaries & Benefits $2,277,249

Fundraising Expenses $720,980

Program Expenses $4,593,932

Other Expenses $3,271,919

TOTAL EXPENSES $5,721,193

Year-over-Year Comparison

	2024	2023	Change
Revenue	$4,702,778	$4,012,682	+0.2%
Expenses	$5,721,193	$5,273,290	+0.1%
Net Income	$-1,018,415	$-1,260,608	-0.2%

Key Indicators

✓ Grants to Organizations ✓ Grants to Individuals ✓ Lobbying ✗ Political Activity ✗ Foreign Activities ✗ Donor Advised Fund ✓ Schedule B Required

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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

Governance

Voting Members

Independent Members

Employees

Volunteers

498

Governance Policies

✗ Conflict of Interest Policy

✗ Whistleblower Policy

✗ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School

✗ Operated a Hospital

✗ Provided First Class Travel

✗ Reported Conflict of Interest

✗ Reported Asset Diversion

✗ Excess Benefit Transaction

✗ Made Political Expenditures

✓ Engaged in Lobbying

✗ Operated Donor Advised Fund

✗ Maintained Art Collections

✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers

$239,048

Total Directors

Key Employees

Highest Compensated

reported

Name	Title	Hours/Week	Role	Reportable Comp	Other Comp	Total
KANDI PICKARD	President & CEO	40.00	Officer	$197,048	$42,000	$239,048
Robert Snow	Disability Adv	40.00		$97,251	$47,750	$145,001
Carlo P Frappolli	Chairman	2.00	Officer Director	$0	$0	$0
Thomas Warner	Vice President	1.50	Officer Director	$0	$0	$0
Janet Eissenstat	Secretary	1.50	Officer Director	$0	$0	$0
John Short	Treasurer	1.50	Officer Director	$0	$0	$0
Elizabeth F Goodwin	Director	0.70	Director	$0	$0	$0
Kerry Sette	Director	0.70	Director	$0	$0	$0
John Cronin	Director	0.70	Director	$0	$0	$0
Misty Holmes	Director	0.70	Director	$0	$0	$0
Marjorie Shavers	Director	0.70	Director	$0	$0	$0
Mark Johnson	Director	0.70	Director	$0	$0	$0
Debbie Morris	Director	0.70	Director	$0	$0	$0
Lisa Pelham	Director	0.70	Director	$0	$0	$0
Thomas Santos	Director	0.70	Director	$0	$0	$0
Schunda Murphy	Director	0.70	Director	$0	$0	$0
Robert Siegel	Director	0.70	Director	$0	$0	$0
Candace Whiting	Director	1.50	Director	$0	$0	$0
Lauren Wang	Director	0.70	Director	$0	$0	$0
C Mitch Taylor	Director	0.70	Director	$0	$0	$0
Michael Kulma	Director	0.70	Director	$0	$0	$0
Victoria Tremonti	Director	0.70	Director	$0	$0	$0
Joe Joyce	Director	0.70	Director	$0	$0	$0
Courtney Gaines	Director	0.70	Director	$0	$0	$0
Ciara Siegel	Director	0.70	Director	$0	$0	$0
John McGuire	Director	0.30	Director	$0	$0	$0

Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year	Revenue	Expenses	Assets	Net Income
2025	$4,702,778	$5,721,193	$12,363,529	$-1,018,415
2024	$4,012,682	$5,273,290	$12,985,609	$-1,260,608
2023	$3,354,289	$4,160,847	$13,503,862	$-806,558
2022	$3,651,955	$3,391,372	$13,076,710	$260,583
2021	$3,450,089	$2,652,693	$15,264,165	$797,396
2020	$3,126,980	$2,764,858	$12,397,203	$362,122

NATIONAL DOWN SYNDROME SOCIETY