AMYOTROPHIC LATERAL SCLEROSIS ASSN

EIN: 133271855 501(c)(3) Diseases & Disorders

ARLINGTON, VA

Total Revenue
$68,583,051
Total Expenses
$82,239,637
Total Assets
$107,245,128
Net Assets
$88,974,972
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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year
1985
Legal Domicile
DE
Principal Officer
CALANEET BALAS
Phone
2024078580
Tax Period
2024-02-01 to 2025-01-31

AMYOTROPHIC LATERAL SCLEROSIS ASSN, founded in 1985, is a mid-sized nonprofit in the Diseases & Disorders sector that reported $68.6M in total revenue in fiscal year 2024. Revenue fell 46% from the prior year — a significant decline worth monitoring. Expenses of $82.2M exceeded revenue, resulting in a 20% operating deficit.

Mission

THE MISSION OF THE ALS ASSOCIATION IS TO MAKE ALS LIVABLE AND CURE IT.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $65,814,797
Program Service Revenue $0
Investment Income $1,640,602
Other Revenue $1,127,652
TOTAL REVENUE $68,583,051

Expense Breakdown

Grants Paid $16,679,289
Salaries & Benefits $43,300,438
Fundraising Expenses $18,975,773
Program Expenses $56,484,194
Other Expenses $21,255,164
TOTAL EXPENSES $82,239,637

Year-over-Year Comparison

2024 2023 Change
Revenue $68,583,051 $126,450,238 -0.5%
Expenses $82,239,637 $98,839,577 -0.2%
Net Income $-13,656,586 $27,610,661 -1.5%
Key Indicators
✓ Grants to Organizations ✓ Grants to Individuals ✓ Lobbying ✗ Political Activity ✓ Foreign Activities ✗ Donor Advised Fund ✓ Schedule B Required
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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

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Governance

Voting Members
25
Independent Members
25
Employees
528
Volunteers
25

Governance Policies

✓ Conflict of Interest Policy
✓ Whistleblower Policy
✓ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School
✗ Operated a Hospital
✗ Provided First Class Travel
✗ Reported Conflict of Interest
✗ Reported Asset Diversion
✗ Excess Benefit Transaction
✗ Made Political Expenditures
✓ Engaged in Lobbying
✗ Operated Donor Advised Fund
✗ Maintained Art Collections
✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
10
$870,271
Total Directors
30
$0
Key Employees
6
$1,665,568
Highest Compensated
5
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
SCOTT KAUFFMAN CHAIR 5.00
Officer Director
$0 $0 $0
LARRY FALIVENA CHAIR-ELECT 5.00
Officer Director
$0 $0 $0
NANCY LEAMOND VICE CHAIR (AS OF 07/24) 5.00
Officer Director
$0 $0 $0
FRED M DEGRANDIS VICE CHAIR (THRU 07/24)/TRUSTEE 2.00
Officer Director
$0 $0 $0
FRED M DEGRANDIS TRUSTEE 5.00
Officer Director
$0 $0 $0
SANDRA PIERSOL SECRETARY 4.00
Officer Director
$0 $0 $0
MARK STANCIL TREASURER 4.00
Officer Director
$0 $0 $0
CONNIE HOUSTON TRUSTEE 2.00
Officer Director
$0 $0 $0
EUGENE BRANDON PHD TRUSTEE 2.00
Director
$0 $0 $0
DAVID VAN DE RIET TRUSTEE 2.00
Director
$0 $0 $0
CHRISTI L KOLARCIK PHD TRUSTEE (THRU 07/24) 2.00
Director
$0 $0 $0
J THOMAS MAY TRUSTEE 2.00
Director
$0 $0 $0
MARK CALMES TRUSTEE (THRU 07/24) 2.00
Director
$0 $0 $0
PAUL INGHOLT TRUSTEE (THRU 07/24) 2.00
Director
$0 $0 $0
TOM CARROLL TRUSTEE 2.00
Director
$0 $0 $0
MICHAEL BENATAR TRUSTEE 2.00
Director
$0 $0 $0
PETER MCKOWN TRUSTEE 2.00
Director
$0 $0 $0
REBECCA MOSS TRUSTEE 2.00
Director
$0 $0 $0
KENTON VAN HARTEN TRUSTEE (THRU 10/24) 2.00
Director
$0 $0 $0
DOUGH BUTCHER TRUSTEE 2.00
Director
$0 $0 $0
WILLIAM SOFFELL TRUSTEE 2.00
Director
$0 $0 $0
CHRIS TONNIGES TRUSTEE 2.00
Director
$0 $0 $0
JESSE YBARRA TRUSTEE 2.00
Director
$0 $0 $0
BERNIE ZIPPRICH TRUSTEE 2.00
Director
$0 $0 $0
DANIELLE BOISVERT TRUSTEE 2.00
Director
$0 $0 $0
ANNETTE BOWMAN TRUSTEE 2.00
Director
$0 $0 $0
EVE DRYER TRUSTEE 2.00
Director
$0 $0 $0
SEDA GOFF TRUSTEE 2.00
Director
$0 $0 $0
KELLY HALL TRUSTEE 2.00
Director
$0 $0 $0
STEVE HANON TRUSTEE 2.00
Director
$0 $0 $0
CALANEET BALAS PRESIDENT AND CEO 37.50
Officer
$491,499 $54,769 $546,268
GREG MITCHELL CHIEF FINANCIAL OFFICER 37.50
Officer
$288,086 $35,917 $324,003
NEIL THAKUR CHIEF MISSION OFFICER 37.50
Key Emp
$195,440 $36,588 $232,028
DEAN FEENER CHIEF INFORMATION & TECHNOLOGY OFFICER 37.50
Key Emp
$264,616 $26,338 $290,954
BRIAN FREDERICK CHIEF MARKETING & COMMUNICATIONS OFFICER 37.50
Key Emp
$250,253 $15,417 $265,670
PATRICK REEDY CHIEF DEVELOPMENT OFFICER 37.50
Key Emp
$270,892 $81,038 $351,930
JENNIFER HJELLE CHIEF COMMUNITY ENGAGEMENT OFFICER 37.50
Key Emp
$244,313 $31,456 $275,769
NICOLE ECK CHIEF STRATEGY OFFICER 37.50
Key Emp
$231,124 $18,093 $249,217
LANCE SLAUGHTER SVP STRATEGIC ALLIANCES & GOVERNANCE 37.50
Highest
$245,671 $46,889 $292,560
VICKIE LOBELLO SENIOR VICE PRESIDENT ORGANIZATIONAL CHANGE 37.50
Highest
$237,001 $19,437 $256,438
KULDIP DAVE SENIOR VICE PRESIDENT RESEARCH 37.50
Highest
$232,488 $75,573 $308,061
KIMBERLY HARDING-MAGINNIS SENIOR VICE PRESIDENT CARE SERVICES 37.50
Highest
$221,492 $32,600 $254,092
KEITH GARY VICE PRESIDENT MISSION ACCELERATION 37.50
Highest
$219,020 $45,964 $264,984
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2025 No data No data No data No data
2025 $68,583,051 $82,239,637 $107,245,128 $-13,656,586
2024 $126,450,238 $98,839,577 $127,891,549 $27,610,661
2023 $55,567,608 $84,199,819 $94,445,022 $-28,632,211
2022 $39,792,803 $44,852,298 $98,343,083 $-5,059,495
2021 $35,112,517 $38,436,196 $100,284,898 $-3,323,679
2020 $37,031,804 $41,808,503 $98,033,652 $-4,776,699
2019 $27,065,702 $34,890,213 $96,316,713 $-7,824,511
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