Interstitial Cystitis Association of America Inc

EIN: 133292137 501(c)(3)

McLean, VA

Total Revenue
$486,964
Total Expenses
$633,847
Total Assets
$165,553
Net Assets
$118,432
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Financial Trends

Organization Details

Formation Year
1984
Legal Domicile
NY
Principal Officer
Claudia King
Phone
7034422070
Tax Period
2023-10-01 to 2024-09-30

Interstitial Cystitis Association of America Inc, founded in 1984, is a small nonprofit that reported $771K in total revenue in fiscal year 2017. Revenue surged 41% from the prior year, signaling strong growth momentum. Expenses of $694K left a modest 10% surplus.

Mission

The ICA advocates for research dedicated to discovery of a cure and better treatments, raises awareness, and serves as a central hub for the healthcare providers, researchers and millions of patients who suffer with constant urinary urgency and frequency and extreme bladder pain called IC/BPS, or interstitial cystitis/bladder pain syndrome.

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Trantor Score

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2023)

Revenue Breakdown

Contributions & Grants $390,726
Program Service Revenue $92,884
Investment Income $891
Other Revenue $2,463
TOTAL REVENUE $486,964

Expense Breakdown

Grants Paid $0
Salaries & Benefits $0
Fundraising Expenses $90,473
Program Expenses $507,971
Other Expenses $633,847
TOTAL EXPENSES $633,847

Year-over-Year Comparison

2023 2022 Change
Revenue $486,964 $647,913 -0.2%
Expenses $633,847 $648,895 0.0%
Net Income $-146,883 $-982 +148.6%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Governance

Voting Members
15
Independent Members
15
Employees
N/A
Volunteers
20

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
4
$0
Total Directors
15
$0
Key Employees
0
$0
Highest Compensated
0
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
Laura Santurri Chair 3.00
Officer Director
$0 $0 $0
Claudia King Vice Chair 3.00
Officer Director
$0 $0 $0
Michael Greenwell Immediat Past Chair 1.00
Officer Director
$0 $0 $0
Amber Carter Director 1.50
Director
$0 $0 $0
Theda Khrestin Director 1.50
Director
$0 $0 $0
Shelley Kardon Director 1.50
Director
$0 $0 $0
Sarah Cojocaru Director 1.50
Director
$0 $0 $0
Ilka Ross Director 1.50
Director
$0 $0 $0
David Klumpp Director 1.50
Director
$0 $0 $0
Chris Meenan Director 1.50
Director
$0 $0 $0
Eric Zarnikow Director 1.50
Director
$0 $0 $0
Natasha Boswell Director 1.50
Director
$0 $0 $0
Tacha Kasper Director 1.50
Director
$0 $0 $0
Rick Lufkin Director 1.50
Director
$0 $0 $0
Janelle Faba Director 1.50
Director
$0 $0 $0
Lee Lowery Executive Director 10.00
Officer
$0 $0 $0
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2024 $486,964 $633,847 $165,553 $-146,883
2023 $647,913 $648,895 $315,917 $-982
2022 $604,676 $629,962 $304,762 $-25,286
2021 $745,097 $709,663 $352,600 $35,434
2020 $780,198 $696,585 $312,578 $83,613
2019 $632,190 $742,537 $225,225 $-110,347
2018 $770,504 $694,190 $327,851 $76,314
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