HUNTINGTON'S DISEASE SOCIETY OF AMERICA INC (EIN 133349872) - Form 990 Financial Analysis & Trantor Score

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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year

1986

Legal Domicile

Principal Officer

ARIK JOHNSON

Phone

2122421968

Tax Period

2023-01-01 to 2023-12-31

HUNTINGTON'S DISEASE SOCIETY OF AMERICA INC, founded in 1986, is a community nonprofit that reported $9.8M in total revenue in fiscal year 2023. Revenue decreased 8% compared to the prior year. Expenses of $11.2M exceeded revenue, resulting in a 13% operating deficit.

Mission

DEDICATED TO IMPROVING THE LIVES OF PEOPLE WITH HUNTINGTON'S DISEASE AND THEIR FAMILIES.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

Financial Overview (2023)

Revenue Breakdown

Contributions & Grants $9,341,469

Program Service Revenue $0

Investment Income $148,302

Other Revenue $344,165

TOTAL REVENUE $9,833,936

Expense Breakdown

Grants Paid $3,678,844

Salaries & Benefits $4,204,759

Fundraising Expenses $1,641,911

Program Expenses $8,829,066

Other Expenses $3,273,845

TOTAL EXPENSES $11,157,448

Year-over-Year Comparison

	2023	2022	Change
Revenue	$9,833,936	$10,709,965	-0.1%
Expenses	$11,157,448	$9,418,102	+0.2%
Net Income	$-1,323,512	$1,291,863	-2.0%

Key Indicators

✓ Grants to Organizations ✗ Grants to Individuals ✗ Lobbying ✗ Political Activity ✓ Foreign Activities ✗ Donor Advised Fund ✓ Schedule B Required

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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

Governance

Voting Members

Independent Members

Employees

Volunteers

500

Governance Policies

✓ Conflict of Interest Policy

✓ Whistleblower Policy

✓ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School

✗ Operated a Hospital

✗ Provided First Class Travel

✗ Reported Conflict of Interest

✗ Reported Asset Diversion

✗ Excess Benefit Transaction

✗ Made Political Expenditures

✗ Engaged in Lobbying

✗ Operated Donor Advised Fund

✗ Maintained Art Collections

✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers

$713,297

Total Directors

Key Employees

$214,485

Highest Compensated

reported

Name	Title	Hours/Week	Role	Reportable Comp	Other Comp	Total
VICTOR SUNG MD	PAST CHAIR	6.00	Officer Director	$0	$0	$0
TERESA SRAJER	CHAIR	6.00	Officer Director	$0	$0	$0
KAMRAN ALAM	TREASURER	6.00	Officer Director	$0	$0	$0
JENNE COLER-DARK	CHAIR ELECT	6.00	Officer Director	$0	$0	$0
JAY HUGHES	SECRETARY	6.00	Officer Director	$0	$0	$0
ANGELA ALLEN	TRUSTEE	6.00	Director	$0	$0	$0
JEFFREY BROWN	TRUSTEE	6.00	Director	$0	$0	$0
JEFF CARROLL	TRUSTEE	6.00	Director	$0	$0	$0
MARK COE	TRUSTEE	6.00	Director	$0	$0	$0
ERIN FURR-STIMMING MD	TRUSTEE	6.00	Director	$0	$0	$0
BETH HOFFMAN	TRUSTEE	6.00	Director	$0	$0	$0
JONATHAN KLEIN ESQ	TRUSTEE	6.00	Director	$0	$0	$0
KELSEY PORTER	TRUSTEE	6.00	Director	$0	$0	$0
DOMINIQUE THOMAS	TRUSTEE	6.00	Director	$0	$0	$0
LESLIE M THOMPSON PHD	TRUSTEE	6.00	Director	$0	$0	$0
VICKI WHEELOCK MD	TRUSTEE	6.00	Director	$0	$0	$0
LOUISE VETTER	CHIEF EXECUTIVE OFFICER	35.00	Officer	$370,302	$53,072	$423,374
ROSEMARY COLUCCIO	CHIEF OPERATIONS OFFICER	35.00	Officer	$260,173	$29,750	$289,923
ARIK JOHNSON	CHIEF MISSION OFFICER	35.00	Key Emp	$203,067	$11,418	$214,485
JAMISON SKALA	DIRECTOR, NATIONAL DEVELOPMENT	35.00	Highest	$173,121	$12,348	$185,469
DEBRA LOVECKY	DIR. OF EDUCATION PROG THRU MAY 2023	35.00	Highest	$257,479	$17,698	$275,177
DEBORAH BOYD	REGIONAL DEVELOPMENT DIRECTOR	35.00	Highest	$117,667	$21,815	$139,482
REBECCA CHAN	CONTROLLER	35.00	Highest	$112,876	$42,564	$155,440

Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year	Revenue	Expenses	Assets	Net Income
2024	No data	No data	No data	No data
2023	$9,833,936	$11,157,448	$18,147,360	$-1,323,512
2022	$10,709,965	$9,418,102	$17,419,711	$1,291,863
2021	$12,200,152	$7,945,111	$15,786,342	$4,255,041
2020	$8,586,946	$8,232,195	$12,188,468	$354,751
2019	$11,017,383	$9,193,170	$10,968,665	$1,824,213
2018	$10,168,000	$8,734,209	$9,438,517	$1,433,791

HUNTINGTON'S DISEASE SOCIETY OF AMERICA INC