THE JEFFREY MODELL FOUNDATION INC

EIN: 133380237 501(c)(3)

NEW YORK, NY

Total Revenue
$9,602,449
Total Expenses
$7,360,289
Total Assets
$42,921,915
Net Assets
$37,032,589
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Financial Vulnerability Assessment (Tuckman-Chang)

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Financial Trends

Organization Details

Formation Year
1986
Legal Domicile
NY
Phone
2128190200
Tax Period
2023-01-01 to 2023-12-31

THE JEFFREY MODELL FOUNDATION INC, founded in 1986, is a community nonprofit that reported $9.6M in total revenue in fiscal year 2023. Revenue grew 9% year-over-year, indicating healthy expansion. The organization ran a surplus of $2.2M, a strong 23% operating margin.

Mission

The Foundation is dedicated to the early diagnosis, treatment and ultimate cure of Primary Immunodeficiency Diseases. The Foundations primary mission is supporting basic and clinical research, physician education, patient support, public awareness, advocacy and newborn screening. The Foundation generates support through contributions from the general public, industry, and government agencies. The Foundation sponsors physician symposia, conferences, educational events for physicians and patients, and awareness programs to reach the public.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2023)

Revenue Breakdown

Contributions & Grants $9,078,111
Program Service Revenue $0
Investment Income $524,338
Other Revenue $0
TOTAL REVENUE $9,602,449

Expense Breakdown

Grants Paid $2,094,727
Salaries & Benefits $1,965,685
Fundraising Expenses $259,118
Program Expenses $6,723,857
Other Expenses $3,299,877
TOTAL EXPENSES $7,360,289

Year-over-Year Comparison

2023 2022 Change
Revenue $9,602,449 $8,819,209 +0.1%
Expenses $7,360,289 $5,875,800 +0.3%
Net Income $2,242,160 $2,943,409 -0.2%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Liquidity & Cash Position

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Governance

Voting Members
41
Independent Members
41
Employees
12
Volunteers
N/A

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
1
$406,346
Total Directors
30
$406,346
Key Employees
0
$0
Highest Compensated
0
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
FREDERICK MODELL President 40.00
Officer Director
$406,346 $0 $406,346
VANESSA TENEMBAUM EXECUTIVE DIRECTOR 40.00
$298,371 $0 $298,371
JESSICA QUINN SCIENTIFIC DIRECTOR 40.00
$176,948 $0 $176,948
ROGER DAVILLA N/A 40.00
$176,371 $0 $176,371
CHRISTOPHER SIMS CHIEF FINANCIAL OFFICER 40.00
$176,179 $0 $176,179
MICHAEL DAVIDSON Director 2.00
Director
$0 $0 $0
WENDY LEVINE Director 2.00
Director
$0 $0 $0
HELEN CHAITMAN ESQ Director 2.00
Director
$0 $0 $0
JENNIFER CHAITMAN DVM Director 2.00
Director
$0 $0 $0
BETTINA EMDEN Director 2.00
Director
$0 $0 $0
FRANN ERIC FRANCIS Director 2.00
Director
$0 $0 $0
ROBBIE ALAN FRANKLINESQ Director 2.00
Director
$0 $0 $0
ALLYSON ALAN GALISHOFF Director 2.00
Director
$0 $0 $0
LYNN MANHEIM Director 2.00
Director
$0 $0 $0
GENE MANHEIM Director 2.00
Director
$0 $0 $0
HASSAN AHMED Director 2.00
Director
$0 $0 $0
FELICE AXELROD Director 2.00
Director
$0 $0 $0
RON SNYDER Director 2.00
Director
$0 $0 $0
FAISAL KHALID OVERSEER 2.00
Director
$0 $0 $0
BRENDA GARY LAVIGNA Director 2.00
Director
$0 $0 $0
LISA STEPHEN LAWRENCE Director 2.00
Director
$0 $0 $0
DEBBI MAX LEBERSFELD Director 2.00
Director
$0 $0 $0
DEBBE LONGO STROUT Director 2.00
Director
$0 $0 $0
JONATHAN MECHANIC ESQ Director 2.00
Director
$0 $0 $0
CAROL JAMES RANDEL Director 2.00
Director
$0 $0 $0
JASON SHUMAN Director 2.00
Director
$0 $0 $0
LISA STEPHEN SHUMAN Director 2.00
Director
$0 $0 $0
LUCIANA MICHAEL SOLOMON Director 2.00
Director
$0 $0 $0
SUSAN BARRY STEIN MD Director 2.00
Director
$0 $0 $0
JODI PULICE Director 2.00
Director
$0 $0 $0
LISA WILLIAM WEXLER Director 2.00
Director
$0 $0 $0
GREG SMITH Director 2.00
Director
$0 $0 $0
RYAN G SMITH Director 2.00
Director
$0 $0 $0
TAYLOR SMITH Director 2.00
Director
$0 $0 $0
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2024 No data No data No data No data
2023 $9,602,449 $7,360,289 $42,921,915 $2,242,160
2022 $8,819,209 $5,875,800 $38,647,183 $2,943,409
2021 $6,146,213 $5,254,820 $36,072,018 $891,393
2021 $3,320,213 $5,254,820 $33,246,018 $-1,934,607
2020 $10,094,863 $4,758,338 $34,942,139 $5,336,525
2019 $9,251,111 $6,494,579 $29,605,614 $2,756,532
2018 $7,432,855 $7,031,074 $25,321,596 $401,781
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