ALS UNITED GREATER NEW YORK INC

EIN: 133616680 501(c)(3)

NEW YORK, NY

Total Revenue
$4,470,387
Total Expenses
$5,067,113
Total Assets
$6,641,980
Net Assets
$5,088,128
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Financial Vulnerability Assessment (Tuckman-Chang)

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Financial Trends

Organization Details

Formation Year
1990
Legal Domicile
NY
Principal Officer
KRISTEN COCOMAN
Phone
2126191400
Tax Period
2024-02-01 to 2025-01-31

ALS UNITED GREATER NEW YORK INC, founded in 1990, is a community nonprofit that reported $4.5M in total revenue in fiscal year 2024. Revenue decreased 8% compared to the prior year. Expenses of $5.1M exceeded revenue, resulting in a 13% operating deficit.

Mission

TO SUPPORT & EMPOWER THE ALS COMMUNITY THROUGH A COLLABORATIVE APPROACH TO FOSTERING BOLD RESEARCH INITIATIVES, ADVANCING NATIONAL AND STATE ADVOCACY, & PROVIDING COMPREHENSIVE CARE TO INDIVIDUALS & FAMILIES AFFECTED BY ALS.

Program Service Accomplishments

Program 1
Expenses: $3,227,984

CARE SERVICES: ALS UNITED GREATER NEW YORK PROVIDES A WIDE RANGE OF SERVICES FOR PEOPLE WITH ALS AND THEIR FAMILIES LIVING IN NEW YORK CITY, LONG ISLAND, LOWER AND MID-HUDSON VALLEY AND NORTHERN AND...

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CARE SERVICES: ALS UNITED GREATER NEW YORK PROVIDES A WIDE RANGE OF SERVICES FOR PEOPLE WITH ALS AND THEIR FAMILIES LIVING IN NEW YORK CITY, LONG ISLAND, LOWER AND MID-HUDSON VALLEY AND NORTHERN AND CENTRAL NEW JERSEY. THE ORGANIZATION SPONSORS TEN MULTIDISCIPLINARY CLINICS IN THE REGION, MAKES LOANS OF MEDICAL EQUIPMENT AND ASSISTIVE COMMUNICATION DEVICES, PROVIDES GRANTS TO PATIENTS TO ALLEVIATE SOME OF THE CONSIDERABLE FINANCIAL BURDEN OF THE DISEASE, HOLDS PATIENT AND CAREGIVER EDUCATIONAL SYMPOSIA AND MONTHLY SUPPORT GROUPS, CONDUCTS HOME VISITS, PROVIDES TRANSPORTATION TO QUARTERLY CLINIC APPOINTMENTS, AND OFFERS SOCIAL WORK AND REFERRAL SERVICES.

Program 2
Expenses: $412,408

RESEARCH: ALS UNITED GREATER NEW YORK HAS FUNDED CLOSE TO $17 MILLION IN ALS-SPECIFIC RESEARCH EFFORTS TO SUPPORT INNOVATIVE AND DIVERSE SCIENTIFIC RESEARCH STUDIES AND CLINICAL TRIALS WORLDWIDE. THE...

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RESEARCH: ALS UNITED GREATER NEW YORK HAS FUNDED CLOSE TO $17 MILLION IN ALS-SPECIFIC RESEARCH EFFORTS TO SUPPORT INNOVATIVE AND DIVERSE SCIENTIFIC RESEARCH STUDIES AND CLINICAL TRIALS WORLDWIDE. THE ORGANIZATION IS PARTICULARLY PROUD TO SUPPORT THE MILTON SAFENOWITZ POST-DOCTORAL FELLOWSHIP PROGRAM, WHICH ENCOURAGES AND FACILITATES PROMISING YOUNG SCIENTISTS TO FOCUS THEIR FUTURE WORK IN THE FIELD OF ALS RESEARCH.

Program 3
Expenses: $361,929

PUBLIC AWARENESS AND EDUCATION: ALS UNITED GREATER NEW YORK WORKS TO PROMOTE AWARENESS TO AFFECTED FAMILIES TO HELP THEM UNDERSTAND ALL FACETS OF THE COMPLEX AND DEVASTATING DISEASE THAT IS ALS, AS...

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PUBLIC AWARENESS AND EDUCATION: ALS UNITED GREATER NEW YORK WORKS TO PROMOTE AWARENESS TO AFFECTED FAMILIES TO HELP THEM UNDERSTAND ALL FACETS OF THE COMPLEX AND DEVASTATING DISEASE THAT IS ALS, AS WELL AS THE WORK OF THE ORGANIZATION AMONG THE GENERAL PUBLIC, HEALTHCARE PROFESSIONALS, AND THE SCIENTIFIC COMMUNITY. THROUGH EXTERNAL RELATIONS, OUR WEBSITE AND SOCIAL MEDIA CHANNELS, THE ORGANIZATION CONTINUALLY RAISES AWARENESS ABOUT ALS AND THE SEARCH FOR A CURE. ON AVERAGE, 63,000 VIEWERS VISIT OUR WEBSITE ANNUALLY TO ACCESS THIS VITAL SOURCE OF INFORMATION FOR THOSE BATTLING THE DISEASE AND LOOKING FOR INFORMATION ABOUT SERVICES AND THE LATEST NEWS ABOUT THE DISEASE. OUR SOCIAL MEDIA PLATFORMS, INCLUDING FACEBOOK, INSTAGRAM, YOUTUBE, X AND LINKEDIN REACH 18,500 FOLLOWERS.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $5,408,121
Program Service Revenue $0
Investment Income $223,878
Other Revenue $-1,161,612
TOTAL REVENUE $4,470,387

Expense Breakdown

Grants Paid $259,685
Salaries & Benefits $2,430,916
Fundraising Expenses $457,910
Program Expenses $4,274,614
Other Expenses $2,376,512
TOTAL EXPENSES $5,067,113

Year-over-Year Comparison

2024 2023 Change
Revenue $4,470,387 $4,847,061 -0.1%
Expenses $5,067,113 $5,179,676 0.0%
Net Income $-596,726 $-332,615 +0.8%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Liquidity & Cash Position

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Governance

Voting Members
18
Independent Members
18
Employees
28
Volunteers
150

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
6
$407,090
Total Directors
18
$0
Key Employees
0
$0
Highest Compensated
4
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
ALLEN POPOWITZ ESQ CHAIRMAN 4.00
Officer Director
$0 $0 $0
LENNARD KATZ VICE CHAIR 4.00
Officer Director
$0 $0 $0
W MARC LANE TREASURER 4.00
Officer Director
$0 $0 $0
NANCY MIRINGOFF SECRETARY 4.00
Officer Director
$0 $0 $0
ERIC BERNIKER DIRECTOR 1.00
Director
$0 $0 $0
LEE BRODSKY DIRECTOR 1.00
Director
$0 $0 $0
ALICE CLAAR DIRECTOR 1.00
Director
$0 $0 $0
KEVIN GLASSMAN MD DIRECTOR 1.00
Director
$0 $0 $0
AMANDA GLUCK DIRECTOR 1.00
Director
$0 $0 $0
DORINE GORDON DIRECTOR 1.00
Director
$0 $0 $0
ALAN LEVINE DIRECTOR 1.00
Director
$0 $0 $0
DAVID LUBARS DIRECTOR 1.00
Director
$0 $0 $0
MATTHEW PERLINE DIRECTOR 1.00
Director
$0 $0 $0
JOSHUA RAND DIRECTOR 1.00
Director
$0 $0 $0
PETER ROSENBERGER DIRECTOR 1.00
Director
$0 $0 $0
WENDY J SCHRIBER ESQ DIRECTOR 1.00
Director
$0 $0 $0
NIRALI SHAH ESQ DIRECTOR 1.00
Director
$0 $0 $0
ROBERT TUCHMAN DIRECTOR 1.00
Director
$0 $0 $0
KRISTEN COCOMAN PRESIDENT & CEO 40.00
Officer
$222,572 $7,126 $229,698
REGINA ACKLEY VICE PRESIDENT & COO 40.00
Officer
$160,391 $17,001 $177,392
JORDANA NEWLER DIR. OF FUNDRAISING 40.00
Highest
$121,501 $15,834 $137,335
VIVIAN BANKS DIR. OF IND. & INST. GIVING 40.00
Highest
$118,762 $15,752 $134,514
DEBRA SCHLOSSBERG CHIEF CARE SVCS OFFICER 32.00
Highest
$116,409 $3,789 $120,198
MICHELLE MCKENZIE CARE SVCS COORDINATOR 40.00
Highest
$105,759 $4,333 $110,092
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2025 $4,470,387 $5,067,113 $6,641,980 $-596,726
2024 $4,847,061 $5,179,676 $6,951,115 $-332,615
2023 $4,837,719 $5,193,328 $7,505,334 $-355,609
2022 $5,803,291 $4,768,654 $7,108,895 $1,034,637
2021 $3,502,489 $3,961,735 $6,074,348 $-459,246
2020 $4,364,755 $5,202,080 $6,275,284 $-837,325
2019 $4,226,325 $5,330,995 $7,150,253 $-1,104,670
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