Moebius Syndrome Foundation

EIN: 133753992 501(c)(3) Philanthropy & Grantmaking

Denver, CO

Total Revenue
$338,157
Total Expenses
$283,083
Total Assets
$1,978,268
Net Assets
$1,970,249
🔒

Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

Sign in with your work email to view Tuckman-Chang indicators

Sign In — Free (10 views/day)

Financial Trends

Organization Details

Formation Year
1994
Legal Domicile
DE
Principal Officer
Rebecca Maher
Phone
8446632487
Tax Period
2024-01-01 to 2024-12-31

Moebius Syndrome Foundation, founded in 1994, is a small nonprofit in the Philanthropy & Grantmaking sector that reported $338K in total revenue in fiscal year 2024. Revenue fell 26% from the prior year — a significant decline worth monitoring. The organization ran a surplus of $55K, a strong 16% operating margin.

Mission

To provide information and support to individuals with Moebius syndrome and their families, promote greater awareness and understanding of Moebius syndrome, and to advocate for scientific research to advance the diagnosis and treatment of Moebius syndrome and its associated conditions

🔒

Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

Sign in to view Trantor Score and financial metrics

Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

Sign In — Free (10 views/day)

Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $275,943
Program Service Revenue $5,761
Investment Income $56,102
Other Revenue $351
TOTAL REVENUE $338,157

Expense Breakdown

Grants Paid $22,400
Salaries & Benefits $134,688
Fundraising Expenses $17,878
Program Expenses $146,312
Other Expenses $125,995
TOTAL EXPENSES $283,083

Year-over-Year Comparison

2024 2023 Change
Revenue $338,157 $458,300 -0.3%
Expenses $283,083 $599,259 -0.5%
Net Income $55,074 $-140,959 -1.4%
Key Indicators
✓ Grants to Organizations ✗ Grants to Individuals ✗ Lobbying ✗ Political Activity ✗ Foreign Activities ✗ Donor Advised Fund ✓ Schedule B Required
🔒

Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

Sign in to view all financial metrics

Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

Sign In

Governance

Voting Members
9
Independent Members
9
Employees
2
Volunteers
5

Governance Policies

✓ Conflict of Interest Policy
✗ Whistleblower Policy
✗ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School
✗ Operated a Hospital
✗ Provided First Class Travel
✗ Reported Conflict of Interest
✗ Reported Asset Diversion
✗ Excess Benefit Transaction
✗ Made Political Expenditures
✗ Engaged in Lobbying
✗ Operated Donor Advised Fund
✗ Maintained Art Collections
✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
6
$90,018
Total Directors
10
$0
Key Employees
0
$0
Highest Compensated
0
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
Austin Halls Board Member 2.00
Director
$0 $0 $0
Vicky McCarrell Board Member 2.00
Director
$0 $0 $0
KiOwana Phillips Board Member 2.00
Director
$0 $0 $0
Kathryn Kraus Board Member 2.00
Director
$0 $0 $0
Bryn Webb MD Board Member 2.00
Director
$0 $0 $0
Rebecca Maher President 10.00
Officer Director
$0 $0 $0
Destiny Bachman Treasurer 10.00
Officer Director
$0 $0 $0
Jon Fisher Secretary 10.00
Officer Director
$0 $0 $0
Steven Maldonado Vice President 2.00
Officer Director
$0 $0 $0
Jacob Licht Past President 10.00
Officer Director
$0 $0 $0
Jennifer Whitman Executive Director 40.00
Officer
$90,018 $0 $90,018
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2024 $338,157 $283,083 $1,978,268 $55,074
2023 $458,300 $599,259 $1,833,572 $-140,959
2022 $358,125 $519,527 $1,898,826 $-161,402
2021 $1,037,936 $183,742 $2,393,833 $854,194
2020 $104,435 $600,241 $1,589,005 $-495,806
2019 $232,434 $321,314 $1,824,347 $-88,880
2018 $331,391 $414,749 $1,775,916 $-83,358
Explore More Nonprofits
→Top 100 Nonprofits in Colorado →Largest U.S. Nonprofits →Best Rated Nonprofits →Most Efficient Nonprofits

Compare Moebius Syndrome Foundation with other nonprofits in Colorado and across the country.

We Value Your Privacy
We use cookies and similar technologies to analyze site traffic and improve your experience. By clicking "Accept All", you consent to our use of cookies for analytics and measurement.