THE BRAIN TUMOR FOUNDATION

EIN: 134009829 501(c)(3) Human Services

NEW YORK, NY

Total Revenue
$195,372
Total Expenses
$377,423
Total Assets
$406,290
Net Assets
$222,983
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Financial Trends

Organization Details

Formation Year
1998
Legal Domicile
NY
Principal Officer
MICHAEL SCHREIBER
Phone
2122652401
Tax Period
2020-01-01 to 2020-12-31

THE BRAIN TUMOR FOUNDATION, founded in 1998, is a small nonprofit in the Human Services sector that reported $195K in total revenue in fiscal year 2020. Revenue fell 65% from the prior year — a significant decline worth monitoring. Expenses of $377K exceeded revenue, resulting in a 93% operating deficit.

Mission

TO FOSTER AND PROMOTE EDUCATION, RESEARCH AND ADVANCES IN THE FIELD OF BRAIN TUMORS AND THE GROWTH AND AVAILABILITY OF QUALITY HEALTH CARE SERVICES.

Program Service Accomplishments

Program 1
Expenses: $130,428

PATIENT SUPPORT & COUNSELING: THE BRAIN TUMOR FOUNDATION (BTF) GUIDES AND SUPPORTS PATIENTS AND FAMILIES AFFECTED BY BRAIN TUMORS. AS PART OF THE EARLY DETECTION CAMPAIGN, THE MOBILE MRI UNIT TRAVELS...

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PATIENT SUPPORT & COUNSELING: THE BRAIN TUMOR FOUNDATION (BTF) GUIDES AND SUPPORTS PATIENTS AND FAMILIES AFFECTED BY BRAIN TUMORS. AS PART OF THE EARLY DETECTION CAMPAIGN, THE MOBILE MRI UNIT TRAVELS TO KEY CITIES AND URBAN SITES THROUGHOUT THE COUNTRY OFFERING FREE BRAIN SCANS. BTF HAS ESTABLISHED RELATIONSHIPS WITH FIXED RADIOLOGY CENTERS OFFERING AFFORDABLE SCANS. WITH THESE SCANS KEY DATA RELATING TO PATIENT DEMOGRAPHICS, MEDICAL AND FAMILY HISTORY, AND ENVIRONMENTAL EXPOSURES ARE COLLECTED WITH IN-PERSON INTERVIEWS. PATIENTS WITH SIGNIFICANT FINDINGS ARE FOLLOWED OVER TIME, ENABLING US TO EVALUATE THE FULL SIGNIFICANCE OF THE BRAIN TUMOR SCREENING PROGRAM. BTF KIDS HELPS SUPPORT PEDIATRIC PATIENTS AND THEIR FAMILIES. THE KIDSAPP, A PROJECT OF BTF KIDS, IS AN INNOVATIVE APPROACH TO HELP ALLEVIATE THE FEARS AND ANXIETIES THAT FILL PEDIATRIC PATIENTS. INCLUDED IN THE APP IS A GUIDE FOR PARENTS. PATIENTS CAN ALSO USE THE APP AS A MEANS OF COMMUNICATING WITH OLDER AND YOUNGER SIBLINGS HELPING TO EXPLAIN THE ISSUES THEY ENCOUNTER. BTF WORKS WITH MAJOR NEURO MEDICAL TEAMS AND CHILD LIFE SPECIALISTS AROUND THE COUNTRY PROVIDING THEM WITH ACCESS TO THE APP. THE APP WILL ALSO BE USED IN A RESEARCH PROJECT FOCUSED ON HOW BEST TO TREAT THE EMOTIONAL "DIS-EASE" OF CHILDREN SUFFERING FROM BRAIN TUMORS.

Program 2
Expenses: $136,290

EDUCATION, OUTREACH AND MEDICAL REFERRALS: THE BRAIN TUMOR FOUNDATION (BTF) EDUCATES MEDICAL PROFESSIONALS AND THE PUBLIC ABOUT THE NEED FOR THE EARLY DETECTION OF BRAIN TUMORS WHILE CONTINUING TO...

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EDUCATION, OUTREACH AND MEDICAL REFERRALS: THE BRAIN TUMOR FOUNDATION (BTF) EDUCATES MEDICAL PROFESSIONALS AND THE PUBLIC ABOUT THE NEED FOR THE EARLY DETECTION OF BRAIN TUMORS WHILE CONTINUING TO OFFER SUPPORT GROUPS, MEDICAL REFERRALS, AND ORGANIZING INFORMATIONAL EVENTS. WITH NATIONWIDE PARTICIPATION AND SUPPORT, BTF'S ROAD TO EARLY DETECTION CAMPAIGN - A FIRST-EVER, GROUND-BREAKING PROJECT - IS AN OFFICIAL RESEARCH STUDY IN ADHERENCE WITH IRB MANDATES. BTF COLLABORATES WITH COLUMBIA UNIVERSITY MEDICAL CENTER, NEW YORK-PRESBYTERIAN HOSPITAL AND THE MAILMAN SCHOOL FOR PUBLIC HEALTH. THE RESEARCH WILL HELP US DETERMINE THE PREVALENCE OF MALIGNANT/NON-MALIGNANT TUMORS IN AN ASYMPTOMATIC POPULATION OF ADULTS AND DESCRIBE THESE FINDINGS AS A FUNCTION OF AGE, RACE/ETHNICITY, GENDER AND MORE. IT WILL ALSO DETERMINE THE PREVALENCE OF INCIDENTAL FINDINGS, INCLUDING OTHER CENTRAL NERVOUS SYSTEM LESIONS (MENINGIOMA, ANEURYSM, AND OTHER TUMORS), VASCULAR AND STRUCTURAL ABNORMALITIES, AND EXTRA-CRANIAL FINDINGS DETECTABLE BY MRI. THE RESEARCH TEAM WILL FOLLOW PATIENTS WITH ABNORMAL AND ACUTE FINDINGS FOR OUTCOMES.

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2020)

Revenue Breakdown

Contributions & Grants $195,359
Program Service Revenue $0
Investment Income $13
Other Revenue $0
TOTAL REVENUE $195,372

Expense Breakdown

Grants Paid $0
Salaries & Benefits $0
Fundraising Expenses $73,152
Program Expenses $266,718
Other Expenses $377,423
TOTAL EXPENSES $377,423

Year-over-Year Comparison

2020 2019 Change
Revenue $195,372 $558,267 -0.7%
Expenses $377,423 $522,390 -0.3%
Net Income $-182,051 $35,877 -6.1%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Governance

Voting Members
17
Independent Members
17
Employees
N/A
Volunteers
27

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
5
$0
Total Directors
17
$0
Key Employees
0
$0
Highest Compensated
0
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
PATRICK KELLY MD FOUNDER 0.25
Director
$0 $0 $0
MICHAEL SCHREIBER CHAIRMAN 2.00
Officer Director
$0 $0 $0
MICHAEL SCHULDER MD PRESIDENT 2.00
Officer Director
$0 $0 $0
PHILIP E STIEG PHD MD PRESIDENT-EM 2.00
Officer Director
$0 $0 $0
BARBARA LAVALLEE SEC./FINANCE 1.00
Officer Director
$0 $0 $0
THOMAS A DONOVAN ASST.SEC/FIN 1.00
Officer Director
$0 $0 $0
MICHAEL AMO BOARD MEMBER 0.25
Director
$0 $0 $0
RHONDA BARAD BOARD MEMBER 0.25
Director
$0 $0 $0
MARY JO BROWN BOARD MEMBER 0.25
Director
$0 $0 $0
JEFFREY GREENFIELD MD PHD BOARD MEMBER 0.25
Director
$0 $0 $0
JOHN G GOLFINOS MD AB BOARD MEMBER 0.25
Director
$0 $0 $0
JODI ROTH BOARD MEMBER 0.25
Director
$0 $0 $0
ANTHONY SCARAMUCCI BOARD MEMBER 0.25
Director
$0 $0 $0
SANDY MARKOWITZ BOARD MEMBER 0.25
Director
$0 $0 $0
THEODORE SCHWARTZ BOARD MEMBER 0.25
Director
$0 $0 $0
MARK M SOUWEIDANE MD BOARD MEMBER 0.25
Director
$0 $0 $0
JAIME HERSH BOARD MEMBER 0.25
Director
$0 $0 $0
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2024 No data No data No data No data
2020 $195,372 $377,423 $406,290 $-182,051
2016 $687,912 $453,187 $448,214 $234,725
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