PROJECT ALS INC

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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year

1998

Legal Domicile

Principal Officer

MEREDITH ESTESS HULBERT

Phone

2124207382

Tax Period

2024-08-01 to 2025-07-31

PROJECT ALS INC, founded in 1998, is a community nonprofit in the Diseases & Disorders sector that reported $3.3M in total revenue in fiscal year 2024. Revenue grew 11% year-over-year, indicating healthy expansion. Expenses of $2.9M left a modest 12% surplus.

Mission

TO RECRUIT THE WORLD'S BEST RESEARCH SCIENTISTS AND CLINICIANS TO WORK TOGETHER TOWARD AN UNDERSTANDING OF AND THE FIRST EFFECTIVE TREATMENTS FOR ALS (AMYOTROPHIC LATERAL SCLEROSIS) ALSO KNOWN AS LOU GEHRIG'S DISEASE.

Program Service Accomplishments

Program 1

Expenses: $1,989,625

GRANTS AND RESEARCH - FUNDING FOR SCIENTIFIC MEDICAL RESEARCH TO FIND TREATMENTS AND ULTIMATELY A CURE FOR AMYOTROPHIC LATERAL SCLEROSIS (ALS), AN ULTIMATELY FATAL MOTOR NEURON DISEASE, BY PROMOTING COLLABORATION AND INFORMATION SHARING AMONG RESEARCHERS FOR ALL RELATED DISEASES, SUCH AS PARKINSON'S AND MULTIPLE SCLEROSIS. EFFECTIVE ALS DRUGS DEVELOPMENT FOR FDA SUBMISSION FOR CLINICAL DRUG TRIAL APPROVAL.

Program 2

Expenses: $395,424

EDUCATION - RAISE AWARENESS OF AND PROVIDE INFORMATION ABOUT AMYOTROPHIC LATERAL SCLEROSIS (ALS) THROUGH SPEAKING ENGAGEMENTS, CONFERNCES, TOWN HALLS NEWSLETTER AND WEBSITE.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $3,323,197

Program Service Revenue $0

Investment Income $37,810

Other Revenue $-62,202

TOTAL REVENUE $3,298,805

Expense Breakdown

Grants Paid $1,143,696

Salaries & Benefits $1,106,753

Fundraising Expenses $208,917

Program Expenses $2,385,049

Other Expenses $668,670

TOTAL EXPENSES $2,919,119

Year-over-Year Comparison

	2024	2023	Change
Revenue	$3,298,805	$2,979,518	+0.1%
Expenses	$2,919,119	$3,412,851	-0.1%
Net Income	$379,686	$-433,333	-1.9%

Key Indicators

✓ Grants to Organizations ✗ Grants to Individuals ✗ Lobbying ✗ Political Activity ✗ Foreign Activities ✗ Donor Advised Fund ✓ Schedule B Required

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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

Governance

Voting Members

Independent Members

Employees

Volunteers

Governance Policies

✓ Conflict of Interest Policy

✓ Whistleblower Policy

✓ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School

✗ Operated a Hospital

✗ Provided First Class Travel

⚠ Reported Conflict of Interest

✗ Reported Asset Diversion

✗ Excess Benefit Transaction

✗ Made Political Expenditures

✗ Engaged in Lobbying

✗ Operated Donor Advised Fund

✗ Maintained Art Collections

✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers

$744,179

Total Directors

$518,595

Key Employees

Highest Compensated

reported

Name	Title	Hours/Week	Role	Reportable Comp	Other Comp	Total
MEREDITH ESTESS HULBERT	PRESIDENT	50.00	Officer Director	$234,000	$20,850	$254,850
VALERIE ESTESS	VICE PRESIDENT	50.00	Officer Director	$234,000	$29,745	$263,745
ROBERT S KAPLAN	CHAIR	5.00	Officer Director	$0	$0	$0
STACI KIRCHHOFF	CHAIR	0.25	Officer Director	$0	$0	$0
DEBBIE WILPON	CHAIR	10.00	Officer Director	$0	$0	$0
ROB BURNETT	DIRECTOR	0.25	Director	$0	$0	$0
MICHAEL BERMAN	DIRECTOR	0.25	Director	$0	$0	$0
DARCI CARLTON	DIRECTOR	0.25	Director	$0	$0	$0
CHAD CASCARILLA	DIRECTOR	0.25	Director	$0	$0	$0
F JONATHAN DRACOS	DIRECTOR	0.25	Director	$0	$0	$0
MARCIE FLECK	DIRECTOR	0.25	Director	$0	$0	$0
ARTHUR FRASIER	DIRECTOR	0.25	Director	$0	$0	$0
STACEY GRIFFITH	DIRECTOR	0.25	Director	$0	$0	$0
SIMON HALLS	DIRECTOR	0.25	Director	$0	$0	$0
PETER J HULBERT	DIRECTOR	0.25	Director	$0	$0	$0
DAVID L JAFFE	DIRECTOR	0.25	Director	$0	$0	$0
NANCY JARECKI	DIRECTOR	0.25	Director	$0	$0	$0
DANIEL KELLISON	DIRECTOR	0.25	Director	$0	$0	$0
SUE LEIBMAN	DIRECTOR	0.25	Director	$0	$0	$0
MARTHA MCCULLY	DIRECTOR	0.25	Director	$0	$0	$0
JACK MERRILL	DIRECTOR	0.25	Director	$0	$0	$0
ROB MORROW	DIRECTOR	0.25	Director	$0	$0	$0
LORI HIRSHLIEFER SILLS	DIRECTOR	0.25	Director	$0	$0	$0
TARA SPIEGEL	DIRECTOR	0.25	Director	$0	$0	$0
BRUCE SPOHLER	DIRECTOR	0.25	Director	$0	$0	$0
LAWRENCE TARICA	DIRECTOR	0.25	Director	$0	$0	$0
CHRISTINE TAYLOR	DIRECTOR	0.25	Director	$0	$0	$0
DEBRA WASSERMAN	DIRECTOR	0.25	Director	$0	$0	$0
BONNIE VERBITSKY	DIRECTOR	0.25	Director	$0	$0	$0
MARGARET SHANAHAN	EXECUTIVE DIRECTOR	40.00	Officer	$111,200	$0	$111,200
GAIL CARSON	CONTROLLER (CFO)	40.00	Officer	$108,100	$6,284	$114,384

Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year	Revenue	Expenses	Assets	Net Income
2025	$3,298,805	$2,919,119	$1,467,282	$379,686
2024	$2,979,518	$3,412,851	$1,748,266	$-433,333
2023	$3,776,913	$4,483,713	$1,661,605	$-706,800
2022	$3,596,233	$3,498,948	$1,177,668	$97,285
2021	$2,611,375	$3,172,033	$1,558,325	$-560,658
2020	$4,308,671	$3,808,853	$2,579,381	$499,818
2020	$4,308,751	$3,808,849	$2,583,051	$499,902
2019	$3,840,925	$4,609,038	$2,000,729	$-768,113
2018	$4,107,224	$4,180,948	$3,858,975	$-73,724