FAMILIES AND FRIENDS SUPPORTING CYSTIC FIBROSIS CARE

EIN: 134166186 501(c)(3) Diseases & Disorders

NEW YORK, NY

Total Revenue
$194,150
Total Expenses
$327,957
Total Assets
$1,947,402
Net Assets
$1,947,402
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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year
2001
Legal Domicile
NY
Principal Officer
GWEN ENGELHARD
Phone
2127641234
Tax Period
2024-04-01 to 2025-03-31

FAMILIES AND FRIENDS SUPPORTING CYSTIC FIBROSIS CARE, founded in 2001, is a small nonprofit in the Diseases & Disorders sector that reported $194K in total revenue in fiscal year 2024. Revenue fell 61% from the prior year — a significant decline worth monitoring. Expenses of $328K exceeded revenue, resulting in a 69% operating deficit.

Mission

ENHANCE THE QUALITY OF LIFE OF CYSTIC FIBROSIS PATIENTS.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $127,517
Program Service Revenue $0
Investment Income $64,169
Other Revenue $2,464
TOTAL REVENUE $194,150

Expense Breakdown

Grants Paid $250,000
Salaries & Benefits $0
Fundraising Expenses $0
Program Expenses $250,000
Other Expenses $77,957
TOTAL EXPENSES $327,957

Year-over-Year Comparison

2024 2023 Change
Revenue $194,150 $497,707 -0.6%
Expenses $327,957 $354,917 -0.1%
Net Income $-133,807 $142,790 -1.9%
Key Indicators
✓ Grants to Organizations ✗ Grants to Individuals ✗ Lobbying ✗ Political Activity ✗ Foreign Activities ✗ Donor Advised Fund ✓ Schedule B Required
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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

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Governance

Voting Members
15
Independent Members
15
Employees
N/A
Volunteers
N/A

Governance Policies

✗ Conflict of Interest Policy
✗ Whistleblower Policy
✗ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School
✗ Operated a Hospital
✗ Provided First Class Travel
✗ Reported Conflict of Interest
✗ Reported Asset Diversion
✗ Excess Benefit Transaction
✗ Made Political Expenditures
✗ Engaged in Lobbying
✗ Operated Donor Advised Fund
✗ Maintained Art Collections
✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
5
$0
Total Directors
15
$0
Key Employees
0
$0
Highest Compensated
0
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
GWEN M ENGELHARD DDS PRESIDENT 0.00
Officer Director
$0 $0 $0
JILL DALTON CHIEF FINANCIAL OFFICER 0.00
Officer Director
$0 $0 $0
JOHN Z JACOBY PRESIDENT EMERITUS/SECRETA 0.00
Officer Director
$0 $0 $0
MARNEE MCCARTHY ASSISTANT SECRETARY 0.00
Officer Director
$0 $0 $0
KAITLYN CHENEY DIRECTOR 0.00
Director
$0 $0 $0
ROBERT M HUTCHINSON DIRECTOR 0.00
Director
$0 $0 $0
SEAN MCCOOE DIRECTOR 0.00
Director
$0 $0 $0
JUDY NANCE DIRECTOR 0.00
Director
$0 $0 $0
LUMI CASTLEN DIRECTOR 0.00
Director
$0 $0 $0
MELISSA ARGENIO DIRECTOR 0.00
Director
$0 $0 $0
DAVID SHEPHERD DIRECTOR 0.00
Director
$0 $0 $0
THOMAS G LEAHY VICE PRESIDENT 0.00
Officer Director
$0 $0 $0
ROSE MARIE MANGER DIRECTOR 0.00
Director
$0 $0 $0
MELISSA SMITH DIRECTOR 0.00
Director
$0 $0 $0
LISA TROYANO-ASCOLESE DIRECTOR 0.00
Director
$0 $0 $0
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2025 $194,150 $327,957 $1,947,402 $-133,807
2024 $497,707 $354,917 $2,062,361 $142,790
2023 $817,705 $755,393 $1,901,654 $62,312
2022 $487,864 $76,785 $2,005,924 $411,079
2020 $396,226 $257,294 $1,556,427 $138,932
2019 $470,524 $391,721 $1,329,478 $78,803
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