Myasthenia Gravis Foundation of America Inc

EIN: 135672224 501(c)(3) Medical Research

Westborough, MA

Total Revenue
$7,559,812
Total Expenses
$7,077,785
Total Assets
$15,271,954
Net Assets
$13,081,885
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Financial Trends

Organization Details

Formation Year
1952
Legal Domicile
NY
Principal Officer
Justin Stachtiaris
Phone
9493073330
Tax Period
2025-01-01 to 2025-12-31

Myasthenia Gravis Foundation of America Inc, founded in 1952, is a community nonprofit in the Medical Research sector that reported $7.6M in total revenue in fiscal year 2025. Revenue surged 33% from the prior year, signaling strong growth momentum. Expenses of $7.1M left a modest 6% surplus.

Mission

Committed to finding a cure for myasthenia gravis and closely related disorders, improving treatment options, and providing information and support to people with myasthenia gravis through research, education, community programs and advocacy.

Program Service Accomplishments

Program 1
Expenses: $5,506,368 Revenue: $603,324

Evaluating, Funding, and Disseminating Critical Research: MGFA supports high-impact myasthenia gravis research at leading universities and medical institutions, often collaborating with strategic...

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Evaluating, Funding, and Disseminating Critical Research: MGFA supports high-impact myasthenia gravis research at leading universities and medical institutions, often collaborating with strategic partners such as the American Brain Foundation and MGNet. Through these partnerships, it helps attract new researchers to the field by funding fellowships, pilot grants, and specialized research projects.The organization also maintains the only global MG patient registry, which has grown to nearly 3,500 participants, providing valuable data to advance research. MGFA hosts an annual scientific session in partnership with AANEM, drawing more than 250 attendees, and organizes an International Conference every three years that brings together leading MG researchers worldwide, with attendance reaching around 660 participants.In addition, MGFA keeps a broad audience of over 40,000 constituents informed about research initiatives and progress, ensuring the community stays connected to the latest developments in MG science.

Program 2

Awareness and Advocacy: MGFA offers a wide range of free educational brochures, available in multiple languages, covering topics important to individuals living with myasthenia gravis, and makes them...

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Awareness and Advocacy: MGFA offers a wide range of free educational brochures, available in multiple languages, covering topics important to individuals living with myasthenia gravis, and makes them accessible to both patients and the general public. It also provides a professional manual and other key educational resources tailored for healthcare providers.In addition, MGFA leads an annual awareness campaign each June for MG Awareness Month, engaging its network of support groups and equipping individuals with toolkits, press materials, posters, and social media resources to help raise awareness of myasthenia gravis within their communities. MGFA also hosted a Patient Advocacy Organization Summit that brought together 44 representatives from 17 countries, highlighting its global commitment to collaboration and advancing support for the MG community.

Program 3

Information, Education and Support: The Myasthenia Gravis Foundation of America (MGFA) delivers broad support for people living with myasthenia gravis and their caregivers through education...

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Information, Education and Support: The Myasthenia Gravis Foundation of America (MGFA) delivers broad support for people living with myasthenia gravis and their caregivers through education, community programs, and direct services. It provides accessible information, referrals, and structured support through a nationwide network of about 43 support groups, its Partners in MG Care program, and other affiliated networks. Its website serves as a central, trusted hub for up-to-date educational content, news, and disease management resources.MGFA organizes a wide range of interactive learning opportunities, including nearly 20 wellness and research webinars and 14 Community Health Fairs across the U.S. and Canada. These events allow patients and caregivers to connect with medical experts, learn about the latest research and treatments, and engage with industry leaders. The organization's annual National Patient Conference is a key gathering for the MG community, featuring research updates, patient experiences, and in-depth educational sessions designed to help individuals better manage their condition.Beyond education, MGFA fosters community engagement and awareness through platforms like Facebook and provides personalized support via its Patient Helpline, where licensed counselors assist individuals navigating the challenges of MG. It also convenes an annual Stakeholder Roundtable that brings together patients, healthcare professionals, and industry representatives to identify and address critical unmet needs. One major outcome of this collaboration is the Myasthenia Gravis Lexicon, a tool designed to improve communication between patients and healthcare providers.In addition to these ongoing efforts, MGFA also develops targeted support initiatives, such as a food insecurity program which was piloted this year that provided assistance to families during the holiday season, reflecting its broader commitment to addressing both medical and quality-of-life challenges faced by the MG community.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2025)

Revenue Breakdown

Contributions & Grants $6,346,619
Program Service Revenue $585,239
Investment Income $502,584
Other Revenue $125,370
TOTAL REVENUE $7,559,812

Expense Breakdown

Grants Paid $849,999
Salaries & Benefits $2,197,998
Fundraising Expenses $596,247
Program Expenses $5,506,368
Other Expenses $4,029,788
TOTAL EXPENSES $7,077,785

Year-over-Year Comparison

2025 2024 Change
Revenue $7,559,812 $5,670,792 +0.3%
Expenses $7,077,785 $5,078,413 +0.4%
Net Income $482,027 $592,379 -0.2%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Governance

Voting Members
15
Independent Members
12
Employees
18
Volunteers
500

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
5
$540,872
Total Directors
21
$0
Key Employees
1
$178,314
Highest Compensated
4
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
Robert Thomas Chair 8.00
Officer Director
$0 $0 $0
Adrejia Boutte Secretary 8.00
Officer Director
$0 $0 $0
Ani Maitra Director 4.00
Director
$0 $0 $0
Justin Stachtiaris Treasurer and Vice Chair 8.00
Officer Director
$0 $0 $0
Callum Schjerning Director 4.00
Director
$0 $0 $0
Clyde Hosein Director 4.00
Director
$0 $0 $0
Erin Harrigan Director (beg 10/25) 4.00
Director
$0 $0 $0
Kelly Gwathmey MD Director 4.00
Director
$0 $0 $0
Kevin O'Connor MD Director 4.00
Director
$0 $0 $0
Kyle Sell Director 4.00
Director
$0 $0 $0
Paul Strumph MD Director 4.00
Director
$0 $0 $0
Richard J Nowak MD Director 4.00
Director
$0 $0 $0
Todd Fowler Director (beg 12/25) 4.00
Director
$0 $0 $0
Wes Caudle Director (beg 12/25) 4.00
Director
$0 $0 $0
Mark Willig Director (beg 12/25) 4.00
Director
$0 $0 $0
Esther Land Director (non-voting) 0.25
Director
$0 $0 $0
Marcia Lorimer Director (non-voting) 0.25
Director
$0 $0 $0
Mark Kalish Director (non-voting) 0.25
Director
$0 $0 $0
Sam Schuloff Director (non-voting) 0.25
Director
$0 $0 $0
Susan Klinger Director (non-voting) 0.25
Director
$0 $0 $0
Brian Gladden Director (non-voting) 0.25
Director
$0 $0 $0
Samantha Masterson Chief Executive Officer 40.00
Officer
$330,105 $6,798 $336,903
Craig Stenger Chief Operating Officer 40.00
Officer
$193,297 $10,672 $203,969
Michael Antonellis Vice President, Global Marketing and Communication 40.00
Key Emp
$172,849 $5,465 $178,314
Danielle Kerkovich Vice President, Global Research 40.00
Highest
$128,742 $50 $128,792
Daryl Lee National Director, Finance 40.00
Highest
$123,544 $15,154 $138,698
Genevieve Mvalo National Director, Programs 40.00
Highest
$105,037 $10,070 $115,107
Katharine Stober National Director, Academi 40.00
Highest
$100,825 $3,425 $104,250
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2025 $7,559,812 $7,077,785 $15,271,954 $482,027
2024 $5,670,792 $5,078,413 $13,552,735 $592,379
2023 $3,555,325 $3,580,103 $12,011,651 $-24,778
2022 $4,388,529 $3,790,735 $11,363,951 $597,794
2021 $3,840,681 $3,008,153 $12,076,757 $832,528
2020 $3,577,214 $2,477,510 $10,606,667 $1,099,704
2019 $2,579,572 $2,266,013 $9,512,374 $313,559
2018 $2,585,457 $1,955,857 $8,146,592 $629,600
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