DYSAUTONOMIA FOUNDATION INC DBA FAMILIAL DYSAUTONOMIA FOUNDATION (EIN 136145280) - Form 990 Financial Analysis & Trantor Score

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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year

1954

Legal Domicile

Principal Officer

ALLAN COHEN

Phone

2122791066

Tax Period

2024-01-01 to 2024-12-31

DYSAUTONOMIA FOUNDATION INC DBA FAMILIAL DYSAUTONOMIA FOUNDATION, founded in 1954, is a community nonprofit in the Diseases & Disorders sector that reported $1.6M in total revenue in fiscal year 2024. Revenue surged 28% from the prior year, signaling strong growth momentum. Expenses of $2.0M exceeded revenue, resulting in a 30% operating deficit.

Mission

THE DYSAUTONOMIA FOUNDATION SUPPORTS AND OPERATES PROGRAMS FOCUSED ON THE MEDICAL CARE, RESEARCH, SOCIAL SERVICES, AND PUBLIC EDUCATION FOR THE BENEFIT OF PEOPLE AFFECTED BY OR AT RISK FOR FAMILIAL DYSAUTONOMIA FD.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $730,492

Program Service Revenue $0

Investment Income $53,590

Other Revenue $774,022

TOTAL REVENUE $1,558,104

Expense Breakdown

Grants Paid $1,246,894

Salaries & Benefits $484,229

Fundraising Expenses $74,502

Program Expenses $1,658,155

Other Expenses $298,192

TOTAL EXPENSES $2,029,315

Year-over-Year Comparison

	2024	2023	Change
Revenue	$1,558,104	$1,215,749	+0.3%
Expenses	$2,029,315	$1,940,535	+0.0%
Net Income	$-471,211	$-724,786	-0.3%

Key Indicators

✓ Grants to Organizations ✗ Grants to Individuals ✗ Lobbying ✗ Political Activity ✗ Foreign Activities ✗ Donor Advised Fund ✓ Schedule B Required

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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

Governance

Voting Members

Independent Members

Employees

Volunteers

N/A

Governance Policies

✗ Conflict of Interest Policy

✗ Whistleblower Policy

✗ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School

✗ Operated a Hospital

✗ Provided First Class Travel

✗ Reported Conflict of Interest

✗ Reported Asset Diversion

✗ Excess Benefit Transaction

✗ Made Political Expenditures

✗ Engaged in Lobbying

✗ Operated Donor Advised Fund

✗ Maintained Art Collections

✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers

$302,431

Total Directors

Key Employees

Highest Compensated

reported

Name	Title	Hours/Week	Role	Reportable Comp	Other Comp	Total
LANIE ETKIND	Executive Dir.	40.00	Officer	$266,500	$35,931	$302,431
FAYE GINSBURG	President	5.00	Officer Director	$0	$0	$0
ALLAN COHEN	Treasurer	1.00	Officer Director	$0	$0	$0
EDWARD BARANOFF	Vice President	1.00	Officer Director	$0	$0	$0
LAURENT LANDAU	Vice President	1.00	Officer Director	$0	$0	$0
JEFFREY GOLDBERGER	Vice President	1.00	Officer Director	$0	$0	$0
STEVEN KIETZ	Vice President	1.00	Officer Director	$0	$0	$0
LISA NEWMAN	Vice President	1.00	Officer Director	$0	$0	$0
PAUL B WEXLER	Vice President	1.00	Officer Director	$0	$0	$0
STEVEN S FASS	Secretary	1.00	Officer Director	$0	$0	$0
JENNIFER SONENSHEIN	Director	1.00	Director	$0	$0	$0
GERALD ADLER	Director	1.00	Director	$0	$0	$0
GREGG MEYERS	Director	0.00	Director	$0	$0	$0
DANIEL LANDAU	Director	0.00	Director	$0	$0	$0
BRIAN STILLMAN	Director	0.00	Director	$0	$0	$0
REBECCA SERNOVITZ	Director	0.00	Director	$0	$0	$0

Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year	Revenue	Expenses	Assets	Net Income
2024	$1,558,104	$2,029,315	$1,097,266	$-471,211
2023	$1,215,749	$1,940,535	$1,503,412	$-724,786
2022	$1,577,517	$1,830,056	$2,168,499	$-252,539
2021	$2,387,593	$1,850,796	$2,301,553	$536,797
2020	$1,813,432	$1,826,476	$1,809,411	$-13,044
2019	$1,424,379	$1,878,693	$1,860,719	$-454,314
2018	$1,984,961	$1,760,177	$2,229,633	$224,784

DYSAUTONOMIA FOUNDATION INC DBA FAMILIAL DYSAUTONOMIA FOUNDATION