LUPUS AND ALLIED DISEASES ASSOCIATION INC

EIN: 161083229 501(c)(3)

Verona, NY

Total Revenue
$987,432
Total Expenses
$740,149
Total Assets
$2,825,249
Net Assets
$2,825,249
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Financial Trends

Organization Details

Formation Year
1978
Legal Domicile
NY
Principal Officer
Kathleen A Arntsen
Phone
3158294272
Tax Period
2024-10-01 to 2025-09-30

LUPUS AND ALLIED DISEASES ASSOCIATION INC, founded in 1978, is a small nonprofit that reported $987K in total revenue in fiscal year 2024. Revenue decreased 8% compared to the prior year. The organization ran a surplus of $247K, a strong 25% operating margin.

Mission

The Lupus and Allied Diseases Association's mission is to advocate for those affected by lupus and allied diseases through public awareness, education and research program initiatives to improve quality of life.

Program Service Accomplishments

Program 1
Expenses: $539,724 Revenue: $0

1. The organization supported lupus research to improve methods of diagnosis and treatment by funding a $150,000 grant to the the Lupus Research Alliance to support SLE Cognitive Impairment...

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1. The organization supported lupus research to improve methods of diagnosis and treatment by funding a $150,000 grant to the the Lupus Research Alliance to support SLE Cognitive Impairment Differentiation and Imaging Lupus Nephritis Biopsies Prognosis Projects. 2. The organization supported pediatric lupus research to study Advancing Molecular Profiling and Understanding Adverse Events Projects in the pediatric population by funding a $89,424 grant to the Childhood Arthritis and Rheumatology Research Alliance. 3. The organization also supported $25,000 to support Does Air Pollution Influence the Baseline Characteristics of Pediatric SLE Project to improve the quality of life for the pediatric population with lupus at the Lupus Foundation of America. 4. The organization funded the Marc R. Chevrier, MD, PhD, FACR, Lupus Research Memorial Fund at the Rheumatology Research Foundation by supporting a $25,300 preceptorship grant and a separate $50,000 grant to support Innovative Lupus Research. 5. The organization supported lupus research by funding a $200,000 grant to the Masonic Medical Research Institute to provide $50,000 to support a study on Gain-of-function mutations in SHP2 enhance inflammatory macrophage activation in SLE, $50,000 for Cell Activation in Venous Thromboembolism in Female Murine SLE, $50,000 for pathophysiological role of IRF2BP2 in SLE, and $50,000 for Identification of Novel Genes in Lupus Nephritis Development.

Program 2
Expenses: $148,292 Revenue: $0

The organization provided public education and advocated for those impacted by lupus and autoimmune diseases in various states and federally through education meetings, briefings, seminars, forums...

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The organization provided public education and advocated for those impacted by lupus and autoimmune diseases in various states and federally through education meetings, briefings, seminars, forums, public testimony, and written comments. The organization also distributed informational materials, newsletters, and issue briefs; developed poster presentations; and represented the lupus and autoimmune patient perspective at education and advocacy initiatives to improve access to medical care and treatments and advance biomedical research to improve patient quality of life. The organization also provided a $25,000 education grant to the Masonic Medical Research Institute to support their general education program and Summer Fellows education program.

Program 3
Expenses: $48,767 Revenue: $0

The organization promoted disease awareness by disseminating information at virtual and in person health and wellness events; participating in media interviews, press releases, speaking engagements...

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The organization promoted disease awareness by disseminating information at virtual and in person health and wellness events; participating in media interviews, press releases, speaking engagements and press conferences; posting information and resources to websites and through social media, blogs, op-eds, videos, and e-mails; and hosting informational booths in exhibit halls to improve disease awareness to the general public, medical professional community, public officials, the media, researchers, the healthcare industry, and people with lupus and allied diseases and their loved ones.

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $893,615
Program Service Revenue $0
Investment Income $93,817
Other Revenue $0
TOTAL REVENUE $987,432

Expense Breakdown

Grants Paid $564,724
Salaries & Benefits $0
Fundraising Expenses $670
Program Expenses $736,783
Other Expenses $175,425
TOTAL EXPENSES $740,149

Year-over-Year Comparison

2024 2023 Change
Revenue $987,432 $1,076,141 -0.1%
Expenses $740,149 $744,720 0.0%
Net Income $247,283 $331,421 -0.3%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Governance

Voting Members
10
Independent Members
10
Employees
N/A
Volunteers
108

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
5
$0
Total Directors
10
$0
Key Employees
0
$0
Highest Compensated
0
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
Kathleen A Arntsen President and CEO 25
Officer Director
$0 $0 $0
Lori A Vogel Treasurer 15
Officer Director
$0 $0 $0
David L Arntsen Secretary 12
Officer Director
$0 $0 $0
Sandra M Frear 1st Vice President 8
Officer Director
$0 $0 $0
Anne M Zablotowicz 2nd Vice President 14
Officer Director
$0 $0 $0
Jane M Porter Director 8
Director
$0 $0 $0
Jacqueline L Taylor Director 4
Director
$0 $0 $0
Dina Thachet Director 8
Director
$0 $0 $0
Meghan P Valadez Director 4
Director
$0 $0 $0
Brian J Vogel Director 4
Director
$0 $0 $0
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2025 $987,432 $740,149 $2,825,249 $247,283
2024 $1,076,141 $744,720 $2,577,966 $331,421
2023 $1,009,530 $707,359 $2,246,545 $302,171
2022 $1,081,866 $540,739 $1,944,374 $541,127
2021 $709,022 $327,832 $1,403,247 $381,190
2020 $640,821 $315,807 $1,022,057 $325,014
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