WORLD FEDERATION OF HEMOPHILIA USA

EIN: 161513923 501(c)(3) Diseases & Disorders

ALBANY, NY

Total Revenue
$1,095,526,264
Total Expenses
$1,154,898,723
Total Assets
$377,644,851
Net Assets
$377,299,575
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Organization Details

Formation Year
1996
Legal Domicile
NY
Principal Officer
Alain Baumann
Phone
8774177944
Tax Period
2024-01-01 to 2024-12-31

WORLD FEDERATION OF HEMOPHILIA USA, founded in 1996, is a large national nonprofit in the Diseases & Disorders sector that reported $1.1B in total revenue in fiscal year 2024.

Mission

The specific purpose of WFH USA is to advance the global mission of the World Federation of Hemophilia WFH within the United States to improve and sustain care for people with inherited bleeding disorders around the world by developing resources and building awareness within the US for the global vision of Treatment for All.

Program Service Accomplishments

Program 1
Expenses: $1,153,880,637 Revenue: $1,094,378,239

The WFH Humanitarian Aid program improves the lack of access to care and treatment by providing support to national member organizations hemophilia treatment centres and healthcare practitioners in...

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The WFH Humanitarian Aid program improves the lack of access to care and treatment by providing support to national member organizations hemophilia treatment centres and healthcare practitioners in emerging countries. This support comes in the form of education training and donated factor and non-factor replacement therapy.The reported $59.37 million deficit is primarily attributable to fluctuations in the value of donated pharmaceutical products which are recorded as in-kind revenue and expense. These are non-cash transactions impacting the total change in net assets without reflecting a change in operating cash flow or program delivery. WFH USA provides tens of thousands of people with hemophilia reliable access to care enabling prophylaxis and elective surgeries in over seventy countries worldwide. Per the Collaboration Agreement with the WFH WFH USA is exclusively responsible for soliciting in-kind contributions of pharmaceutical products and monetary donations for the program. WFH USA periodically grants the received contributions to the WFH as needed to carry out the program.

Program 2
Expenses: $647,000 Revenue: $647,000

The WFH Training and Education program provides the global bleeding disorders community with the information and tools required to improve access to diagnosis and ensure reliable access to safe...

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The WFH Training and Education program provides the global bleeding disorders community with the information and tools required to improve access to diagnosis and ensure reliable access to safe treatment and care. Training and education may be delivered through healthcare development programs in-person and virtual workshops and educational events and the development and distribution of educational resources that are available in printed and electronic format. In accordance with the Collaboration agreement between WFH USA and the WFH WFH USA periodically grants contributions received to support the WFH Training and Education programs to the WFH as needed to carry out the WFHs responsibilities with respect to the WFH Training and Education Program.

Program 3
Expenses: $155,000 Revenue: $155,000

The WFH Research and Data Collection Program includes the Annual Global Survey the World Bleeding Disorder Registry the Gene Therapy Registry and their accompanying education and capacity-building...

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The WFH Research and Data Collection Program includes the Annual Global Survey the World Bleeding Disorder Registry the Gene Therapy Registry and their accompanying education and capacity-building programs. The objective of this program is to provide National Member Organizations NMOs and Hemophilia Treatment Centers HTCs with the tools to increase their capacity the framework to collect data on people with bleeding disorders and the education and training to use that data to conduct research and advocate for better care. In accordance with the Collaboration Agreement between the WFH USA and the WFH WFH USA periodically grants contributions received to support the WFH Research Program to the WFH as needed to carry out the WFHs responsibilities with respect to the WFH Research Program.

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Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $1,095,452,756
Program Service Revenue $0
Investment Income $73,508
Other Revenue $0
TOTAL REVENUE $1,095,526,264

Expense Breakdown

Grants Paid $1,154,048,112
Salaries & Benefits $0
Fundraising Expenses $60,199
Program Expenses $1,154,715,802
Other Expenses $850,611
TOTAL EXPENSES $1,154,898,723

Year-over-Year Comparison

2024 2023 Change
Revenue $1,095,526,264 $1,131,296,825 0.0%
Expenses $1,154,898,723 $1,070,872,912 +0.1%
Net Income $-59,372,459 $60,423,913 -2.0%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Governance

Voting Members
12
Independent Members
12
Employees
N/A
Volunteers
13

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
4
$0
Total Directors
14
$0
Key Employees
1
$0
Highest Compensated
0
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
Len Valentino President 1.00
Officer Director
$0 $0 $0
Philip Kucab Vice-President 1.00
Officer Director
$0 $0 $0
Sean Singh Treasurer 1.00
Officer Director
$0 $0 $0
Alain Baumann Secretary Exec Director 4.00
Officer Director Key Emp
$0 $0 $0
Paula Bell BoD member 1.00
Director
$0 $0 $0
Jeff Blake BoD member 1.00
Director
$0 $0 $0
Joanne A Davis BoD member 1.00
Director
$0 $0 $0
Amy Dunn BoD member 1.00
Director
$0 $0 $0
Rob Maloney BoD member 1.00
Director
$0 $0 $0
Glenn Pierce BoD member 1.00
Director
$0 $0 $0
Dawn Rotellini BoD member 1.00
Director
$0 $0 $0
Frank Schnabel IV BoD member 1.00
Director
$0 $0 $0
Mark Skinner BoD member 1.00
Director
$0 $0 $0
Eric Stolte BoD member 1.00
Director
$0 $0 $0
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2024 $1,095,526,264 $1,154,898,723 $377,644,851 $-59,372,459
2024 $1,095,526,264 $1,154,898,723 $377,644,851 $-59,372,459
2023 $1,131,296,825 $1,070,872,912 $436,959,567 $60,423,913
2022 $684,615,118 $684,510,863 $1,856,452 $104,255
2021 $822,953,008 $822,759,749 $2,014,564 $193,259
2020 $398,517,418 $398,297,253 $1,360,104 $220,165
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