VASCULAR BIRTHMARKS FOUNDATION INC

EIN: 161515227 501(c)(3) Diseases & Disorders

LATHAM, NY

Total Revenue
$623,212
Total Expenses
$564,419
Total Assets
$1,189,819
Net Assets
$1,185,408
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Financial Vulnerability Assessment (Tuckman-Chang)

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Financial Trends

Organization Details

Formation Year
1994
Legal Domicile
NY
Principal Officer
DR LINDA ROZELL-SHANNON
Phone
5187829637
Tax Period
2025-01-01 to 2025-12-31

VASCULAR BIRTHMARKS FOUNDATION INC, founded in 1994, is a small nonprofit in the Diseases & Disorders sector that reported $623K in total revenue in fiscal year 2025. Expenses of $564K left a modest 9% surplus.

Mission

PROVIDE SUPPORT AND INFORMATIONAL RESOURCES FOR INDIVIDUALS AFFECTED BY HEMANGIOMAS, PORT WINE STAINS AND OTHER VASCULAR BIRTHMARKS AND TUMORS, AND SPONSORED RELEVANT RESEARCH

Program Service Accomplishments

Program 1
Expenses: $322,609

PROVIDE SUPPORT AND INFORMATIONAL RESOURCES FOR INDIVIDUALS AFFECTED BY HEMANGIOMAS, PORT WINE STAINS AND OTHER VASCULAR BIRTHMARKS AND TUMORS, AND SPONSORED RELEVANT RESEARCH

Program 2
Expenses: $14,531 Revenue: $128,855

TO EDUCATE THE PUBLIC ON VASCULAR BIRTHMARKS THROUGH THE ANNUAL CONFERENCE AND TO PROVIDE SERVICES TO GUESTS.

Program 3
Expenses: $11,000 Revenue: $3,500

AWARD SCHOLARSHIPS TO INDIVIDUALS WITH VASCULAR BIRTHMARKS WHO ARE PRODUCTIVE IN THEIR COMMUNITIES AND SCHOOLS AND WHO AGREE TO PROMOTE THE VBF ON CAMPUS. THE ABBY CIZIRR PHYSICIAN GRANT WAS ALSO...

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AWARD SCHOLARSHIPS TO INDIVIDUALS WITH VASCULAR BIRTHMARKS WHO ARE PRODUCTIVE IN THEIR COMMUNITIES AND SCHOOLS AND WHO AGREE TO PROMOTE THE VBF ON CAMPUS. THE ABBY CIZIRR PHYSICIAN GRANT WAS ALSO AWARDED TO GIVE PHYSICIAN RECIPIENTS THE OPPORTUNITY TO FURTHER THEIR STUDIES ON VASCULAR BIRTHMARKS. THE WEBER FUND WAS ESTABLISHED TO HELP NEEDY FAMILIES PAY FOR TRAVEL EXPENSES IN CONNECTION TO KLIPPEL-TRENAUNAY SYNDROME.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2025)

Revenue Breakdown

Contributions & Grants $448,816
Program Service Revenue $128,855
Investment Income $43,001
Other Revenue $2,540
TOTAL REVENUE $623,212

Expense Breakdown

Grants Paid $11,000
Salaries & Benefits $334,068
Fundraising Expenses $67,548
Program Expenses $348,140
Other Expenses $219,351
TOTAL EXPENSES $564,419

Year-over-Year Comparison

2025 2024 Change
Revenue $623,212 $586,808 +0.1%
Expenses $564,419 $599,067 -0.1%
Net Income $58,793 $-12,259 -5.8%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Liquidity & Cash Position

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Governance

Voting Members
10
Independent Members
10
Employees
6
Volunteers
20

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
2
$91,349
Total Directors
12
$0
Key Employees
0
$0
Highest Compensated
0
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
DR LINDA ROZELL-SHANNON Executive Dir. 32.00
Officer
$91,349 $0 $91,349
AILEE MARTYNOWSKI Secretary 2.00
Officer Director
$0 $0 $0
JESSICA FAGAN PSYD PATIENT ADVOCAT 2.00
Director
$0 $0 $0
J STUART NELSON MD PHD Director 2.00
Director
$0 $0 $0
CHRISTINE SOKOL PATIENT ADVOCAT 2.00
Director
$0 $0 $0
MICHELLE SARIO FUNDRAISING 2.00
Director
$0 $0 $0
ROY G GERONEMUS MD Director 2.00
Director
$0 $0 $0
GIACOMO COLLETTI MD Director 2.00
Director
$0 $0 $0
MELANIE CARTER PATIENT ADVOCAT 2.00
Director
$0 $0 $0
FRED SIYUFY PATIENT ADVOCAT 2.00
Director
$0 $0 $0
SAMANTHA DRAZIN LMHC Chairman 2.00
Director
$0 $0 $0
TRITIA MEDRANO PATIENT ADVOCAT 2.00
Director
$0 $0 $0
DONNA WATSON PATIENT ADVOCAT 0.00
Director
$0 $0 $0
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2025 $623,212 $564,419 $1,189,819 $58,793
2024 $586,808 $599,067 $1,126,410 $-12,259
2023 $602,102 $589,656 $1,134,010 $12,446
2022 $562,743 $494,414 $1,102,465 $68,329
2021 $620,340 $433,192 $1,063,742 $187,148
2020 $402,918 $318,652 $913,973 $84,266
2019 $298,459 $435,493 $790,227 $-137,034
2018 $602,189 $428,544 $925,291 $173,645
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