CURE DUCHENNE

EIN: 200299958 501(c)(3) Medical Research

NEWPORT BEACH, CA

Total Revenue
$3,941,885
Total Expenses
$9,167,617
Total Assets
$30,906,923
Net Assets
$30,659,059
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Financial Vulnerability Assessment (Tuckman-Chang)

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Financial Trends

Organization Details

Formation Year
2003
Legal Domicile
CA
Principal Officer
DEBRA MILLER
Phone
9498722552
Tax Period
2024-01-01 to 2024-12-31

CURE DUCHENNE, founded in 2003, is a community nonprofit in the Medical Research sector that reported $3.9M in total revenue in fiscal year 2024. Revenue fell 46% from the prior year — a significant decline worth monitoring. Expenses of $9.2M exceeded revenue, resulting in a 133% operating deficit.

Mission

CURE DUCHENNE IS A NON-PROFIT ORGANIZATION DEDICATED TO RAISING FUNDS; COORDINATING AND FUNDING RESEARCH NECESSARY TO FIND A CURE FOR DUCHENNE MUSCULAR DYSTROPHY, INCREASING PUBLIC AWARENESS FOR DUCHENNE MUSCULAR DYSTROPHY PATIENTS, IMPROVING CARE, HEALTH,AND QUAILITY OF LIVING FOR DUCHENNE MUSCULAR DYSTROPHY PATIENTS.

Program Service Accomplishments

Program 1
Expenses: $7,366,415

CURE DUCHENNE WAS ORGANIZED IN 2003 WITH THE MISSION TO FUND RESEARCH NECESSARY TO FIND A CURE FOR DUCHENNE MUSCULAR DYSTROPHY PATIENTS, AND IMPROVING THE CARE AND HEALTH OF DUCHENNE MUSCULAR...

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CURE DUCHENNE WAS ORGANIZED IN 2003 WITH THE MISSION TO FUND RESEARCH NECESSARY TO FIND A CURE FOR DUCHENNE MUSCULAR DYSTROPHY PATIENTS, AND IMPROVING THE CARE AND HEALTH OF DUCHENNE MUSCULAR DYSTROPHY PATIENTS. SINCE CURE DUCHENNE WAS ORGANIZED, THE ORGANZIATIO HAS BEEN VERY INSTRUMENTAL IN HAVING SEVERAL DRUGS APPROVED BY THE FDA FOR PATIENTS WITH DUCHENNE MUSCULAR DYSTROPHY.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $3,505,601
Program Service Revenue $0
Investment Income $-1,944,106
Other Revenue $2,380,390
TOTAL REVENUE $3,941,885

Expense Breakdown

Grants Paid $660,000
Salaries & Benefits $4,567,404
Fundraising Expenses $886,800
Program Expenses $7,366,415
Other Expenses $3,940,213
TOTAL EXPENSES $9,167,617

Year-over-Year Comparison

2024 2023 Change
Revenue $3,941,885 $7,357,938 -0.5%
Expenses $9,167,617 $10,247,154 -0.1%
Net Income $-5,225,732 $-2,889,216 +0.8%
Key Indicators
✓ Grants to Organizations ✗ Grants to Individuals ✗ Lobbying ✗ Political Activity ✗ Foreign Activities ✗ Donor Advised Fund ✓ Schedule B Required
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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

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Governance

Voting Members
13
Independent Members
13
Employees
30
Volunteers
N/A

Governance Policies

✓ Conflict of Interest Policy
✓ Whistleblower Policy
✓ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School
✗ Operated a Hospital
✗ Provided First Class Travel
⚠ Reported Conflict of Interest
✗ Reported Asset Diversion
✗ Excess Benefit Transaction
✗ Made Political Expenditures
✗ Engaged in Lobbying
✗ Operated Donor Advised Fund
✗ Maintained Art Collections
✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
2
$151,304
Total Directors
15
$151,304
Key Employees
7
$1,349,577
Highest Compensated
0
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
PAUL MILLER SECRETARY 10.00
Officer Director
$0 $0 $0
DEBRA MILLER CEO 40.00
Officer Director
$151,304 $0 $151,304
JEFFREY GOFFMAN DIRECTOR 1.00
Director
$0 $0 $0
PETER STRELOW DIRECTOR 1.00
Director
$0 $0 $0
DAVID MACINNIS DIRECTOR 1.00
Director
$0 $0 $0
DANA WHITE DIRECTOR 1.00
Director
$0 $0 $0
RYAN WILLIAMS DIRECTOR 1.00
Director
$0 $0 $0
MARTIN LEHR DIRECTOR 1.00
Director
$0 $0 $0
TJ FARNSWORTH DIRECTOR 1.00
Director
$0 $0 $0
DIANE KEMPLE DIRECTOR 1.00
Director
$0 $0 $0
CHRISTOPHER FINAZZO DIRECTOR 1.00
Director
$0 $0 $0
TIM SULLIVAN DIRECTOR 1.00
Director
$0 $0 $0
BOB SMITH DIRECTOR 1.00
Director
$0 $0 $0
JOHN MANAGONORE DIRECTOR 1.00
Director
$0 $0 $0
NICHOLAS PRYTHERCH DIRECTOR 1.00
Director
$0 $0 $0
KATHLENE BALISY FINANCE DIRECTOR 40.00
Key Emp
$190,000 $0 $190,000
LIANNA ORLANDO VICE PRESIDENT OF RESEARCH 40.00
Key Emp
$213,873 $0 $213,873
MICHAEL KELLY CHIEF SCIENTIFIC OFFICER 40.00
Key Emp
$235,000 $0 $235,000
HEATHER MEDLIN DIRECTOR OF CLINICAL DEVEL 40.00
Key Emp
$198,846 $0 $198,846
ANDREA PIKE DIRECTOR OF MARKETING 40.00
Key Emp
$173,619 $0 $173,619
MONICA UTLEY DIRECTOR OF PROGRAMS 40.00
Key Emp
$168,502 $0 $168,502
EMILIE PERKINS DIRECTOR OF COMMUNICATIONS 40.00
Key Emp
$169,737 $0 $169,737
LAURA HAMEED EXECUTIVE DIRECTOR 40.00
$243,077 $0 $243,077
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2024 $3,941,885 $9,167,617 $30,906,923 $-5,225,732
2023 $7,357,938 $10,247,154 $27,086,351 $-2,889,216
2022 $5,751,368 $9,005,616 $28,410,543 $-3,254,248
2021 $5,442,219 $7,605,386 $33,154,912 $-2,163,167
2020 $5,329,712 $5,957,804 $40,900,297 $-628,092
2019 $27,520,354 $4,978,057 $29,774,719 $22,542,297
2018 $4,813,344 $4,314,793 $6,797,553 $498,551
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