CURE DUCHENNE (EIN 200299958) - Form 990 Financial Analysis & Trantor Score

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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year

2003

Legal Domicile

Principal Officer

DEBRA MILLER

Phone

9498722552

Tax Period

2024-01-01 to 2024-12-31

CURE DUCHENNE, founded in 2003, is a community nonprofit in the Medical Research sector that reported $3.9M in total revenue in fiscal year 2024. Revenue fell 46% from the prior year — a significant decline worth monitoring. Expenses of $9.2M exceeded revenue, resulting in a 133% operating deficit.

Mission

COORDINATING AND FUNDING RESEARCH NECESSARY TO FIND A CURE FOR DUCHENNE MUSCULAR DYSTROPHY. AS WELL AS, IMPROVING THE CARE AND HEALTH OF DUCHENNE MUSCULAR DISTROPHY PATIENTS.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $3,505,601

Program Service Revenue $0

Investment Income $-1,944,106

Other Revenue $2,380,390

TOTAL REVENUE $3,941,885

Expense Breakdown

Grants Paid $660,000

Salaries & Benefits $4,567,404

Fundraising Expenses $886,800

Program Expenses $7,366,415

Other Expenses $3,940,213

TOTAL EXPENSES $9,167,617

Year-over-Year Comparison

	2024	2023	Change
Revenue	$3,941,885	$7,357,938	-0.5%
Expenses	$9,167,617	$10,247,154	-0.1%
Net Income	$-5,225,732	$-2,889,216	+0.8%

Key Indicators

✓ Grants to Organizations ✗ Grants to Individuals ✗ Lobbying ✗ Political Activity ✗ Foreign Activities ✗ Donor Advised Fund ✓ Schedule B Required

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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

Governance

Voting Members

Independent Members

Employees

Volunteers

N/A

Governance Policies

✓ Conflict of Interest Policy

✓ Whistleblower Policy

✓ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School

✗ Operated a Hospital

✗ Provided First Class Travel

⚠ Reported Conflict of Interest

✗ Reported Asset Diversion

✗ Excess Benefit Transaction

✗ Made Political Expenditures

✗ Engaged in Lobbying

✗ Operated Donor Advised Fund

✗ Maintained Art Collections

✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers

$151,304

Total Directors

$151,304

Key Employees

$1,349,577

Highest Compensated

reported

Name	Title	Hours/Week	Role	Reportable Comp	Other Comp	Total
PAUL MILLER	SECRETARY	10.00	Officer Director	$0	$0	$0
DEBRA MILLER	CEO	40.00	Officer Director	$151,304	$0	$151,304
JEFFREY GOFFMAN	DIRECTOR	1.00	Director	$0	$0	$0
PETER STRELOW	DIRECTOR	1.00	Director	$0	$0	$0
DAVID MACINNIS	DIRECTOR	1.00	Director	$0	$0	$0
DANA WHITE	DIRECTOR	1.00	Director	$0	$0	$0
RYAN WILLIAMS	DIRECTOR	1.00	Director	$0	$0	$0
MARTIN LEHR	DIRECTOR	1.00	Director	$0	$0	$0
TJ FARNSWORTH	DIRECTOR	1.00	Director	$0	$0	$0
DIANE KEMPLE	DIRECTOR	1.00	Director	$0	$0	$0
CHRISTOPHER FINAZZO	DIRECTOR	1.00	Director	$0	$0	$0
TIM SULLIVAN	DIRECTOR	1.00	Director	$0	$0	$0
BOB SMITH	DIRECTOR	1.00	Director	$0	$0	$0
JOHN MANAGONORE	DIRECTOR	1.00	Director	$0	$0	$0
NICHOLAS PRYTHERCH	DIRECTOR	1.00	Director	$0	$0	$0
KATHLENE BALISY	FINANCE DIRECTOR	40.00	Key Emp	$190,000	$0	$190,000
LIANNA ORLANDO	VICE PRESIDENT OF RESEARCH	40.00	Key Emp	$213,873	$0	$213,873
MICHAEL KELLY	CHIEF SCIENTIFIC OFFICER	40.00	Key Emp	$235,000	$0	$235,000
HEATHER MEDLIN	DIRECTOR OF CLINICAL DEVEL	40.00	Key Emp	$198,846	$0	$198,846
ANDREA PIKE	DIRECTOR OF MARKETING	40.00	Key Emp	$173,619	$0	$173,619
MONICA UTLEY	DIRECTOR OF PROGRAMS	40.00	Key Emp	$168,502	$0	$168,502
EMILIE PERKINS	DIRECTOR OF COMMUNICATIONS	40.00	Key Emp	$169,737	$0	$169,737
LAURA HAMEED	EXECUTIVE DIRECTOR	40.00		$243,077	$0	$243,077

Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year	Revenue	Expenses	Assets	Net Income
2024	$3,941,885	$9,167,617	$30,906,923	$-5,225,732
2023	$7,357,938	$10,247,154	$27,086,351	$-2,889,216
2022	$5,751,368	$9,005,616	$28,410,543	$-3,254,248
2021	$5,442,219	$7,605,386	$33,154,912	$-2,163,167
2020	$5,329,712	$5,957,804	$40,900,297	$-628,092
2019	$27,520,354	$4,978,057	$29,774,719	$22,542,297
2018	$4,813,344	$4,314,793	$6,797,553	$498,551

CURE DUCHENNE