NATIONAL FABRY DISEASE FOUNDATION (EIN 202944028) - Form 990 Financial Analysis & Trantor Score

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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year

2005

Legal Domicile

Principal Officer

GERALD WALTER

Phone

9197322799

Tax Period

2023-06-01 to 2024-05-31

NATIONAL FABRY DISEASE FOUNDATION, founded in 2005, is a small nonprofit in the Diseases & Disorders sector that reported $575K in total revenue in fiscal year 2023. Revenue surged 87% from the prior year, signaling strong growth momentum. Expenses of $683K exceeded revenue, resulting in a 19% operating deficit.

Mission

TO ENSURE THAT ALL INDIVIDUALS WITH FABRY DISEASE ARE IDENTIFIED, DIAGNOSED AND TREATED IN TIME TO AVOID A DIMINISHED QUALITY-OF-LIFE AND LIFE- THREATENING CONSEQUENCES; TO PROVIDE EDUCATION AND AWARENESS; AND TO PROMOTE RESEARCH TO IMPROVE THE MANAGEMENT AND TREATMENT OF FABRY DISEASE.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

Financial Overview (2023)

Revenue Breakdown

Contributions & Grants $571,255

Program Service Revenue $0

Investment Income $4,046

Other Revenue $0

TOTAL REVENUE $575,301

Expense Breakdown

Grants Paid $139,353

Salaries & Benefits $264,979

Fundraising Expenses $6,967

Program Expenses $638,880

Other Expenses $278,178

TOTAL EXPENSES $682,510

Year-over-Year Comparison

	2023	2022	Change
Revenue	$575,301	$307,957	+0.9%
Expenses	$682,510	$472,698	+0.4%
Net Income	$-107,209	$-164,741	-0.3%

Key Indicators

✓ Grants to Organizations ✓ Grants to Individuals ✗ Lobbying ✗ Political Activity ✗ Foreign Activities ✗ Donor Advised Fund ✓ Schedule B Required

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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

Governance

Voting Members

Independent Members

Employees

Volunteers

Governance Policies

✓ Conflict of Interest Policy

✓ Whistleblower Policy

✓ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School

✗ Operated a Hospital

✗ Provided First Class Travel

✗ Reported Conflict of Interest

✗ Reported Asset Diversion

✗ Excess Benefit Transaction

✗ Made Political Expenditures

✗ Engaged in Lobbying

✗ Operated Donor Advised Fund

✗ Maintained Art Collections

✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers

$118,335

Total Directors

$118,335

Key Employees

Highest Compensated

reported

Name	Title	Hours/Week	Role	Reportable Comp	Other Comp	Total
GERALD WALTER	CHAIR	40.00	Officer Director	$114,785	$3,550	$118,335
DEREK HALBERG	VICE CHAIR	1.00	Officer Director	$0	$0	$0
TRACY MYATT	SECRETARY	1.00	Officer Director	$0	$0	$0
MELANIE WILSON	TREASURER	1.00	Officer Director	$0	$0	$0
ELIZABETH GAFFIN	DIRECTOR	1.00	Director	$0	$0	$0
STEVEN ROTHMAN	DIRECTOR	1.00	Director	$0	$0	$0

Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year	Revenue	Expenses	Assets	Net Income
2025	No data	No data	No data	No data
2024	$575,301	$682,510	$413,847	$-107,209
2023	$307,957	$472,698	$521,056	$-164,741
2022	$572,188	$228,527	$685,818	$343,661
2021	$188,701	$216,622	$342,157	$-27,921
2020	$544,803	$393,955	$370,078	$150,848
2019	$394,250	$433,950	$219,230	$-39,700
2018	$508,472	$384,145	$258,930	$124,327

NATIONAL FABRY DISEASE FOUNDATION