MYOTONIC DYSTROPHY FOUNDATION INC

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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year

2006

Legal Domicile

Principal Officer

TANYA STEVENSON

Phone

4158007745

Tax Period

2023-01-01 to 2023-12-31

MYOTONIC DYSTROPHY FOUNDATION INC, founded in 2006, is a community nonprofit in the Diseases & Disorders sector that reported $2.4M in total revenue in fiscal year 2023. Revenue decreased 12% compared to the prior year. Expenses of $3.8M exceeded revenue, resulting in a 55% operating deficit.

Mission

To lead and mobilize resources toward effective management, treatment and ultimately a cure for myotonic dystrophy through education, advocacy and research.

Program Service Accomplishments

Program 1

Expenses: $1,205,823 Revenue: $82,999

Education - We strive not only to help affected individuals, their families and medical professionals understand this disorder, but also to raise awareness about the disease in the general...

Education - We strive not only to help affected individuals, their families and medical professionals understand this disorder, but also to raise awareness about the disease in the general population. MDF supports and helps organize conferences for affected families and medical professionals.

Program 2

Expenses: $1,138,608

Research - We raise additional funds in the private sector in order to accelerate further understanding of the disease through research. MDF supports both clinical and scientific research with a goal...

Program 3

Expenses: $382,109

Advocacy - In collaboration with other organizations, we are establishing and perpetuating local and regional support groups to offer emotional support and help to educate families about this...

Advocacy - In collaboration with other organizations, we are establishing and perpetuating local and regional support groups to offer emotional support and help to educate families about this disease. In addition to providing information about available services, we advocate for increased funding for myotonic dystrophy research and patient support.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

Financial Overview (2023)

Revenue Breakdown

Contributions & Grants $2,324,783

Program Service Revenue $82,999

Investment Income $183,627

Other Revenue $-142,929

TOTAL REVENUE $2,448,480

Expense Breakdown

Grants Paid $701,687

Salaries & Benefits $979,808

Fundraising Expenses $210,240

Program Expenses $2,726,540

Other Expenses $2,109,633

TOTAL EXPENSES $3,791,128

Year-over-Year Comparison

	2023	2022	Change
Revenue	$2,448,480	$2,774,035	-0.1%
Expenses	$3,791,128	$2,506,145	+0.5%
Net Income	$-1,342,648	$267,890	-6.0%

Key Indicators

✓ Grants to Organizations ✗ Grants to Individuals ✗ Lobbying ✗ Political Activity ✗ Foreign Activities ✗ Donor Advised Fund ✓ Schedule B Required

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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

Governance

Voting Members

Independent Members

Employees

Volunteers

Governance Policies

✗ Conflict of Interest Policy

✗ Whistleblower Policy

✗ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School

✗ Operated a Hospital

✗ Provided First Class Travel

✗ Reported Conflict of Interest

✗ Reported Asset Diversion

✗ Excess Benefit Transaction

✗ Made Political Expenditures

✗ Engaged in Lobbying

✗ Operated Donor Advised Fund

✗ Maintained Art Collections

✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers

$264,348

Total Directors

Key Employees

Highest Compensated

reported

Name	Title	Hours/Week	Role	Reportable Comp	Other Comp	Total
TANYA STEVENSON	CEO	60.00	Officer	$240,871	$23,477	$264,348
KLEED CUMMING	COMM/TECH MANAGER	40.00		$131,861	$942	$132,803
CATHERINE BECK	PROJECTS MANAGER	40.00		$126,798	$2,397	$129,195
MINDY BUCHANAN	DIR. OF PROGRAMS	40.00		$108,620	$2,301	$110,921
JEREMY KELLY	CHAIR	5.00	Officer Director	$0	$0	$0
MARTHA MONTAG BROWN	VICE-CHAIR	5.00	Officer Director	$0	$0	$0
ELIZABETH FLORENCE	Secretary	5.00	Officer Director	$0	$0	$0
DAVID HERBERT	Treasurer	5.00	Officer Director	$0	$0	$0
DAVID BERMAN	Director	1.00	Director	$0	$0	$0
JOHN W DAY	Director	1.00	Director	$0	$0	$0
CHARLES THORNTON	Director	1.00	Director	$0	$0	$0
JOHN FITZPATRICK	Director	1.00	Director	$0	$0	$0
JOEL REVILL	Director	1.00	Director	$0	$0	$0
TOM McPeek	Director	1.00	Director	$0	$0	$0
BELEN ESPARIS	Director	2.00	Director	$0	$0	$0
HALEY MARTINELLI	Director	1.00	Director	$0	$0	$0

Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year	Revenue	Expenses	Assets	Net Income
2024	No data	No data	No data	No data
2023	$2,448,480	$3,791,128	$5,467,413	$-1,342,648
2022	$2,774,035	$2,506,145	$6,830,491	$267,890
2021	$2,383,618	$1,490,525	$5,846,076	$893,093
2020	$1,947,806	$1,124,779	$4,489,179	$823,027
2019	$2,271,866	$2,248,284	$3,955,407	$23,582
2018	$2,183,628	$2,021,676	$3,794,207	$161,952