THE CHOLANGIOCARCINOMA FOUNDATION

EIN: 205776861 501(c)(3) Medical Research

SALT LAKE CITY, UT

Total Revenue
$7,130,406
Total Expenses
$7,195,778
Total Assets
$5,767,836
Net Assets
$4,547,683
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Financial Vulnerability Assessment (Tuckman-Chang)

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Financial Trends

Organization Details

Formation Year
2006
Legal Domicile
UT
Principal Officer
STACIE LINDSEY
Phone
8889366731
Tax Period
2024-07-01 to 2025-06-30

THE CHOLANGIOCARCINOMA FOUNDATION, founded in 2006, is a community nonprofit in the Medical Research sector that reported $7.1M in total revenue in fiscal year 2024.

Mission

THE ORGANIZATION'S MISSION IS TO FIND A CURE AND IMPROVE THE QUALITY OF LIFE FOR CHOLANGIOCARCINOMA PATIENTS.

Program Service Accomplishments

Program 1
Expenses: $1,972,638

RESEARCH THE ORGANIZATION ADVANCES SCIENTIFIC DISCOVERY THROUGH ITS RESEARCH FELLOWSHIP PROGRAM, CAREER DEVELOPMENT AWARD, AND INNOVATION GRANTS, WHICH COLLECTIVELY SUPPORT EMERGING INVESTIGATORS AND...

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RESEARCH THE ORGANIZATION ADVANCES SCIENTIFIC DISCOVERY THROUGH ITS RESEARCH FELLOWSHIP PROGRAM, CAREER DEVELOPMENT AWARD, AND INNOVATION GRANTS, WHICH COLLECTIVELY SUPPORT EMERGING INVESTIGATORS AND FUND TRANSFORMATIVE, HIGH- IMPACT STUDIES. IT ALSO CONVENED THE INTERNATIONAL CHOLANGIOCARCINOMA CONSENSUS CONFERENCE, UNITING GLOBAL EXPERTS TO ESTABLISH RESEARCH PRIORITIES AND ACCELERATE CLINICAL TRANSLATION. THESE EFFORTS ARE ANCHORED IN THE INTERNATIONAL CHOLANGIOCARCINOMA RESEARCH NETWORK (ICRN) - A WORLDWIDE COLLABORATION DRIVING PROGRESS IN ETIOLOGY, PREVENTION, EARLY DETECTION, AND TREATMENT. THROUGH ICRN SUBCOMMITTEES, THE ORGANIZATION LEVERAGES SHARED DATA AND CULTIVATES FUTURE LEADERS IN RESEARCH AND CARE.

Program 2
Expenses: $3,404,077 Revenue: $357,617

PATIENT SUPPORT THE ORGANIZATION PROVIDES SUPPORT SERVICES TO INDIVIDUALS DIAGNOSED WITH CHOLANGIOCARCINOMA AND THEIR CAREGIVERS. THESE SERVICES INCLUDE ACCESS TO A NETWORK OF PATIENT ADVOCATES, PEER...

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PATIENT SUPPORT THE ORGANIZATION PROVIDES SUPPORT SERVICES TO INDIVIDUALS DIAGNOSED WITH CHOLANGIOCARCINOMA AND THEIR CAREGIVERS. THESE SERVICES INCLUDE ACCESS TO A NETWORK OF PATIENT ADVOCATES, PEER MENTORS, SUPPORT GROUPS, EDUCATIONAL WEBINARS, AND DISEASE-SPECIFIC INFORMATIONAL RESOURCES. THE GOAL OF THESE PROGRAMS IS TO IMPROVE QUALITY OF LIFE BY OFFERING RELIABLE INFORMATION, EMOTIONAL SUPPORT, AND GUIDANCE TO HELP PATIENTS AND FAMILIES NAVIGATE THEIR CARE IN COORDINATION WITH HEALTHCARE PROVIDERS

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $6,634,735
Program Service Revenue $357,617
Investment Income $143,869
Other Revenue $-5,815
TOTAL REVENUE $7,130,406

Expense Breakdown

Grants Paid $1,015,000
Salaries & Benefits $3,515,927
Fundraising Expenses $1,326,070
Program Expenses $5,376,715
Other Expenses $2,664,851
TOTAL EXPENSES $7,195,778

Year-over-Year Comparison

2024 2023 Change
Revenue $7,130,406 $6,918,626 +0.0%
Expenses $7,195,778 $6,237,924 +0.2%
Net Income $-65,372 $680,702 -1.1%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Governance

Voting Members
10
Independent Members
9
Employees
32
Volunteers
250

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
4
$247,090
Total Directors
10
$186,408
Key Employees
0
$0
Highest Compensated
2
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
STACIE LINDSEY CEO/FOUNDER 40.00
Officer Director
$178,524 $7,884 $186,408
LILY ZHANG CFO 40.00
Officer
$56,219 $4,463 $60,682
MELINDA BACHINI CPO 40.00
Highest
$132,967 $6,063 $139,030
JUAN VALLE CHIEF MEDICA 40.00
Highest
$227,510 $15,529 $243,039
ALLI WARD COO 40.00
$143,957 $3,624 $147,581
TERESA DELCORSO-ELLMANN CHAIR 5.00
Officer Director
$0 $0 $0
DANIEL BLUM TREASURER 2.50
Officer Director
$0 $0 $0
ROSS GREEN BOARD MEMBER 2.50
Director
$0 $0 $0
JASON SCOTT BOARD MEMBER 2.50
Director
$0 $0 $0
JACK CALLAWAY BOARD MEMBER 2.50
Director
$0 $0 $0
LIZ WARNER BOARD MEMBER 2.50
Director
$0 $0 $0
TYLER BRIDEGAN BOARD MEMBER 2.50
Director
$0 $0 $0
KRIS HIGH BOARD MEMBER 2.50
Director
$0 $0 $0
JERRY HUANG BOARD MEMBER 2.50
Director
$0 $0 $0
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2025 $7,130,406 $7,195,778 $5,767,836 $-65,372
2024 $6,918,626 $6,237,924 $5,980,953 $680,702
2023 $5,082,650 $5,266,027 $4,624,165 $-183,377
2022 $4,935,665 $3,620,452 $4,018,118 $1,315,213
2021 $3,901,961 $2,279,422 $2,743,945 $1,622,539
2020 $1,887,741 $1,782,307 $1,219,709 $105,434
2019 $2,209,603 $1,933,077 $815,602 $276,526
2018 $1,527,321 $1,289,062 $699,116 $238,259
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