ALPORT SYNDROME FOUNDATION INC

🔒

Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

Sign in with your work email to view Tuckman-Chang indicators

Financial Trends

Organization Details

Formation Year

2007

Legal Domicile

Principal Officer

DANIEL KILPATRICK

Phone

4808003510

Tax Period

2024-01-01 to 2024-12-31

ALPORT SYNDROME FOUNDATION INC, founded in 2007, is a community nonprofit in the Health Care sector that reported $1.2M in total revenue in fiscal year 2024. Revenue grew 18% year-over-year, indicating healthy expansion. The organization ran a surplus of $191K, a strong 16% operating margin.

Mission

THE FOUNDATION WAS CREATED TO EDUCATE AND SUPPORT PATIENTS AND FAMILIES THAT HAVE BEEN AFFECTED BY THIS GENETIC KIDNEY DISEASE WITH A GOAL OF FUNDING RESEARCH, TO FIND MORE EFFECTIVE TREATMENT PROTOCOLS AND TO ULTIMATELY FIND A CURE.

Program Service Accomplishments

Program 1

Expenses: $916,993

570 NEW MEMBERS JOINED ASF. 527 PATIENTS ENROLLED IN THE ASF ALPORT PATIENT REGISTRY. 800 NEW MEMBERS JOINED THE ASF FACEBOOK SUPPORT GROUP. 89,000 WEBSITE VIEWS. 18,000 ASF YOUTUBE CHANNEL VIEWS...

570 NEW MEMBERS JOINED ASF. 527 PATIENTS ENROLLED IN THE ASF ALPORT PATIENT REGISTRY. 800 NEW MEMBERS JOINED THE ASF FACEBOOK SUPPORT GROUP. 89,000 WEBSITE VIEWS. 18,000 ASF YOUTUBE CHANNEL VIEWS. HOSTED A 2-DAY IN-PERSON MEETING FOR 123 PATIENT/FAMILY MEMBERS, WITH PARTIAL FINANCIAL ASSISTANCE PROVIDED TO 57 INDIVIDUALS FOR TRAVEL. 200 HOURS OF STAFF TIME SPENT MEETING VIRTUALLY WITH PATIENTS/CAREGIVERS. HIRED A PART-TIME RESEARCH DIRECTOR TO SUPPORT THE PHARMACEUTICAL AND BIOTECH PIPELINE. FACILITATED 974 PATIENT VOLUNTEER HOURS AND 114 CLINICIAN VOLUNTEER HOURS. PARTNERED WITH ENYO PHARMACEUTICALS TO PROVIDE PATIENT INSIGHTS INTO CLINICAL TRIAL DESIGN AND TO SHARE INFORMATION ABOUT THE PHASE-2 ALPESTRIA-1 STUDY, WHICH FULLY ENROLLED AHEAD OF SCHEDULE.

🔒

Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

Sign in to view Trantor Score and financial metrics

Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $1,063,256

Program Service Revenue $0

Investment Income $131,479

Other Revenue $0

TOTAL REVENUE $1,194,735

Expense Breakdown

Grants Paid $324,631

Salaries & Benefits $376,180

Fundraising Expenses $25,179

Program Expenses $916,993

Other Expenses $303,137

TOTAL EXPENSES $1,003,948

Year-over-Year Comparison

	2024	2023	Change
Revenue	$1,194,735	$1,016,405	+0.2%
Expenses	$1,003,948	$612,534	+0.6%
Net Income	$190,787	$403,871	-0.5%

Key Indicators

✓ Grants to Organizations ✓ Grants to Individuals ✗ Lobbying ✗ Political Activity ✗ Foreign Activities ✗ Donor Advised Fund ✓ Schedule B Required

🔒

Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

Sign in to view all financial metrics

Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

Governance

Voting Members

Independent Members

Employees

Volunteers

Governance Policies

✗ Conflict of Interest Policy

✗ Whistleblower Policy

✗ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School

✗ Operated a Hospital

✗ Provided First Class Travel

✗ Reported Conflict of Interest

✗ Reported Asset Diversion

✗ Excess Benefit Transaction

✗ Made Political Expenditures

✗ Engaged in Lobbying

✗ Operated Donor Advised Fund

✗ Maintained Art Collections

✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers

$105,000

Total Directors

Key Employees

Highest Compensated

reported

Name	Title	Hours/Week	Role	Reportable Comp	Other Comp	Total
LISA BONEBRAKE	EXECUTIVE DIRECTOR	065.00	Officer	$105,000	$0	$105,000
ANDREW KRONENBERG	BOARD CHAIR	010.00	Officer Director	$0	$0	$0
RYAN LINDER	SECRETARY	002.50	Officer Director	$0	$0	$0
DANIEL KILPATRICK	TREASURER	005.00	Officer Director	$0	$0	$0
SHARON LAGAS	CO-FOUNDER, DIRECTOR PAST CHAIR	005.00	Officer Director	$0	$0	$0
AMY RHODES	DIRECTOR	005.00	Director	$0	$0	$0
DECEMBER WEST	DIRECTOR	001.00	Director	$0	$0	$0
MARTY DUNLEAVY	DIRECTOR	001.00	Director	$0	$0	$0
PHILLIP KUMNICK	DIRECTOR	001.00	Director	$0	$0	$0
STEPHEN MALACH	DIRECTOR	001.00	Director	$0	$0	$0

Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year	Revenue	Expenses	Assets	Net Income
2024	$1,194,735	$1,003,948	$2,817,931	$190,787
2023	$1,016,405	$612,534	$2,669,586	$403,871
2022	$990,673	$499,455	$2,277,966	$491,218
2021	$993,526	$478,020	$1,762,638	$515,506
2020	$738,552	$438,250	$1,307,819	$300,302
2019	$552,035	$656,048	$1,069,034	$-104,013
2018	$806,994	$693,773	$1,206,840	$113,221