CHORDOMA FOUNDATION

EIN: 208423943 501(c)(3) Medical Research

DURHAM, NC

Total Revenue
$5,362,824
Total Expenses
$6,834,629
Total Assets
$11,385,145
Net Assets
$7,719,849
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Financial Vulnerability Assessment (Tuckman-Chang)

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Financial Trends

Organization Details

Formation Year
2007
Legal Domicile
NC
Principal Officer
JOSH SOMMER
Phone
9198096779
Tax Period
2024-01-01 to 2024-12-31

CHORDOMA FOUNDATION, founded in 2007, is a community nonprofit in the Medical Research sector that reported $5.4M in total revenue in fiscal year 2024. Revenue fell 28% from the prior year — a significant decline worth monitoring. Expenses of $6.8M exceeded revenue, resulting in a 27% operating deficit.

Mission

THE MISSION OF THE CHORDOMA FOUNDATION IS TO IMPROVE THE LIVES OF THOSE AFFECTED BY CHORDOMA AND LEAD THE SEARCH FOR A CURE.

Program Service Accomplishments

Program 1
Expenses: $5,063,579

(RESEARCH) TO ACCELERATE THE DEVELOPMENT OF BETTER TREATMENTS FOR CHORDOMA, WE CONDUCTED, SUPPORTED AND ENABLED HIGH-IMPACT RESEARCH SPANNING BASIC, TRANSLATIONAL AND CLINICAL SCIENCE. THIS INCLUDED...

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(RESEARCH) TO ACCELERATE THE DEVELOPMENT OF BETTER TREATMENTS FOR CHORDOMA, WE CONDUCTED, SUPPORTED AND ENABLED HIGH-IMPACT RESEARCH SPANNING BASIC, TRANSLATIONAL AND CLINICAL SCIENCE. THIS INCLUDED CARRYING OUT PRECLINICAL STUDIES IN OUR LABORATORY, AWARDING RESEARCH GRANTS TO ACADEMIC INVESTIGATORS, OPERATING REPOSITORIES TO SUPPLY THE RESEARCH COMMUNITY WITH KEY RESEARCH-ENABLING RESOURCES, CONVENING SCIENTIFIC MEETINGS, AND FACILITATING THE DESIGN AND INITIATION OF WELL-JUSTIFIED CLINICAL TRIALS.

Program 2
Expenses: $738,793

(PATIENT SERVICES) TO IMPROVE THE LIVES OF INDIVIDUALS AFFECTED BY CHORDOMA, WE HELPED PATIENTS AND THEIR FAMILIES FIND ACCURATE INFORMATION ABOUT CHORDOMA AND TREATMENT OPTIONS, OVERCOME BARRIERS TO...

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(PATIENT SERVICES) TO IMPROVE THE LIVES OF INDIVIDUALS AFFECTED BY CHORDOMA, WE HELPED PATIENTS AND THEIR FAMILIES FIND ACCURATE INFORMATION ABOUT CHORDOMA AND TREATMENT OPTIONS, OVERCOME BARRIERS TO CARE, AND GET EMOTIONAL SUPPORT FROM PEERS. THIS INCLUDED DEVELOPING AND DISTRIBUTING EDUCATIONAL CONTENT, PROVIDING PATIENT NAVIGATION SERVICES, HOSTING EDUCATIONAL CONFERENCES, OPERATING AN ONLINE COMMUNITY FORUM FOR PATIENTS AND FAMILIES AND PROVIDING FINANCIAL ASSISTANCE TO INDIVIDUALS TRAVELING TO PARTICIPATE IN CLINICAL TRIALS.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $4,859,019
Program Service Revenue $0
Investment Income $445,749
Other Revenue $58,056
TOTAL REVENUE $5,362,824

Expense Breakdown

Grants Paid $3,731,199
Salaries & Benefits $2,131,135
Fundraising Expenses $609,870
Program Expenses $5,802,372
Other Expenses $972,295
TOTAL EXPENSES $6,834,629

Year-over-Year Comparison

2024 2023 Change
Revenue $5,362,824 $7,442,618 -0.3%
Expenses $6,834,629 $4,597,074 +0.5%
Net Income $-1,471,805 $2,845,544 -1.5%
Key Indicators
✓ Grants to Organizations ✓ Grants to Individuals ✗ Lobbying ✗ Political Activity ✓ Foreign Activities ✗ Donor Advised Fund ✓ Schedule B Required
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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

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Liquidity & Cash Position

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Governance

Voting Members
13
Independent Members
12
Employees
16
Volunteers
45

Governance Policies

✗ Conflict of Interest Policy
✗ Whistleblower Policy
✗ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School
✗ Operated a Hospital
✗ Provided First Class Travel
✗ Reported Conflict of Interest
✗ Reported Asset Diversion
✗ Excess Benefit Transaction
✗ Made Political Expenditures
✗ Engaged in Lobbying
✗ Operated Donor Advised Fund
✗ Maintained Art Collections
✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
1
$202,736
Total Directors
13
$202,736
Key Employees
2
$457,176
Highest Compensated
5
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
KENNY BRIGHTON HEAD OF PHIL 40.00
Key Emp
$216,428 $13,189 $229,617
DANIEL FREED CHIEF SCIENT 40.00
Key Emp
$204,345 $23,214 $227,559
JOSH SOMMER EXEC. DIR. & 50.00
Officer Director
$174,183 $28,553 $202,736
SARA NICK HEAD OF ENGA 40.00
Highest
$142,821 $9,699 $152,520
SHANNON LOZINSKY DIRECTOR OF 40.00
Highest
$121,708 $17,888 $139,596
LEE DOLAT SCIENTIST 40.00
Highest
$112,452 $15,642 $128,094
SAI PERVEEN CHEMUDUPATI DIRECTOR OF 40.00
Highest
$105,347 $11,259 $116,606
JESSE BONGARTZ HEAD OF FINA 40.00
Highest
$100,921 $11,209 $112,130
LESLIE ADLER DIRECTOR 2.00
Director
$0 $0 $0
PAUL FELDMAN DIRECTOR 2.00
Director
$0 $0 $0
STEVEN GOLICK DIRECTOR 2.00
Director
$0 $0 $0
CHRISTOPHER HEERY DIRECTOR 2.00
Director
$0 $0 $0
ALICIA JEFFREYS DIRECTOR 2.00
Director
$0 $0 $0
SUSAN MAHONY DIRECTOR 2.00
Director
$0 $0 $0
STEVEN MANDEL DIRECTOR 2.00
Director
$0 $0 $0
LAUREN MULHOLLAND DIRECTOR 2.00
Director
$0 $0 $0
SHREYASKUMAR PATEL DIRECTOR 2.00
Director
$0 $0 $0
DAVID SANDAK CHAIR 2.00
Director
$0 $0 $0
MEGAN STEWART DIRECTOR 2.00
Director
$0 $0 $0
JOHN THERIEN DIRECTOR 2.00
Director
$0 $0 $0
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2024 $5,362,824 $6,834,629 $11,385,145 $-1,471,805
2023 $7,442,618 $4,597,074 $11,037,912 $2,845,544
2022 $4,886,250 $3,088,769 $7,599,511 $1,797,481
2021 $3,085,754 $3,372,184 $6,529,695 $-286,430
2020 $2,495,845 $2,520,685 $6,345,825 $-24,840
2019 $5,155,658 $3,937,221 $7,176,227 $1,218,437
2018 $2,421,189 $2,338,881 $4,518,951 $82,308
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