CHARCOT-MARIE-TOOTH ASSOCIATION

EIN: 222480896 501(c)(3) Diseases & Disorders

GLENOLDEN, PA

Total Revenue
$5,778,743
Total Expenses
$5,791,669
Total Assets
$9,548,719
Net Assets
$9,548,719
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Financial Vulnerability Assessment (Tuckman-Chang)

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Financial Trends

Organization Details

Formation Year
1983
Legal Domicile
PA
Principal Officer
SUZANNE BRUHN
Phone
6104272971
Tax Period
2024-01-01 to 2024-12-31

CHARCOT-MARIE-TOOTH ASSOCIATION, founded in 1983, is a community nonprofit in the Diseases & Disorders sector that reported $5.8M in total revenue in fiscal year 2024.

Mission

CMTA AWARDS RESEARCH FELLOWSHIPS AND GRANTS FOR RESEARCH ON CHARCOT-MARIE-TOOTH DIESEASE. CMTA ALSO HOSTS BI-ANNUAL MEETINGS OF ALL RESEARCHERS RECEIVING ITS FUNDING TO PROMOTE KNOWLEDGE EXCHANGE AND SYNERGY. IT USES THE SERVICES OF A MEDICAL RESEARCH CONSULTANT TO OVERSEE THE SELECTION OF THE RECEIPIENTS OF THE RESEARCH FUNDING AND TP WRITE THE GRANTS AND CONTRACTS WITH THESE RESEARCHERS.

Program Service Accomplishments

Program 1
Expenses: $3,864,194 Revenue: $1,282,115

CMTA AWARDS RESEARCH FELLOWSHIPS AND GRANTS FOR RESEARCH ON CHARCOT-MARIE-TOOTH DISEASE. IT ALSO HOSTS BI-ANNUAL MEETINGS OF ALL RESEARCHERS RECEIVING ITS FUNDING TO PROMOTE KNOWLEDGE EXCHANGE AND...

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CMTA AWARDS RESEARCH FELLOWSHIPS AND GRANTS FOR RESEARCH ON CHARCOT-MARIE-TOOTH DISEASE. IT ALSO HOSTS BI-ANNUAL MEETINGS OF ALL RESEARCHERS RECEIVING ITS FUNDING TO PROMOTE KNOWLEDGE EXCHANGE AND SYNERGY. IT USES THE SERVICES OF A SCIENTIFIC ADVISORY BOARD OF RESEARCH AND CLINICAL EXPERTS TO OVERSEE THE SELECTION OF THE RECIPIENTS OF THE RESEARCH FUNDING AND TO WRITE THE GRANTS AND CONTRACTS WITH THESE RESEARCHERS.

Program 2
Expenses: $1,281,204

CMTA ORGANIZES AND CONDUCTS SUPPORT GROUPS, CONFERENCES, A CAMP FOR CHILDREN AGES 10-18 WITH CMT AT 2 U.S. LOCATIONS, AND EDUCATIONAL WEBINARS FOR PATIENTS, THEIR FAMILIES AND MEDICAL PRACTITIONERS...

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CMTA ORGANIZES AND CONDUCTS SUPPORT GROUPS, CONFERENCES, A CAMP FOR CHILDREN AGES 10-18 WITH CMT AT 2 U.S. LOCATIONS, AND EDUCATIONAL WEBINARS FOR PATIENTS, THEIR FAMILIES AND MEDICAL PRACTITIONERS TO SHARE KNOWLEDGE AND PROMOTE AWARENESS OF CHARCOT-MARIE-TOOTH DISEASE.CMTA ALSO PUBLISHES A BI-MONTHLY NEWSLETTER AND OTHER EDUCATIONAL PUBLICATIONS WHICH ARE AVAILABLE TO THE PUBLIC.CMTA ALSO MAINTAINS A WEBSITE FOR PATIENTS, THEIR FAMILIES AND MEDICAL PRACTITIONERS TO ASSIST IN UNDERSTANDING AND TREATING CHARCOT-MARIE-TOOTH DISEASE.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $4,074,711
Program Service Revenue $1,282,115
Investment Income $421,917
Other Revenue $0
TOTAL REVENUE $5,778,743

Expense Breakdown

Grants Paid $2,339,962
Salaries & Benefits $1,351,608
Fundraising Expenses $326,214
Program Expenses $5,145,398
Other Expenses $2,100,099
TOTAL EXPENSES $5,791,669

Year-over-Year Comparison

2024 2023 Change
Revenue $5,778,743 $5,761,508 +0.0%
Expenses $5,791,669 $6,291,966 -0.1%
Net Income $-12,926 $-530,458 -1.0%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Governance

Voting Members
17
Independent Members
17
Employees
13
Volunteers
125

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
5
$413,092
Total Directors
22
$311,016
Key Employees
0
$0
Highest Compensated
3
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
ALAN KOROWITZ BOARD MEMBER (THRU 2/24) 0.00
Director
$0 $0 $0
BERNARD COULIE BOARD MEMBER (EFF 2/24) 0.00
Director
$0 $0 $0
CRAIG ZELTSAR BOARD MEMBER 1.00
Director
$0 $0 $0
DAN CHAMBY BOARD MEMBER 1.00
Director
$0 $0 $0
DAVID APPLE BOARD MEMBER 1.00
Director
$0 $0 $0
DAVID COLDIRON BOARD MEMBER 1.00
Director
$0 $0 $0
DR MICHAEL SHY BOARD MEMBER 1.00
Director
$0 $0 $0
DR STEVEN SCHERER BOARD MEMBER 1.00
Director
$0 $0 $0
DR THOMAS DUBENSKY BOARD MEMBER 1.00
Director
$0 $0 $0
GARY J GASPER BOARD MEMBER 1.00
Director
$0 $0 $0
GILLES BOUCHARD CHAIRMAN 1.00
Officer Director
$0 $0 $0
HERBERT BERON SECRETARY 1.00
Officer Director
$0 $0 $0
JOHN SVAREN BOARD MEMBER 1.00
Director
$0 $0 $0
JON PASTOR BOARD MEMBER 1.00
Director
$0 $0 $0
KEVIN MARKS BOARD MEMBER (EFF 2/24) 1.00
Director
$0 $0 $0
KEVIN SAMI TREASURER 1.00
Officer Director
$0 $0 $0
PARTRICIA VERDUIN OHD BOARD MEMBER (EFF 4/24) 1.00
Director
$0 $0 $0
PHYLLIS SANDERS BOARD MEMBER (THRU 2/24) 1.00
Director
$0 $0 $0
SUZANNE BRUHN CHIEF EXECUTIVE OFFICER 40.00
Officer Director
$300,000 $11,016 $311,016
WENDY ARNONE BOARD MEMBER (EFF 3/24) 1.00
Director
$0 $0 $0
STEVEN O'DONNELL BOARD MEMBER (THRU 12/24) 1.00
Director
$0 $0 $0
DAVID NORCOM BOARD MEMBER (THRU 9/24) 1.00
Director
$0 $0 $0
KIMBERLY MAGEE DIRECOT OF FINANCE AND ADMIN 40.00
Officer
$98,400 $3,676 $102,076
JEANA SWEENEY CHIEF ENGAGEMENT AND GIFT OFFICER 40.00
Highest
$140,000 $5,515 $145,515
KATHERINE FORSEY CHIEF RESEARCH OFFICER 40.00
Highest
$125,404 $6,552 $131,956
LAUREL RICHARDSON DIRECTOR OF COMMUNITY OUTREACH 40.00
Highest
$101,520 $3,724 $105,244
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2025 No data No data No data No data
2024 $5,778,743 $5,791,669 $9,548,719 $-12,926
2024 $5,778,743 $5,791,669 $9,548,719 $-12,926
2023 $5,761,508 $6,291,966 $9,566,018 $-530,458
2022 $10,398,940 $6,545,390 $9,861,023 $3,853,550
2021 $5,168,679 $4,839,059 $6,028,701 $329,620
2020 $5,232,342 $3,903,750 $5,686,656 $1,328,592
2019 $4,754,217 $4,066,749 $4,348,541 $687,468
2018 $4,984,863 $3,150,332 $3,645,409 $1,834,531
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