EPILEPSY FOUNDATION NEW ENGLAND

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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year

1983

Legal Domicile

Principal Officer

SUSAN LINN

Phone

6175066041

Tax Period

2023-07-01 to 2024-06-30

EPILEPSY FOUNDATION NEW ENGLAND, founded in 1983, is a community nonprofit that reported $7.4M in total revenue in fiscal year 2023. Revenue grew 12% year-over-year, indicating healthy expansion. Expenses of $6.5M left a modest 12% surplus.

Mission

TO HELP PEOPLE AND FAMILIES AFFECTED BY EPILEPSY IN NEW ENGLAND. EFNE AIMS TO SERVE THE APPROXIMATELY 110,000 PEOPLE IN MAINE, MASSACHUSETTS, NEW HAMPSHIRE, RHODE ISLAND, AND VERMONT AFFECTED BY EPILEPSY AND THE PEOPLE WHO CARE FOR THEM. EFNE'S SERVICES ARE DESIGNED TO PROVIDE HELP FOR TODAY AND HOPE FOR TOMORROW.

Program Service Accomplishments

Program 1

Expenses: $1,848,287 Revenue: $4,728,646

FUNDING SUPPORT & DONATION CENTER: EFNE'S DONATION CENTER FUNDS EFNE'S MISSION TO IMPROVE THE LIVES OF PEOPLE LIVING WITH EPILEPSY. THE DONATION CENTER COLLECTS GENTLY USED CLOTHING AND HOUSEWARES TO BE RESOLD. EFNE WORKS TO PROVIDE CONNECTION AND RESOURCES TO PEOPLE LIVING WITH EPILEPSY, AND SHOWCASES ADVANCEMENTS IN THE TREATMENTS AND OTHER RESOURCES AVAILABLE FOR PEOPLE LIVING WITH EPILEPSY IN PARTNERSHIP WITH THE EPILEPSY FOUNDATION OF AMERICA. THIS INCLUDES SHOWCASING RESEARCH IN OUR COMMUNICATION AND HOLDING EVENTS TO ENGAGE HEALTH CARE PROVIDERS, CLIENTS, AND DONORS IN IMPROVING THE LIVES OF PEOPLE LIVING WITH EPILEPSY AND UNDERSTANDING RESEARCH IN EPILEPSY.

Program 2

Expenses: $2,120,155

RESOURCE AND SUPPORT SERVICES: EFNE PROVIDES EPILEPSY RESOURCE ROOMS IN ABOUT 13 HOSPITALS ACROSS NEW ENGLAND. THOUSANDS OF CLIENTS RECEIVE ACTIVE LISTENING AND MENTORING, EDUCATION, AND...

RESOURCE AND SUPPORT SERVICES: EFNE PROVIDES EPILEPSY RESOURCE ROOMS IN ABOUT 13 HOSPITALS ACROSS NEW ENGLAND. THOUSANDS OF CLIENTS RECEIVE ACTIVE LISTENING AND MENTORING, EDUCATION, AND INFO/REFERRALS. IN FISCAL YEAR 2024, EFNE PROVIDED ONE-TIME GRANTS OF $50-$1,000 TO 45 FAMILIES AFFECTED BY EPILEPSY AND IN FINANCIAL CRISIS. EFNE PROVIDES APPROXIMATELY 30 SUPPORT GROUPS PER MONTH, SERVING 400-500 PEOPLE PER YEAR. EFNE PROVIDES EDUCATIONAL PROGRAMS ABOUT EPILEPSY AND SEIZURE FIRST AID TO APPROXIMATELY 5,000 PEOPLE PER YEAR, INCLUDING SCHOOL CHILDREN, SCHOOL PERSONNEL, FIRST RESPONDERS, PARENTS AND THE GENERAL PUBLIC. WE MAINTAIN AN ONLINE KNOWLEDGE CENTER AND RESOURCE LIBRARY.

Program 3

Expenses: $700,631 Revenue: $2,345

YOUTH SERVICES: EFNE PROVIDES SLEEPAWAY AND DAY CAMPS EACH YEAR, SERVING 250-300 PARTICIPANTS. EFNE'S YOUNG LEADERS NETWORK ENGAGES TEENS AND YOUNG ADULTS IN SKILL-BUILDING AND SUPPORT THROUGH...

YOUTH SERVICES: EFNE PROVIDES SLEEPAWAY AND DAY CAMPS EACH YEAR, SERVING 250-300 PARTICIPANTS. EFNE'S YOUNG LEADERS NETWORK ENGAGES TEENS AND YOUNG ADULTS IN SKILL-BUILDING AND SUPPORT THROUGH MONTHLY MEETINGS AND COMMUNITY SERVICE. PARTICIPANTS RECEIVE MENTORING FROM STAFF, VOLUNTEERS, AMERICORPS MEMBERS, AND INTERNS. YOUNG ADULT RETREATS PROVIDE TRANSITION-AGE YOUTH WITH COMMUNITY BUILDING AND SKILLS AS THEY TRANSITION TO ADULTHOOD. KIDS CONNECT BUILDS COMMUNITY AND PROVIDES RECREATION FOR 200+ MIDDLE SCHOOL STUDENTS. HUNDREDS OF ONLINE VIRTUAL SUPPORT GROUPS AND MEET UPS PROVIDE SUPPORT TO OUR YOUTH. EFNE'S HOPE LION CAMPAIGN HAS REACHED 800+ FAMILIES TO PROVIDE SUPPORT, EDUCATION, AND COMMUNITY AS THEY MOVE THROUGH THEIR JOURNEY WITH EPILEPSY.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

Financial Overview (2023)

Revenue Breakdown

Contributions & Grants $2,529,180

Program Service Revenue $4,730,991

Investment Income $261,944

Other Revenue $-166,374

TOTAL REVENUE $7,355,741

Expense Breakdown

Grants Paid $214,592

Salaries & Benefits $4,080,539

Fundraising Expenses $1,010,787

Program Expenses $4,669,073

Other Expenses $2,160,226

TOTAL EXPENSES $6,455,357

Year-over-Year Comparison

	2023	2022	Change
Revenue	$7,355,741	$6,573,455	+0.1%
Expenses	$6,455,357	$5,905,898	+0.1%
Net Income	$900,384	$667,557	+0.3%

Key Indicators

✓ Grants to Organizations ✓ Grants to Individuals ✓ Lobbying ✗ Political Activity ✗ Foreign Activities ✗ Donor Advised Fund ✓ Schedule B Required

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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

Governance

Voting Members

Independent Members

Employees

125

Volunteers

145

Governance Policies

✓ Conflict of Interest Policy

✓ Whistleblower Policy

✓ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School

✗ Operated a Hospital

✗ Provided First Class Travel

⚠ Reported Conflict of Interest

✗ Reported Asset Diversion

✗ Excess Benefit Transaction

✗ Made Political Expenditures

✓ Engaged in Lobbying

✗ Operated Donor Advised Fund

✗ Maintained Art Collections

✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers

$545,071

Total Directors

Key Employees

Highest Compensated

reported

Name	Title	Hours/Week	Role	Reportable Comp	Other Comp	Total
SUSAN LINN	PRESIDENT & CEO - EFNE	50.00	Officer	$251,751	$19,781	$271,532
BRADLEY RICH	PRESIDENT - DC	0.00	Officer	$0	$8,436	$273,539
JEFFREY GANZ	CHIEF OPERATING OFFICER - EFNE	40.00	Highest	$117,171	$5,065	$122,236
JACQUELYN BREAULT	DIRECTOR OF OPERATIONS - DC	0.00	Highest	$0	$13,037	$113,520
AIMEE STEVENS	DIRECTOR	0.40	Director	$0	$0	$0
JASON BOURQUE	SECRETARY	0.40	Officer Director	$0	$0	$0
JENNIFER CARDILLO	DIRECTOR	0.40	Director	$0	$0	$0
BRETT DOWNING	DIRECTOR	0.40	Director	$0	$0	$0
MARC FIRENZE	VICE CHAIR	0.40	Officer Director	$0	$0	$0
PHILIP HAYDON PHD	DIRECTOR	0.40	Director	$0	$0	$0
JOHN GAITANIS MD	DIRECTOR	0.40	Director	$0	$0	$0
DARA FREEDMAN-WEISS	DIRECTOR	0.40	Director	$0	$0	$0
DON HOLMES	DIRECTOR	0.40	Director	$0	$0	$0
ALISON ZETTERQUIST	CHAIR	0.40	Officer Director	$0	$0	$0
TIM YOUNG	TREASURER	0.40	Officer Director	$0	$0	$0
TAMARA SACHARCZYK	DIRECTOR	0.40	Director	$0	$0	$0
IKA NOVIAWATY	DIRECTOR	0.40	Director	$0	$0	$0
KIMBERLEE SCHUMACHER	DIRECTOR	0.40	Director	$0	$0	$0
DARLENE WILSON	DIRECTOR	0.40	Director	$0	$0	$0
ANDREW COLE MD	DIRECTOR	1.50	Director	$0	$0	$0
STEVE SIRAVO	DIRECTOR	1.50	Director	$0	$0	$0
JOE SIRAVO	DIRECTOR	1.50	Director	$0	$0	$0

Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year	Revenue	Expenses	Assets	Net Income
2025	No data	No data	No data	No data
2024	$7,355,741	$6,455,357	$13,877,043	$900,384
2023	$6,573,455	$5,905,898	$10,402,302	$667,557
2022	$5,980,042	$4,674,503	$9,060,661	$1,305,539
2021	$6,402,351	$4,110,889	$9,132,602	$2,291,462
2020	$5,439,977	$4,917,110	$6,252,451	$522,867
2019	$6,054,061	$5,787,898	$5,569,131	$266,163
2018	$6,902,554	$6,314,386	$4,726,128	$588,168