NEUROFIBROMATOSIS MIDWEST

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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year

1981

Legal Domicile

Principal Officer

DIANA HABERKAMP

Phone

6309453562

Tax Period

2022-10-01 to 2023-09-30

NEUROFIBROMATOSIS MIDWEST, founded in 1981, is a small nonprofit in the Medical Research sector that reported $241K in total revenue in fiscal year 2022. Revenue grew 9% year-over-year, indicating healthy expansion.

Mission

TO IMPROVE THE LIVES OF CHILDREN, ADULTS, AND FAMILIES IMPACTED BY NEUROFIBROMATOSIS BY FOCUSING ON AND IMPROVING CLINICS, AWARENESS, RESEARCH, EDUCATION AND SUPPORT IN THE STATES OF ILLINOIS, INDIANA, IOWA, KENTUCKY, WISCONSIN, AND THE EASTERN HALF OF MISSOURI.

Program Service Accomplishments

Program 1

Expenses: $192,195

RESEARCH/CLINICS/IMPROVED CARE NEUROFIBROMATOSIS MIDWEST PROVIDES DIRECT GRANTS FOR RESEARCH AND RESEARCH SUPPORT. WE ALSO WORK WITH CLINICS IN OUR REGION TO IMPROVE CARE AND ACCESS TO CARE...

RESEARCH/CLINICS/IMPROVED CARE NEUROFIBROMATOSIS MIDWEST PROVIDES DIRECT GRANTS FOR RESEARCH AND RESEARCH SUPPORT. WE ALSO WORK WITH CLINICS IN OUR REGION TO IMPROVE CARE AND ACCESS TO CARE. ADDITIONALLY, WE WORK WITH THE NF COMMUNITY AND MANY OTHER RESOURCES ON ADDITIONAL PROGRAMS OR INITIATIVES TO IMPROVE THE QUALITY OF LIFE AND CARE FOR NF PATIENTS AND THEIR FAMILIES.

Program 2

Expenses: $13,000

SUPPORT/EDUCATION/AWARENESS NEUROFIBROMATOSIS MIDWEST PROVIDES EDUCATION TO INDIVIDUALS AND FAMILIES WITH NEUROFIBROMATOSIS, TO THE MEDICAL COMMUNITY AND TO THE PUBLIC THROUGH AN ANNUAL SYMPOSIUM...

SUPPORT/EDUCATION/AWARENESS NEUROFIBROMATOSIS MIDWEST PROVIDES EDUCATION TO INDIVIDUALS AND FAMILIES WITH NEUROFIBROMATOSIS, TO THE MEDICAL COMMUNITY AND TO THE PUBLIC THROUGH AN ANNUAL SYMPOSIUM; SMALLER LOCAL MEETINGS; AND PRINTED AND ONLINE MATERIALS. WE PROVIDE FREE PACKETS OF INFORMATION TO NEWLY DIAGNOSED FAMILIES AND PHONE AND ONLINE SUPPORT. AN ANNUAL GRANT IS PROVIDED TO SEND CHILDREN WITH NF TO CAMP. WE ALSO PROVIDE MATERIALS AND OPPORTUNITIES TO RAISE AWARENESS.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

Financial Overview (2022)

Revenue Breakdown

Contributions & Grants $230,293

Program Service Revenue $0

Investment Income $7,244

Other Revenue $3,686

TOTAL REVENUE $241,223

Expense Breakdown

Grants Paid $60,282

Salaries & Benefits $116,338

Fundraising Expenses $27,938

Program Expenses $205,195

Other Expenses $85,968

TOTAL EXPENSES $262,588

Year-over-Year Comparison

	2022	2021	Change
Revenue	$241,223	$220,690	+0.1%
Expenses	$262,588	$218,142	+0.2%
Net Income	$-21,365	$2,548	-9.4%

Key Indicators

✓ Grants to Organizations ✗ Grants to Individuals ✓ Lobbying ✗ Political Activity ✗ Foreign Activities ✗ Donor Advised Fund ✓ Schedule B Required

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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

Governance

Voting Members

Independent Members

Employees

Volunteers

Governance Policies

✗ Conflict of Interest Policy

✗ Whistleblower Policy

✗ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School

✗ Operated a Hospital

✗ Provided First Class Travel

✗ Reported Conflict of Interest

✗ Reported Asset Diversion

✗ Excess Benefit Transaction

✗ Made Political Expenditures

✓ Engaged in Lobbying

✗ Operated Donor Advised Fund

✗ Maintained Art Collections

✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers

Total Directors

Key Employees

Highest Compensated

reported

Name	Title	Hours/Week	Role	Reportable Comp	Other Comp	Total
DENISE DULCEAK	BOARD CHAIR	1.00	Officer Director	$0	$0	$0
DIANA HABERKAMP	EXECUTIVE DI	40.00	Officer Director	$0	$0	$0
GAIL MAVROGENES	BOARD MEMBER	1.00	Director	$0	$0	$0
ANDY RINGO	TREASURER	1.00	Officer Director	$0	$0	$0
LESLI WEGNER	VICE CHAIR	1.00	Officer Director	$0	$0	$0

Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year	Revenue	Expenses	Assets	Net Income
2024	No data	No data	No data	No data
2023	$241,223	$262,588	$293,598	$-21,365
2022	$220,690	$218,142	$317,579	$2,548
2021	$209,965	$175,928	$351,353	$34,037
2020	$179,571	$214,976	$332,706	$-35,405
2019	$257,121	$209,751	$350,786	$47,370
2018	$277,690	$323,157	$296,479	$-45,467