MASSACHUSETTS DOWN SYNDROME CONGRESS INC

EIN: 222596246 501(c)(3)

BURLINGTON, MA

Total Revenue
$4,754,653
Total Expenses
$2,585,087
Total Assets
$7,380,680
Net Assets
$6,635,619
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Financial Vulnerability Assessment (Tuckman-Chang)

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Financial Trends

Organization Details

Formation Year
1984
Legal Domicile
MA
Principal Officer
MAUREEN GALLAGHER
Phone
7812210024
Tax Period
2024-07-01 to 2025-06-30

MASSACHUSETTS DOWN SYNDROME CONGRESS INC, founded in 1984, is a community nonprofit that reported $4.8M in total revenue in fiscal year 2024. Revenue surged 126% from the prior year, signaling strong growth momentum. The organization ran a surplus of $2.2M, a strong 46% operating margin.

Mission

TO ENSURE INDIVIDUALS WITH DOWN SYNDROME IN MASSACHUSETTS ARE VALUED, INCLUDED, AND GIVEN THE OPPORTUNITIES TO PURSUE FULFILLING LIVES BY PROVIDING INFORMATION, NETWORKING OPPORTUNITIES, AND ADVOCACY FOR PEOPLE WITH DOWN SYNDROME AND THEIR FAMILIES, EDUCATORS, HEALTH CARE PROFESSIONALS, AND THE COMMUNITY-AT-LARGE.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $4,421,024
Program Service Revenue $201,406
Investment Income $146,730
Other Revenue $-14,507
TOTAL REVENUE $4,754,653

Expense Breakdown

Grants Paid $5,000
Salaries & Benefits $1,543,897
Fundraising Expenses $193,878
Program Expenses $2,162,398
Other Expenses $1,036,190
TOTAL EXPENSES $2,585,087

Year-over-Year Comparison

2024 2023 Change
Revenue $4,754,653 $2,102,829 +1.3%
Expenses $2,585,087 $2,478,621 +0.0%
Net Income $2,169,566 $-375,792 -6.8%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Liquidity & Cash Position

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Governance

Voting Members
16
Independent Members
16
Employees
14
Volunteers
N/A

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
5
$191,525
Total Directors
16
$0
Key Employees
0
$0
Highest Compensated
3
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
TAIESE BINGHAM HICKMAN DIRECTOR 2.00
Director
$0 $0 $0
JUDSON DECEW PERSONNEL COMMITTEE CHAIR 2.00
Officer Director
$0 $0 $0
JAMES MOLLA CHAIR OF AUDIT AND FINANCE 2.00
Officer Director
$0 $0 $0
ROXANNE HOKE-CHANDLER DIRECTOR 2.00
Director
$0 $0 $0
STACY LINDBORG CHAIR OF BOARD 2.00
Officer Director
$0 $0 $0
RICHARD FLEMING DIRECTOR 2.00
Director
$0 $0 $0
FRANCISCO ZAMUDIO DIRECTOR 2.00
Director
$0 $0 $0
SUSAN CANN DIRECTOR 2.00
Director
$0 $0 $0
DAVID GRANFORS DIRECTOR 2.00
Director
$0 $0 $0
JONATHAN TABASKY VICE CHAIR 2.00
Officer Director
$0 $0 $0
ROBERT MILLS DIRECTOR 2.00
Director
$0 $0 $0
STEPHANIE SANTORO DIRECTOR 2.00
Director
$0 $0 $0
CLARE GILLAN HUANG DIRECTOR 2.00
Director
$0 $0 $0
ADAM DELMOLINO DIRECTOR 2.00
Director
$0 $0 $0
DREW KELLER DIRECTOR 2.00
Director
$0 $0 $0
MARGARET VEN GELDER DIRECTOR 2.00
Director
$0 $0 $0
MAUREEN GALLAGHER EXECUTIVE DIRECTOR 40.00
Officer
$176,712 $14,813 $191,525
JOSHUA KOMYEROV COMMUNICATIONS & OP DIRECTOR 40.00
Highest
$127,716 $33,464 $161,180
SARAH CULLEN FAMILY SUPPORT DIRECTOR 40.00
Highest
$112,759 $32,850 $145,609
REAGHAN BIK DEVELOPMENT DIRECTOR 40.00
Highest
$108,127 $32,696 $140,823
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2025 $4,754,653 $2,585,087 $7,380,680 $2,169,566
2024 $2,102,829 $2,478,621 $4,943,861 $-375,792
2023 $2,115,140 $2,208,498 $5,190,411 $-93,358
2022 $4,347,914 $1,771,196 $4,722,413 $2,576,718
2021 $1,885,684 $1,523,881 $2,273,195 $361,803
2020 $1,576,607 $1,683,585 $1,704,808 $-106,978
2019 $2,255,246 $1,646,240 $1,880,583 $609,006
2018 $1,883,004 $1,623,786 $1,277,344 $259,218
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