THE MYELODYSPLASTIC SYNDROMES FOUNDATION

EIN: 223283911 501(c)(3) Diseases & Disorders

YARDVILLE, NJ

Total Revenue
$2,749,025
Total Expenses
$3,143,904
Total Assets
$5,216,502
Net Assets
$4,746,888
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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year
1999
Legal Domicile
NJ
Principal Officer
TRACEY A IRACA
Phone
8006370839
Tax Period
2023-01-01 to 2023-12-31

THE MYELODYSPLASTIC SYNDROMES FOUNDATION, founded in 1999, is a community nonprofit in the Diseases & Disorders sector that reported $2.7M in total revenue in fiscal year 2023. Revenue grew 9% year-over-year, indicating healthy expansion. Expenses of $3.1M exceeded revenue, resulting in a 14% operating deficit.

Mission

ESTABLISHED BY AN INTERNATIONAL GROUP OF PHYSICIANS AND RESEARCHERS TO PROVIDE AN ONGOING EXCHANGE OF INFORMATION RELATING TO MDS.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2023)

Revenue Breakdown

Contributions & Grants $1,558,359
Program Service Revenue $972,104
Investment Income $32,321
Other Revenue $186,241
TOTAL REVENUE $2,749,025

Expense Breakdown

Grants Paid $348,164
Salaries & Benefits $651,149
Fundraising Expenses $9,498
Program Expenses $3,048,668
Other Expenses $2,144,591
TOTAL EXPENSES $3,143,904

Year-over-Year Comparison

2023 2022 Change
Revenue $2,749,025 $2,521,375 +0.1%
Expenses $3,143,904 $2,174,159 +0.4%
Net Income $-394,879 $347,216 -2.1%
Key Indicators
✗ Grants to Organizations ✗ Grants to Individuals ✗ Lobbying ✗ Political Activity ✓ Foreign Activities ✗ Donor Advised Fund ✗ Schedule B Required
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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

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Governance

Voting Members
6
Independent Members
6
Employees
9
Volunteers
30

Governance Policies

✗ Conflict of Interest Policy
✗ Whistleblower Policy
✗ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School
✗ Operated a Hospital
✗ Provided First Class Travel
✗ Reported Conflict of Interest
✗ Reported Asset Diversion
✗ Excess Benefit Transaction
✗ Made Political Expenditures
✗ Engaged in Lobbying
✗ Operated Donor Advised Fund
✗ Maintained Art Collections
✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
4
$142,402
Total Directors
6
$0
Key Employees
0
$0
Highest Compensated
0
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
TRACEY A IRACA EXECUTIVE DI 40.00
Officer
$93,661 $0 $93,661
JANICE BUTCHKO SECRETARY 40.00
Officer
$48,741 $0 $48,741
SANDRA KURTIN PHD ANP-C AOCN TREASURER 4.00
Officer Director
$0 $0 $0
LUCA MALCOVATI MD BOARD MEMBER 4.00
Director
$0 $0 $0
MICHAEL R SAVONA MD BOARD MEMBER 4.00
Director
$0 $0 $0
PETER L GREENBERG MD BOARD MEMBER 4.00
Director
$0 $0 $0
STEPHEN D NIMER MD CHAIRMAN 4.00
Officer Director
$0 $0 $0
PIERRE FENAUX MD PHD BOARD MEMBER 4.00
Director
$0 $0 $0
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2024 No data No data No data No data
2023 $2,749,025 $3,143,904 $5,216,502 $-394,879
2023 No data No data No data No data
2022 $2,521,375 $2,174,159 $5,422,226 $347,216
2021 $4,660,616 $2,815,786 $5,238,327 $1,844,830
2020 $3,289,167 $2,011,416 $3,276,887 $1,277,751
2019 $2,910,023 $2,375,459 $1,973,323 $534,564
2018 $1,531,833 $1,198,934 $1,254,759 $332,899
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