WILLIAMS SYNDROME ASSOCIATION INC

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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year

1993

Legal Domicile

Principal Officer

SARAH GIDDINGS

Phone

2485090060

Tax Period

2023-01-01 to 2023-12-31

WILLIAMS SYNDROME ASSOCIATION INC, founded in 1993, is a community nonprofit in the Diseases & Disorders sector that reported $1.7M in total revenue in fiscal year 2023. Revenue fell 29% from the prior year — a significant decline worth monitoring. Expenses of $1.9M exceeded revenue, resulting in a 13% operating deficit.

Mission

TO ADVANCE THE INTERESTS OF ALL INDIVIDUALS WITH WILLIAMS SYNDROME THROUGHOUT THEIR LIFESPAN BY PROVIDING PROGRAMMING AND RESOURCES, SUPPORTING RESEARCH, PROMOTING PARTNERSHIPS AND CONNECTIONS, AND ENSURING THAT THE INFRASTRUCTURE OF THE ORGANIZATION HAS THE CAPACITY TO LEAD OUR COMMUNITY TOWARD ITS GOALS.

Program Service Accomplishments

Program 1

Expenses: $1,004,705 Revenue: $55,687

WE SUPPORT OUR MISSION BY:- PROVIDING INFORMATION AND EMOTIONAL SUPPORT TO INDIVIDUALS WITH CHARACTERISTICS OF WILLIAMS SYNDROME, THEIR FAMILIES, AND THE PROFESSIONALS WHO WORK WITH THEM- DEVELOPING PROGRAMS AND SERVICES TO HELP BUILD STRENGTHS AND MEET CHALLENGES FROM EARLY CHILDHOOD THROUGH ADULTHOOD- INCREASING PUBLIC AWARENESS AND UNDERSTANDING OF WILLIAMS SYNDROME, AND- ENCOURAGING AND SUPPORTING RESEARCH INTO A WIDE RANGE OF ISSUES RELATED TO WILLIAMS SYNDROME

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

Financial Overview (2023)

Revenue Breakdown

Contributions & Grants $1,697,193

Program Service Revenue $55,687

Investment Income $-63,057

Other Revenue $31,949

TOTAL REVENUE $1,721,772

Expense Breakdown

Grants Paid $131,205

Salaries & Benefits $1,043,900

Fundraising Expenses $467,443

Program Expenses $1,004,705

Other Expenses $765,266

TOTAL EXPENSES $1,940,371

Year-over-Year Comparison

	2023	2022	Change
Revenue	$1,721,772	$2,421,502	-0.3%
Expenses	$1,940,371	$2,351,418	-0.2%
Net Income	$-218,599	$70,084	-4.1%

Key Indicators

✓ Grants to Organizations ✗ Grants to Individuals ✗ Lobbying ✗ Political Activity ✗ Foreign Activities ✗ Donor Advised Fund ✓ Schedule B Required

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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

Governance

Voting Members

Independent Members

Employees

Volunteers

100

Governance Policies

✓ Conflict of Interest Policy

✓ Whistleblower Policy

✓ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School

✗ Operated a Hospital

✗ Provided First Class Travel

✗ Reported Conflict of Interest

✗ Reported Asset Diversion

✗ Excess Benefit Transaction

✗ Made Political Expenditures

✗ Engaged in Lobbying

✗ Operated Donor Advised Fund

✗ Maintained Art Collections

✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers

$195,968

Total Directors

Key Employees

Highest Compensated

reported

Name	Title	Hours/Week	Role	Reportable Comp	Other Comp	Total
CYNDRA COLE	PRESIDENT	5.00	Officer Director	$0	$0	$0
SCOTT OTTENHEIMER	TREASURER	5.00	Officer Director	$0	$0	$0
MATT BARTOW	SECRETARY	5.00	Officer Director	$0	$0	$0
MEREDITH GREENE	TRUSTEE	1.00	Director	$0	$0	$0
GIANNA MORELLO	TRUSTEE	1.00	Director	$0	$0	$0
KELLY WEI	TRUSTEE	1.00	Director	$0	$0	$0
BRENDAN LEMIEUX	TRUSTEE	1.00	Director	$0	$0	$0
ELLEN HOCH	TRUSTEE	1.00	Director	$0	$0	$0
CLANCEY HOPPER	TRUSTEE	1.00	Director	$0	$0	$0
AMY NUSSBAUM	TRUSTEE	1.00	Director	$0	$0	$0
AINE SMALLEY	VICE PRESIDENT	5.00	Officer Director	$0	$0	$0
REBEKAH PAGIS	TRUSTEE	1.00	Director	$0	$0	$0
BILL PALMER	TRUSTEE	1.00	Director	$0	$0	$0
AARON LOMBARD	TRUSTEE	1.00	Director	$0	$0	$0
JANETRICKS CHEBUKATI OKEYO	TRUSTEE	1.00	Director	$0	$0	$0
MARY VAN HANEGHAN	EXECUTIVE DIRECTOR	40.00	Officer	$171,903	$24,065	$195,968
JOE MANCINI	VP OF ADVANCEMENT	40.00	Highest	$108,458	$130	$108,588
SARAH GIDDINGS	VP OF PROGRAMS	40.00	Highest	$107,893	$13,162	$121,055

Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year	Revenue	Expenses	Assets	Net Income
2024	No data	No data	No data	No data
2023	$1,721,772	$1,940,371	$2,841,757	$-218,599
2022	$2,421,502	$2,351,418	$2,892,153	$70,084
2021	$1,472,394	$1,309,219	$3,106,665	$163,175
2020	$1,646,364	$1,007,372	$2,830,051	$638,992
2019	$1,918,427	$1,924,976	$2,349,384	$-6,549
2018	$1,721,623	$1,815,665	$2,092,938	$-94,042