CONGENITAL ADRENAL HYPERPLASIA RES… - Form 990 Financial Data

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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year

2000

Legal Domicile

Phone

9083640272

Tax Period

2025-01-01 to 2025-12-31

CONGENITAL ADRENAL HYPERPLASIA RESEARCH EDUCATION AND SUPPORT FOUNDATION, founded in 2000, is a community nonprofit in the Diseases & Disorders sector that reported $1.2M in total revenue in fiscal year 2025. Expenses of $1.1M left a modest 6% surplus.

Mission

CARES FOUNDATION IS A NONPROFIT ORGANIZATION COMMITTED TO IMPROVING THE LIVES OF FAMILIES AND INDIVIDUALS AFFECTED BY CONGENITAL ADRENAL HYPERPLASIA (CAH) THROUGH PROACTIVELY ADVANCING RESEARCH FOR A BETTER UNDERSTANDING OF CAH, BETTER TREATMENTS AND A CURE; EDUCATING THE PUBLIC AND HEALTHCARE PROFESSIONALS ABOUT ALL FORMS OF CAH; ADVOCATING FOR UNIVERSAL NEWBORN SCREENING; IMMEDIATE, APPROPRIATE EMERGENCY MEDICAL TREATMENT; AND COMPREHENSIVE LIFELONG CARE; AS WELL AS SUPPORT SERVICES AND RESOURCES VITAL TO THE CAH COMMUNITY WORLDWIDE.

Program Service Accomplishments

Program 1

Expenses: $201,000

Research/CCC: This CARES-designated Comprehensive Care Center provides a multi-disciplinary approach to treatment of the CAH patient throughout the lifecycle.

Program 2

Expenses: $135,936

FAMILY SUPPORT & EDUCATION PROVIDES EDUCATIONAL MATERIALS AND INFORMATION FOR LIVING WITH THE DAILY CHALLENGES OF CONGENITAL ADRENAL HYPERPLASIA (CAH). OUR TOOLS HELP THOSE AFFECTED BY CAH TO BETTER CARE AND ADVOCATE FOR THEMSELVES AND THEIR FAMILIES. OUR CONFERENCES ENABLE OUR COMMUNITY TO HAVE DIRECT ACCESS TO THE TOP EXPERTS IN THE COUNTRY AND PROVIDE OPPORTUNITES FOR CONNECTING WITH OTHERS.

Program 3

Expenses: $124,970

WARMLINE SUPPORT PROVIDES INDIVIDUALS AND PARENTS OF CHILDREN WITH CAH A ONE-ON-ONE SOURCE OF INFORMATION AND SUPPORT, WHICH INCLUDES PHYSICIAN AND RESOURCE REFERRALS, VIA TELEPHONE, EMAIL AND MAIL.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

Financial Overview (2025)

Revenue Breakdown

Contributions & Grants $628,182

Program Service Revenue $546,804

Investment Income $29,366

Other Revenue $0

TOTAL REVENUE $1,204,352

Expense Breakdown

Grants Paid $0

Salaries & Benefits $473,952

Fundraising Expenses $61,476

Program Expenses $941,549

Other Expenses $653,386

TOTAL EXPENSES $1,127,338

Year-over-Year Comparison

	2025	2024	Change
Revenue	$1,204,352	$1,249,094	0.0%
Expenses	$1,127,338	$1,067,120	+0.1%
Net Income	$77,014	$181,974	-0.6%

Key Indicators

✗ Grants to Organizations ✗ Grants to Individuals ✗ Lobbying ✗ Political Activity ✗ Foreign Activities ✗ Donor Advised Fund ✓ Schedule B Required

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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

Governance

Voting Members

Independent Members

Employees

Volunteers

Governance Policies

✗ Conflict of Interest Policy

✗ Whistleblower Policy

✗ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School

✗ Operated a Hospital

✗ Provided First Class Travel

✗ Reported Conflict of Interest

✗ Reported Asset Diversion

✗ Excess Benefit Transaction

✗ Made Political Expenditures

✗ Engaged in Lobbying

✗ Operated Donor Advised Fund

✗ Maintained Art Collections

✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers

Total Directors

Key Employees

Highest Compensated

reported

Name	Title	Hours/Week	Role	Reportable Comp	Other Comp	Total
DINA MATOS	EXECUTIVE DIRECTOR	40.00		$190,227	$0	$190,227
BEATRIZ PEREIRA	DIRECTOR FINANCE	40.00		$105,145	$0	$105,145
JESSICA MARGOLIES	Chair	10.00	Officer Director	$0	$0	$0
STACEY SHACKLEY	Trustee	5.00	Director	$0	$0	$0
KAREN BOGAARD	Secretary	10.00	Officer Director	$0	$0	$0
CARLOS DASILVA	Trustee	5.00	Director	$0	$0	$0
TIMOTHY ROBERTS	Trustee	5.00	Director	$0	$0	$0
LOUISE FLEMING PhD RN	Trustee	10.00	Director	$0	$0	$0
MICHELE BACUS	Trustee	5.00	Director	$0	$0	$0
GEORGE LIMBERT	Trustee	5.00	Director	$0	$0	$0
LESLEY HOLROYD	Vice Chair	10.00	Officer Director	$0	$0	$0
ALEXANDRA DUBOIS	IMM PAST CHAIR	10.00	Officer Director	$0	$0	$0
KATHERINE FOWLER	Trustee	5.00	Director	$0	$0	$0
MARIA MAEBIUS	Trustee	5.00	Director	$0	$0	$0
KEYSHA BERRY	Trustee	5.00	Director	$0	$0	$0
ALAN MACY	Trustee	5.00	Director	$0	$0	$0
BRIAN STAIR	Treasurer	10.00	Officer Director	$0	$0	$0
CHARLES JARMON	Trustee	5.00	Director	$0	$0	$0
ANNE NEUMANN	Trustee	5.00	Director	$0	$0	$0
JEFFREY PURNELL	Trustee	5.00	Director	$0	$0	$0
MARK KENNEDY	Trustee	5.00	Director	$0	$0	$0
RENEIKA LIGHTBOURNE	Trustee	5.00	Director	$0	$0	$0

Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year	Revenue	Expenses	Assets	Net Income
2025	$1,204,352	$1,127,338	$1,077,723	$77,014
2024	$1,249,094	$1,067,120	$968,862	$181,974
2023	$954,248	$915,118	$905,559	$39,130
2022	$894,090	$817,679	$754,496	$76,411
2021	$791,663	$565,562	$540,971	$226,101
2020	$515,759	$491,196	$372,968	$24,563
2019	$591,492	$614,005	$297,233	$-22,513
2018	$647,899	$639,420	$310,644	$8,479

CONGENITAL ADRENAL HYPERPLASIA RESEARCH EDUCATION AND SUPPORT FOUNDATION