CONGENITAL ADRENAL HYPERPLASIA RESEARCH EDUCATION AND SUPPORT FOUNDATION

EIN: 223755684 501(c)(3) Diseases & Disorders

UNION, NJ

Total Revenue
$1,204,352
Total Expenses
$1,127,338
Total Assets
$1,077,723
Net Assets
$899,515
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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year
2000
Legal Domicile
NJ
Phone
9083640272
Tax Period
2025-01-01 to 2025-12-31

CONGENITAL ADRENAL HYPERPLASIA RESEARCH EDUCATION AND SUPPORT FOUNDATION, founded in 2000, is a community nonprofit in the Diseases & Disorders sector that reported $1.2M in total revenue in fiscal year 2025. Expenses of $1.1M left a modest 6% surplus.

Mission

CARES FOUNDATION IS A NONPROFIT ORGANIZATION COMMITTED TO IMPROVING THE LIVES OF FAMILIES AND INDIVIDUALS AFFECTED BY CONGENITAL ADRENAL HYPERPLASIA (CAH) THROUGH PROACTIVELY ADVANCING RESEARCH FOR A BETTER UNDERSTANDING OF CAH, BETTER TREATMENTS AND A CURE; EDUCATING THE PUBLIC AND HEALTHCARE PROFESSIONALS ABOUT ALL FORMS OF CAH; ADVOCATING FOR UNIVERSAL NEWBORN SCREENING; IMMEDIATE, APPROPRIATE EMERGENCY MEDICAL TREATMENT; AND COMPREHENSIVE LIFELONG CARE; AS WELL AS SUPPORT SERVICES AND RESOURCES VITAL TO THE CAH COMMUNITY WORLDWIDE.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2025)

Revenue Breakdown

Contributions & Grants $628,182
Program Service Revenue $546,804
Investment Income $29,366
Other Revenue $0
TOTAL REVENUE $1,204,352

Expense Breakdown

Grants Paid $0
Salaries & Benefits $473,952
Fundraising Expenses $61,476
Program Expenses $941,549
Other Expenses $653,386
TOTAL EXPENSES $1,127,338

Year-over-Year Comparison

2025 2024 Change
Revenue $1,204,352 $1,249,094 0.0%
Expenses $1,127,338 $1,067,120 +0.1%
Net Income $77,014 $181,974 -0.6%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

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Governance

Voting Members
20
Independent Members
20
Employees
5
Volunteers
50

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
5
$0
Total Directors
20
$0
Key Employees
0
$0
Highest Compensated
0
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
DINA MATOS EXECUTIVE DIRECTOR 40.00
$190,227 $0 $190,227
BEATRIZ PEREIRA DIRECTOR FINANCE 40.00
$105,145 $0 $105,145
JESSICA MARGOLIES Chair 10.00
Officer Director
$0 $0 $0
STACEY SHACKLEY Trustee 5.00
Director
$0 $0 $0
KAREN BOGAARD Secretary 10.00
Officer Director
$0 $0 $0
CARLOS DASILVA Trustee 5.00
Director
$0 $0 $0
TIMOTHY ROBERTS Trustee 5.00
Director
$0 $0 $0
LOUISE FLEMING PhD RN Trustee 10.00
Director
$0 $0 $0
MICHELE BACUS Trustee 5.00
Director
$0 $0 $0
GEORGE LIMBERT Trustee 5.00
Director
$0 $0 $0
LESLEY HOLROYD Vice Chair 10.00
Officer Director
$0 $0 $0
ALEXANDRA DUBOIS IMM PAST CHAIR 10.00
Officer Director
$0 $0 $0
KATHERINE FOWLER Trustee 5.00
Director
$0 $0 $0
MARIA MAEBIUS Trustee 5.00
Director
$0 $0 $0
KEYSHA BERRY Trustee 5.00
Director
$0 $0 $0
ALAN MACY Trustee 5.00
Director
$0 $0 $0
BRIAN STAIR Treasurer 10.00
Officer Director
$0 $0 $0
CHARLES JARMON Trustee 5.00
Director
$0 $0 $0
ANNE NEUMANN Trustee 5.00
Director
$0 $0 $0
JEFFREY PURNELL Trustee 5.00
Director
$0 $0 $0
MARK KENNEDY Trustee 5.00
Director
$0 $0 $0
RENEIKA LIGHTBOURNE Trustee 5.00
Director
$0 $0 $0
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2025 $1,204,352 $1,127,338 $1,077,723 $77,014
2024 $1,249,094 $1,067,120 $968,862 $181,974
2023 $954,248 $915,118 $905,559 $39,130
2022 $894,090 $817,679 $754,496 $76,411
2021 $791,663 $565,562 $540,971 $226,101
2020 $515,759 $491,196 $372,968 $24,563
2019 $591,492 $614,005 $297,233 $-22,513
2018 $647,899 $639,420 $310,644 $8,479
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