THE BARTH SYNDROME FOUNDATION (EIN 223755704) - Form 990 Financial Analysis & Trantor Score

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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year

2000

Legal Domicile

Principal Officer

EMILY MILLIGAN

Phone

9143036323

Tax Period

2024-01-01 to 2024-12-31

THE BARTH SYNDROME FOUNDATION, founded in 2000, is a community nonprofit in the Philanthropy & Grantmaking sector that reported $1.9M in total revenue in fiscal year 2024. Revenue surged 45% from the prior year, signaling strong growth momentum. Net assets of $5.2M represent 32 months of operating reserves.

Mission

1)TO PROMOTE AWARENESS OF BARTH SYNDROME; 2) TO EDUCATE AND SUPPORT PHYSICIANS, RESEARCH CENTERS, AND ORGANIZATIONS ADDRESSING THE CAUSES, DIAGNOSIS, TREATMENTS AND CURE OF BARTH SYNDROME; AND 3) TO ASSIST IN THE SUPPORT OF THOSE SUFFERING FROM BARTH SYNDROME AND THEIR FAMILIES.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $1,674,742

Program Service Revenue $0

Investment Income $256,783

Other Revenue $9,362

TOTAL REVENUE $1,940,887

Expense Breakdown

Grants Paid $432,746

Salaries & Benefits $840,854

Fundraising Expenses $178,686

Program Expenses $1,731,297

Other Expenses $820,291

TOTAL EXPENSES $2,093,891

Year-over-Year Comparison

	2024	2023	Change
Revenue	$1,940,887	$1,334,806	+0.5%
Expenses	$2,093,891	$1,421,717	+0.5%
Net Income	$-153,004	$-86,911	+0.8%

Key Indicators

✓ Grants to Organizations ✓ Grants to Individuals ✗ Lobbying ✗ Political Activity ✓ Foreign Activities ✗ Donor Advised Fund ✓ Schedule B Required

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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

Governance

Voting Members

Independent Members

Employees

Volunteers

200

Governance Policies

✓ Conflict of Interest Policy

✓ Whistleblower Policy

✓ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School

✗ Operated a Hospital

✗ Provided First Class Travel

✗ Reported Conflict of Interest

✗ Reported Asset Diversion

✗ Excess Benefit Transaction

✗ Made Political Expenditures

✗ Engaged in Lobbying

✗ Operated Donor Advised Fund

✗ Maintained Art Collections

✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers

$248,133

Total Directors

Key Employees

Highest Compensated

reported

Name	Title	Hours/Week	Role	Reportable Comp	Other Comp	Total
BRUCE DEVELLE	BOARD MEMBER	2.00	Director	$0	$0	$0
JONATHAN STOKES	BOARD MEMBER	2.00	Director	$0	$0	$0
MEGAN BRANAGH	BOARD MEMBER	2.00	Director	$0	$0	$0
MICHELLE FLOREZ	BOARD MEMBER	2.00	Director	$0	$0	$0
NINA RUSSELL	BOARD MEMBER	2.00	Director	$0	$0	$0
PETER VAN LOO	BOARD MEMBER	2.00	Director	$0	$0	$0
MIRIAM GREENBERG	BOARD MEMBER	2.00	Director	$0	$0	$0
ANDREW BUDDEMEYER TERM 24	BOARD MEMBER	2.00	Director	$0	$0	$0
FLORENCE MANNES TERM 24	BOARD MEMBER	2.00	Director	$0	$0	$0
KATHERINE MCCURDY	CHAIR	2.00	Officer Director	$0	$0	$0
JAMES BAFFA	VICE CHAIR	2.00	Officer Director	$0	$0	$0
MARK GREENE	TREASURER	2.00	Officer Director	$0	$0	$0
BRANDI DAGUE	SECRETARY	2.00	Officer Director	$0	$0	$0
EMILY MILLIGAN	EXECUTIVE DIRECTOR	35.00	Officer	$227,314	$20,819	$248,133
LINDSAY MARJORAM	DIRECTOR OF RESEARCH	35.00	Highest	$174,980	$7,216	$182,196

Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year	Revenue	Expenses	Assets	Net Income
2024	$1,940,887	$2,093,891	$5,640,640	$-153,004
2023	$1,334,806	$1,421,717	$5,491,330	$-86,911
2022	$1,387,712	$1,367,327	$5,372,000	$20,385
2021	$1,563,641	$1,010,732	$5,986,941	$552,909
2020	$1,267,165	$1,001,933	$5,553,199	$265,232
2019	$1,135,762	$1,301,376	$4,993,243	$-165,614
2018	$2,291,095	$1,155,310	$4,750,350	$1,135,785

THE BARTH SYNDROME FOUNDATION