Illinois Spina Bifida Association

EIN: 237062317 501(c)(3) Diseases & Disorders

Chicago, IL

Total Revenue
$268,679
Total Expenses
$294,975
Total Assets
$385,729
Net Assets
$363,748
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Financial Vulnerability Assessment (Tuckman-Chang)

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Financial Trends

Organization Details

Formation Year
1969
Legal Domicile
IL
Principal Officer
Rebecca Rupnick
Phone
7734440305
Tax Period
2023-01-01 to 2023-12-31

Illinois Spina Bifida Association, founded in 1969, is a small nonprofit in the Diseases & Disorders sector that reported $269K in total revenue in fiscal year 2023.

Mission

An organization that works to improve the quality of life of children, adults, and families living with spina bifida, a lifelong neurological condition that affects the spine and is usually apparent at birth. ISBA works to accomplish its mission with a three-part strategy.

Program Service Accomplishments

Program 1
Expenses: $77,794 Revenue: $3,971

Promote Skills Development and Independence: Through executive functioning coaching and vocational rehabilitation programs, ISBA helped 52 children, teens, and adults with skills, strategies, and...

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Promote Skills Development and Independence: Through executive functioning coaching and vocational rehabilitation programs, ISBA helped 52 children, teens, and adults with skills, strategies, and tools needed to pursue their academic, driving, and employment goals.Since 2016, annual GoBabyGo workshops have provided custom electric ride-on cars to 102 children to empower greater mobility and independence.The Community-Clinic Connection program has worked on more than 1,425 individualized coaching and referral cases since 2017. ISBA helps people find medical care, navigate benefits, access community resources, and maintain basic needs.

Program 2
Expenses: $68,349

Support Individuals and Families Through Outreach, Education, and Advocacy: ISBA has built a statewide network of more than 1000 people living with spina bifida through community events, virtual...

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Support Individuals and Families Through Outreach, Education, and Advocacy: ISBA has built a statewide network of more than 1000 people living with spina bifida through community events, virtual groups, and outreach at hospital outpatient clinics.ISBA has partnerships with Shriners Children's Chicago, where ISBA is co-located, as well as with Ann & Robert H. Lurie Children's Hospital of Chicago, Loyola Medicine, The UChicago Medicine Margaret Hackett Family Program, and OSF HealthCare in Peoria.Education advocacy and legislative advocacy help ensure that people of all ages with spina bifida receive the services they need.

Program 3
Expenses: $50,916

Invest in People Through Targeted Financial Assistance: ISBA provided financial assistance for medical expenses and equipment, scholarships, camp, adaptive sports, and emergency needs.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2023)

Revenue Breakdown

Contributions & Grants $246,689
Program Service Revenue $3,971
Investment Income $18,019
Other Revenue $0
TOTAL REVENUE $268,679

Expense Breakdown

Grants Paid $41,543
Salaries & Benefits $186,314
Fundraising Expenses $38,558
Program Expenses $197,059
Other Expenses $67,118
TOTAL EXPENSES $294,975

Year-over-Year Comparison

2023 2022 Change
Revenue $268,679 $282,397 0.0%
Expenses $294,975 $255,260 +0.2%
Net Income $-26,296 $27,137 -2.0%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Governance

Voting Members
11
Independent Members
11
Employees
12
Volunteers
100

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
6
$88,556
Total Directors
15
$0
Key Employees
0
$0
Highest Compensated
0
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
Rebecca Rupnick Chairperson 8.00
Officer Director
$0 $0 $0
Kevin Dam Vice Chair 4.00
Officer Director
$0 $0 $0
James Marks Treasurer 4.00
Officer Director
$0 $0 $0
Paul Gerber Secretary 4.00
Officer Director
$0 $0 $0
Jessica Barclay Director 2.00
Director
$0 $0 $0
Meredith Barnes Director resigned 2023 2.00
Director
$0 $0 $0
Chris Byrne Director 2.00
Director
$0 $0 $0
Patrick Flood Director resigned 2023 2.00
Director
$0 $0 $0
Mary Jo Grill Director 2.00
Director
$0 $0 $0
Erika Holliday Director 2.00
Director
$0 $0 $0
Blanca Jara Director 2.00
Director
$0 $0 $0
Jeremy Meinhardt Director resigned 2023 2.00
Officer Director
$0 $0 $0
Nathan Parris Director 2.00
Director
$0 $0 $0
Chapin Scheumann Director resigned 2023 2.00
Director
$0 $0 $0
Derek Snyder Director 2.00
Director
$0 $0 $0
Matt Larsen Executive Director 40.00
Officer
$83,120 $5,436 $88,556
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2024 No data No data No data No data
2023 $268,679 $294,975 $385,729 $-26,296
2022 $282,397 $255,260 $400,544 $27,137
2021 $265,951 $247,367 $384,566 $18,584
2020 $231,816 $264,018 $382,703 $-32,202
2019 $295,665 $264,414 $391,925 $31,251
2018 $286,540 $273,448 $352,752 $13,092
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