OSTEOGENESIS IMPERFECTA FOUNDATION

EIN: 237076021 501(c)(3) Medical Research

GAITHERSBURG, MD

Total Revenue
$2,607,851
Total Expenses
$2,627,305
Total Assets
$1,660,457
Net Assets
$1,367,833
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Financial Vulnerability Assessment (Tuckman-Chang)

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Financial Trends

Organization Details

Formation Year
1970
Legal Domicile
GA
Principal Officer
TRACY SMITH HART
Phone
3019470083
Tax Period
2024-07-01 to 2025-06-30

OSTEOGENESIS IMPERFECTA FOUNDATION, founded in 1970, is a community nonprofit in the Medical Research sector that reported $2.6M in total revenue in fiscal year 2024. Revenue grew 15% year-over-year, indicating healthy expansion.

Mission

OSTEOGENESIS IMPERFECTA FOUNDATION, INC. (THE FOUNDATION OR OIF) IS A GEORGIA NON-STOCK CORPORATION INCORPORATED IN 1970 WITH THE PRIMARY PURPOSE OF IMPROVING THE QUALITY OF LIFE FOR PEOPLE AFFECTED BY THE BONE DISORDER OSTEOGENESIS IMPERFECTA (OI) THROUGH RESEARCH INTO TREATMENTS AND A CURE, EDUCATION, AWARENESS, AND MUTUAL SUPPORT. THE FOUNDATION'S HEADQUARTERS ARE LOCATED IN GAITHERSBURG, MARYLAND.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $2,137,240
Program Service Revenue $215,927
Investment Income $309,216
Other Revenue $-54,532
TOTAL REVENUE $2,607,851

Expense Breakdown

Grants Paid $388,702
Salaries & Benefits $1,341,753
Fundraising Expenses $206,071
Program Expenses $2,037,443
Other Expenses $896,850
TOTAL EXPENSES $2,627,305

Year-over-Year Comparison

2024 2023 Change
Revenue $2,607,851 $2,271,920 +0.1%
Expenses $2,627,305 $2,451,085 +0.1%
Net Income $-19,454 $-179,165 -0.9%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Liquidity & Cash Position

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Governance

Voting Members
15
Independent Members
15
Employees
13
Volunteers
53

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
7
$245,422
Total Directors
15
$0
Key Employees
0
$0
Highest Compensated
1
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
CHRISTINE WYMAN ROSSI PRESIDENT 2.00
Officer Director
$0 $0 $0
KARA B AYERS VICE PRESIDENT 2.00
Officer Director
$0 $0 $0
KENNETH FINKEL VICE PRESIDENT 2.00
Officer Director
$0 $0 $0
MICHELLE FYNAN VICE PRESIDENT 2.00
Officer Director
$0 $0 $0
JAMES SHARPLES TREASURER 2.00
Officer Director
$0 $0 $0
KAREN BRAITMAYER SECRETARY 2.00
Officer Director
$0 $0 $0
JULIE HOCKER BOARD MEMBER 2.00
Director
$0 $0 $0
BILLY HUANG BOARD MEMBER 2.00
Director
$0 $0 $0
TONY JACOBSEN BOARD MEMBER 2.00
Director
$0 $0 $0
CINDY MEDINA BOARD MEMBER 2.00
Director
$0 $0 $0
WENDY E SACKS BOARD MEMBER 2.00
Director
$0 $0 $0
MICHAEL SHERIDAN BOARD MEMBER 2.00
Director
$0 $0 $0
V REID SUTTON BOARD MEMBER 2.00
Director
$0 $0 $0
EMILY F VOORDE BOARD MEMBER 2.00
Director
$0 $0 $0
SCOTT WALLS BOARD MEMBER 2.00
Director
$0 $0 $0
TRACY SMITH HART CHIEF EXECUTIVE OFFICER 40.00
Officer
$215,284 $30,138 $245,422
KATHERINE E CARTER CHIEF PROGRAM OFFICER 40.00
Highest
$135,886 $6,904 $142,790
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2025 $2,607,851 $2,627,305 $1,660,457 $-19,454
2024 $2,271,920 $2,451,085 $2,125,391 $-179,165
2023 $2,214,512 $2,085,298 $2,346,165 $129,214
2022 $2,112,061 $2,287,948 $2,054,090 $-175,887
2021 $1,897,607 $1,624,284 $2,230,527 $273,323
2020 $1,544,189 $1,643,730 $1,745,584 $-99,541
2019 $1,835,341 $2,109,750 $1,768,258 $-274,409
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