RETT SYNDROME RESEARCH TRUST INC (EIN 260687439) - Form 990 Financial Analysis & Trantor Score

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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year

2007

Legal Domicile

Principal Officer

MONICA COENRAADS

Phone

2034450041

Tax Period

2025-01-01 to 2025-12-31

RETT SYNDROME RESEARCH TRUST INC, founded in 2007, is a community nonprofit in the Health Care sector that reported $8.7M in total revenue in fiscal year 2025. Revenue decreased 7% compared to the prior year. Expenses of $8.2M left a modest 5% surplus.

Mission

THE ORGANIZATION'S MISSION IS FOCUSED ON THE DEVELOPMENT OF TREATMENTS AND CURES FOR RETT SYNDROME AND RELATED MECP2 DISORDERS.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

Financial Overview (2025)

Revenue Breakdown

Contributions & Grants $7,938,233

Program Service Revenue $195,455

Investment Income $544,692

Other Revenue $0

TOTAL REVENUE $8,678,380

Expense Breakdown

Grants Paid $5,375,683

Salaries & Benefits $1,187,686

Fundraising Expenses $717,939

Program Expenses $7,367,305

Other Expenses $1,675,980

TOTAL EXPENSES $8,239,349

Year-over-Year Comparison

	2025	2024	Change
Revenue	$8,678,380	$9,307,309	-0.1%
Expenses	$8,239,349	$11,731,465	-0.3%
Net Income	$439,031	$-2,424,156	-1.2%

Key Indicators

✓ Grants to Organizations ✗ Grants to Individuals ✗ Lobbying ✗ Political Activity ✓ Foreign Activities ✗ Donor Advised Fund ✓ Schedule B Required

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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

Governance

Voting Members

Independent Members

Employees

Volunteers

N/A

Governance Policies

✓ Conflict of Interest Policy

✓ Whistleblower Policy

✓ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School

✗ Operated a Hospital

✗ Provided First Class Travel

✗ Reported Conflict of Interest

✗ Reported Asset Diversion

✗ Excess Benefit Transaction

✗ Made Political Expenditures

✗ Engaged in Lobbying

✗ Operated Donor Advised Fund

✗ Maintained Art Collections

✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers

$220,000

Total Directors

$220,000

Key Employees

$655,000

Highest Compensated

reported

Name	Title	Hours/Week	Role	Reportable Comp	Other Comp	Total
ADRIAN BIRD	TRUSTEE	2.00	Director	$0	$0	$0
ALBA TULL	TRUSTEE	2.00	Director	$0	$0	$0
AMY GILLIAND	TRUSTEE	2.00	Director	$0	$0	$0
BRAD ZELINGER	TRUSTEE	2.00	Director	$0	$0	$0
BRIAN WHITMER	TRUSTEE	2.00	Director	$0	$0	$0
HEIDI EPSTEIN	VICE CHAIRMAN	2.00	Officer Director	$0	$0	$0
INGRID HARDING	CO-FOUNDER AND TRUSTEE	2.00	Director	$0	$0	$0
LAWRENCE MATTIS	SECRETARY	2.00	Officer Director	$0	$0	$0
MARCI VALNER	TREASURER	2.00	Officer Director	$0	$0	$0
MONICA COENRAADS	CHIEF EXECUTIVE OFFICER	50.00	Officer Director	$220,000	$0	$220,000
RACHAEL STEVENSON	TRUSTEE	2.00	Director	$0	$0	$0
RACHEL ROTHSCHILD	TRUSTEE	2.00	Director	$0	$0	$0
STEPHANIE BOHN	TRUSTEE	2.00	Director	$0	$0	$0
ANTHONY P SCHOENER	CHAIRMAN	2.00	Officer Director	$0	$0	$0
JANA SE VON HEHN	CHIEF SCIENTIFIC OFFICER	50.00	Key Emp	$220,000	$0	$220,000
ROBERT DEANS	CHIEF TECHNOLOGY OFFICER	50.00	Key Emp	$215,000	$0	$215,000
TIMOTHY J FREEMAN	CHIEF DEVELOPMENT OFFICER	50.00	Key Emp	$220,000	$0	$220,000

Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year	Revenue	Expenses	Assets	Net Income
2025	$8,678,380	$8,239,349	$20,833,981	$439,031
2024	$9,307,309	$11,731,465	$20,356,580	$-2,424,156
2023	$8,523,815	$12,338,304	$18,457,084	$-3,814,489
2022	$7,097,993	$4,042,165	$14,883,080	$3,055,828
2021	$8,124,811	$4,739,121	$13,582,017	$3,385,690
2020	$14,024,428	$3,066,720	$11,977,275	$10,957,708
2019	$8,515,113	$10,665,107	$9,801,315	$-2,149,994
2018	$9,664,180	$11,377,192	$11,319,755	$-1,713,012

RETT SYNDROME RESEARCH TRUST INC