NEW JERSEY RETT SYNDROME ASSOCIATIO (EIN 261359425) - Form 990 Financial Analysis & Trantor Score

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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year

2007

Legal Domicile

Principal Officer

ROBIN DIAMOND

Phone

9082040106

Tax Period

2022-07-01 to 2023-06-30

NEW JERSEY RETT SYNDROME ASSOCIATIO, founded in 2007, is a micro nonprofit in the Medical Research sector that reported $21K in total revenue in fiscal year 2022. Revenue fell 62% from the prior year — a significant decline worth monitoring. Expenses of $46K exceeded revenue, resulting in a 113% operating deficit.

Mission

TO INCREASE PUBLIC UNDERSTANDING OF RETT SYNDROME, ITS NATURE AND TREATMENT; TO RESEARCH RETT SYNDROME AND REDUCE THE STIGMA OF THE SAME BY MEANS OF EDUCATION OF THE COMMUNITY CONCERNING RETT SYNDROME AS A DISEASE AND PUBLIC HEALTH PROBLEM; TO MAINTAIN A RETT SYNDROME.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

Financial Overview (2022)

Revenue Breakdown

Contributions & Grants $21,485

Program Service Revenue $0

Investment Income $0

Other Revenue $0

TOTAL REVENUE $21,485

Expense Breakdown

Grants Paid $42,000

Salaries & Benefits $0

Fundraising Expenses $0

Program Expenses $42,000

Other Expenses $3,829

TOTAL EXPENSES $45,829

Year-over-Year Comparison

	2022	2021	Change
Revenue	$21,485	$56,958	-0.6%
Expenses	$45,829	$62,199	-0.3%
Net Income	$-24,344	$-5,241	+3.6%

Key Indicators

✓ Grants to Organizations ✗ Grants to Individuals ✗ Lobbying ✗ Political Activity ✗ Foreign Activities ✗ Donor Advised Fund ✗ Schedule B Required

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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

Governance

Voting Members

N/A

Independent Members

N/A

Employees

N/A

Volunteers

N/A

Governance Policies

✗ Conflict of Interest Policy

✗ Whistleblower Policy

✗ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School

✗ Operated a Hospital

✗ Provided First Class Travel

✗ Reported Conflict of Interest

✗ Reported Asset Diversion

✗ Excess Benefit Transaction

✗ Made Political Expenditures

✗ Engaged in Lobbying

✗ Operated Donor Advised Fund

✗ Maintained Art Collections

✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers

Total Directors

Key Employees

Highest Compensated

reported

Name	Title	Hours/Week	Role	Reportable Comp	Other Comp	Total
CARLA BENETATOS	TRUSTEE	5.00	Director	$0	$0	$0
ROBIN DIAMOND	TREASURER	20.00	Officer Director	$0	$0	$0
LESLIE GREENFIELD	EXEC. DIRECT	20.00	Officer Director	$0	$0	$0
CARL RASO MD	TRUSTEE	20.00	Director	$0	$0	$0
STEVE MEDLIN	TRUSTEE	5.00	Director	$0	$0	$0
GERARD SAYDAH	TRUSTEE	5.00	Director	$0	$0	$0

Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year	Revenue	Expenses	Assets	Net Income
2025	No data	No data	No data	No data
2024	No data	No data	No data	No data
2023	$21,485	$45,829	$39,074	$-24,344
2022	$56,958	$62,199	$63,418	$-5,241
2021	$55,470	$74,873	$68,659	$-19,403

NEW JERSEY RETT SYNDROME ASSOCIATIO