CURE CMD

EIN: 262640975 501(c)(3) Medical Research

LAKEWOOD, CA

Total Revenue
$579,330
Total Expenses
$611,323
Total Assets
$546,128
Net Assets
$239,933
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Financial Vulnerability Assessment (Tuckman-Chang)

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Financial Trends

Organization Details

Formation Year
2008
Legal Domicile
MN
Phone
9135226993
Tax Period
2023-01-01 to 2023-12-31

CURE CMD, founded in 2008, is a small nonprofit in the Medical Research sector that reported $579K in total revenue in fiscal year 2023. Revenue fell 46% from the prior year — a significant decline worth monitoring.

Mission

Cure CMDs mission is to advance research toward treatments for the congenital muscular dystrophies and empower those living with CMD through engagement and support of our community.

Program Service Accomplishments

Program 1
Expenses: $161,555 Revenue: $10,000

Outreach & Education - While we work with the research community to identify a pipeline of future treatments for the congenital muscular dystrophies Cure CMD supports the affected community where...

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Outreach & Education - While we work with the research community to identify a pipeline of future treatments for the congenital muscular dystrophies Cure CMD supports the affected community where they are today through a variety of supportive content and connections that are responsive to the their needs and giving them a prominent voice in determining Cure CMDs priorities and future programming. We host the CMD Scientific and Family Conference SciFam: scifam.info bringing together stakeholders from around the world to learn share and interrogate research progress. We host an ongoing webinar series that explores topics relevant to those living with or caring for someone with CMD. We host online support groups and other opportunities for community members to connect and share their experiences. Our Legislative Advocacy Team forges a path for community members to share their story and their needs with local state and federal policy makers. And our Executive and Scientific Directors provide 1:1 support for those newly diagnosed and struggling to understand where they should begin to ensure their affected loved one has the best possible quality of life. These are just some of the opportunities we offer to support those living with CMD and will continue to evolve our programming to best serve the communitys ever-changing needs.

Program 2
Expenses: $50,803 Revenue: $0

Patient Registry - Cure CMD is the administrator of the Congenital Muscle Disease International Registry CMDIR the largest database of congenital muscle disease CMD affected individuals. Our goal is...

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Patient Registry - Cure CMD is the administrator of the Congenital Muscle Disease International Registry CMDIR the largest database of congenital muscle disease CMD affected individuals. Our goal is to achieve global registration of the CMD community and serve as the central hub for up to date information regarding clinical studies and trials expert diagnostics and care and resources to educate affected individuals families and caregivers. Through the CMDIR the CMD community has a home a place to register - with or without genetic confirmation - and a means by which to be notified about news resources and opportunities to participate in clinical trials. The data collected and information provided has been developed with the review direction and advice of research and clinical experts affected individuals and caregivers and industry and government representatives in an effort to create a meaningful tool designed to drive the community toward treatments. The team behind the CMDIR continues to refine and perfect this tool in constant evolution to best serve the needs of the CMD stakeholder community.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2023)

Revenue Breakdown

Contributions & Grants $559,923
Program Service Revenue $0
Investment Income $19,407
Other Revenue $0
TOTAL REVENUE $579,330

Expense Breakdown

Grants Paid $101,074
Salaries & Benefits $407,826
Fundraising Expenses $92,812
Program Expenses $411,529
Other Expenses $102,423
TOTAL EXPENSES $611,323

Year-over-Year Comparison

2023 2022 Change
Revenue $579,330 $1,065,492 -0.5%
Expenses $611,323 $1,503,582 -0.6%
Net Income $-31,993 $-438,090 -0.9%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Governance

Voting Members
14
Independent Members
13
Employees
6
Volunteers
5

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
5
$100,806
Total Directors
14
$100,806
Key Employees
0
$0
Highest Compensated
1
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
Robert Sunris President 5.00
Officer Director
$0 $0 $0
Eunice Kim Vice President 5.00
Officer Director
$0 $0 $0
Rachel Alvarez Executive Director Secretary 40.00
Officer Director
$100,806 $0 $100,806
Hilary Dover Treasurer 0.00
Officer Director
$0 $0 $0
Jeff Rowbottom Board Member 0.00
Director
$0 $0 $0
Dr John Day Board Member 0.00
Director
$0 $0 $0
Dr Oscar H Mayer Board Member 0.00
Director
$0 $0 $0
Dr Carla Grossman Board Member 0.00
Director
$0 $0 $0
Mark Beare Board Member 0.00
Director
$0 $0 $0
Tim Knutson Board Member 0.00
Director
$0 $0 $0
Dr Jodi Wolff Board Member 0.00
Director
$0 $0 $0
Mindy Roberts Board Member 0.00
Director
$0 $0 $0
Gustavo Dziewczapolski Scientific Director 40.00
Highest
$120,381 $0 $120,381
Patrick May Former Treasrer 0.00
Officer Director
$0 $0 $0
Anthony Parisi Board Member 0.00
Director
$0 $0 $0
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2024 No data No data No data No data
2023 $579,330 $611,323 $546,128 $-31,993
2023 $579,330 $611,323 $546,128 $-31,993
2022 $1,065,492 $1,503,582 $848,970 $-438,090
2022 $1,065,492 $1,503,582 $848,970 $-438,090
2021 $587,488 $593,976 $883,165 $-6,488
2020 $779,559 $855,610 $783,847 $-76,051
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