BEYOND BATTEN DISEASE FOUNDATION

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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year

2008

Legal Domicile

Principal Officer

MARY BETH KISER

Phone

5122752600

Tax Period

2024-07-01 to 2025-06-30

BEYOND BATTEN DISEASE FOUNDATION, founded in 2008, is a small nonprofit in the Education sector that reported $306K in total revenue in fiscal year 2024. Revenue fell 43% from the prior year — a significant decline worth monitoring. Expenses of $893K exceeded revenue, resulting in a 192% operating deficit.

Mission

TO ERADICATE JUVENILE BATTEN DISEASE BY RAISING AWARENESS AND FUNDS FOR RESEARCH TO FIND A TREATMENT OR CURE.

Program Service Accomplishments

Program 1

Expenses: $722,421 Revenue: $0

TO ACCELERATE THE DISCOVERY AND DEVELOPMENT OF MEDICINES TO PREVENT, TREAT AND CURE JUVENILE BATTEN DISEASE. THIS IS DONE THROUGH GRANTING FUNDS AND CONTRACTING SERVICES WITH ACADEMIC INSTITUTIONS...

TO ACCELERATE THE DISCOVERY AND DEVELOPMENT OF MEDICINES TO PREVENT, TREAT AND CURE JUVENILE BATTEN DISEASE. THIS IS DONE THROUGH GRANTING FUNDS AND CONTRACTING SERVICES WITH ACADEMIC INSTITUTIONS, BIOTECHNOLOGY COMPANIES, AND OTHER ORGANIZATIONS WITH THE CAPACITY TO ASSIST IN ACHIEVING OUR GOALS. THE FOUNDATION ALSO SPEARHEADS THE DEVELOPMENT OF THINK-TANK CONFERENCES AND UNIQUE PARTNERSHIPS TO DRIVE JUVENILE BATTEN DISEASE RESEARCH.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $295,881

Program Service Revenue $0

Investment Income $37,250

Other Revenue $-27,068

TOTAL REVENUE $306,063

Expense Breakdown

Grants Paid $0

Salaries & Benefits $0

Fundraising Expenses $10,821

Program Expenses $722,421

Other Expenses $892,974

TOTAL EXPENSES $892,974

Year-over-Year Comparison

	2024	2023	Change
Revenue	$306,063	$538,315	-0.4%
Expenses	$892,974	$1,116,750	-0.2%
Net Income	$-586,911	$-578,435	+0.0%

Key Indicators

✗ Grants to Organizations ✗ Grants to Individuals ✗ Lobbying ✗ Political Activity ✗ Foreign Activities ✗ Donor Advised Fund ✓ Schedule B Required

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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

Governance

Voting Members

Independent Members

Employees

N/A

Volunteers

Governance Policies

✗ Conflict of Interest Policy

✗ Whistleblower Policy

✗ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School

✗ Operated a Hospital

✗ Provided First Class Travel

✗ Reported Conflict of Interest

✗ Reported Asset Diversion

✗ Excess Benefit Transaction

✗ Made Political Expenditures

✗ Engaged in Lobbying

✗ Operated Donor Advised Fund

✗ Maintained Art Collections

✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers

Total Directors

Key Employees

Highest Compensated

reported

Name	Title	Hours/Week	Role	Reportable Comp	Other Comp	Total
T CRAIG BENSON	BOARD CHAIR	20.00	Officer Director	$0	$0	$0
MARY BETH KISER	PRESIDENT/CEO AND SECRETARY	40.00	Officer	$0	$0	$0
JEFF HUNT	DIRECTOR	4.00	Director	$0	$0	$0
SABRINA BROWN	DIRECTOR	4.00	Director	$0	$0	$0
WAYNE HERNDON	DIRECTOR	4.00	Director	$0	$0	$0
WILL MURPHY	DIRECTOR	4.00	Director	$0	$0	$0
CAROLINE GOODNER	DIRECTOR	4.00	Director	$0	$0	$0
STEVEN SILBER MD	DIRECTOR	4.00	Director	$0	$0	$0
JONATHAN FEIFS	DIRECTOR	4.00	Director	$0	$0	$0
MARK CHANDLER	DIRECTOR EMERITUS	4.00	Director	$0	$0	$0

Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year	Revenue	Expenses	Assets	Net Income
2025	$306,063	$892,974	$1,859,709	$-586,911
2024	$538,315	$1,116,750	$2,121,193	$-578,435
2023	$1,028,636	$1,036,148	$3,231,365	$-7,512
2022	$1,219,815	$1,220,690	$3,581,583	$-875
2021	$908,445	$665,343	$3,773,556	$243,102
2020	$2,176,365	$1,834,553	$3,864,609	$341,812
2019	$4,640,638	$1,580,631	$3,529,982	$3,060,007