GLOBAL GENES

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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year

2008

Legal Domicile

Principal Officer

CHARLENE SON RIGBY

Phone

9492487273

Tax Period

2023-01-01 to 2023-12-31

GLOBAL GENES, founded in 2008, is a community nonprofit in the Diseases & Disorders sector that reported $8.5M in total revenue in fiscal year 2023. Revenue surged 52% from the prior year, signaling strong growth momentum.

Mission

GLOBAL GENES' MISSION IS TO DRIVE CHANGE THROUGH THE SUPPORT OF RARE DISEASE PATIENTS AND FAMILIES WHILE EQUIPPING ADVOCACY LEADERS WITH IMPORTANT TOOLS, RESOURCES, MENTORING, AND CONNECTIONS TO FURTHER ADVANCE AWARENESS, EDUCATION, AND RESEARCH.

Program Service Accomplishments

Program 1

Expenses: $6,822,737 Revenue: $2,055,089

GLOBAL GENES' PROGRAMS PROVIDE NEXT-GENERATION PATIENT ADVOCATES WITH A CONTINUUM OF SERVICES TO ACCELERATE THEIR PATH FROM EARLY SUPPORT AND AWARENESS THROUGH RESEARCH READINESS, USING A...

GLOBAL GENES' PROGRAMS PROVIDE NEXT-GENERATION PATIENT ADVOCATES WITH A CONTINUUM OF SERVICES TO ACCELERATE THEIR PATH FROM EARLY SUPPORT AND AWARENESS THROUGH RESEARCH READINESS, USING A COLLABORATIVE APPROACH THAT INVOLVES BIOPHARMA, RESEARCHERS AND FUNDERS, WITH DATA AS A CENTRAL CORE. WE AIM TO HAVE A SIGNIFICANT IMPACT ON THE LIVES OF PEOPLE LIVING WITH RARE DISEASES BY BRINGING THE COMMUNITY TOGETHER AROUND OUR THREE PILLARS OF SUPPORT, EDUCATION, AND RESEARCH, WHILE WEAVING HEALTH EQUITY THROUGH ALL OF OUR INITIATIVES TO FOSTER A CULTURE OF INCLUSION. OUR PROGRAMS ARE DESIGNED TO HELP OUR PARTICIPANTS DEVELOP THE SKILLS THEY SEEK TO BUILD ORGANIZATIONS, BECOME RESEARCH READY, AND PURSUE THE DEVELOPMENT OF TREATMENTS.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

Financial Overview (2023)

Revenue Breakdown

Contributions & Grants $6,410,826

Program Service Revenue $2,055,089

Investment Income $3,487

Other Revenue $0

TOTAL REVENUE $8,469,402

Expense Breakdown

Grants Paid $274,880

Salaries & Benefits $4,277,732

Fundraising Expenses $441,938

Program Expenses $6,822,737

Other Expenses $4,009,247

TOTAL EXPENSES $8,561,859

Year-over-Year Comparison

	2023	2022	Change
Revenue	$8,469,402	$5,557,435	+0.5%
Expenses	$8,561,859	$7,700,189	+0.1%
Net Income	$-92,457	$-2,142,754	-1.0%

Key Indicators

✓ Grants to Organizations ✗ Grants to Individuals ✗ Lobbying ✗ Political Activity ✓ Foreign Activities ✗ Donor Advised Fund ✓ Schedule B Required

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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

Governance

Voting Members

Independent Members

Employees

Volunteers

Governance Policies

✓ Conflict of Interest Policy

✓ Whistleblower Policy

✓ Document Retention Policy

Special Practices & Reported Activities

✗ Operated a School

✗ Operated a Hospital

✗ Provided First Class Travel

⚠ Reported Conflict of Interest

✗ Reported Asset Diversion

✗ Excess Benefit Transaction

✗ Made Political Expenditures

✗ Engaged in Lobbying

✗ Operated Donor Advised Fund

✗ Maintained Art Collections

✗ Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers

$704,931

Total Directors

$257,864

Key Employees

Highest Compensated

reported

Name	Title	Hours/Week	Role	Reportable Comp	Other Comp	Total
NICOLE R BOICE	FOUNDER & CHIEF MISSION OFFICER	40.00	Officer Director	$257,792	$72	$257,864
BETSY BOGARD	DIRECTOR	1.00	Director	$0	$0	$0
KHRYSTAL DAVIS	DIRECTOR	1.00	Director	$0	$0	$0
ILANA FOGELMAN	DIRECTOR	1.00	Director	$0	$0	$0
SIMON FROST	CFO	1.00	Officer Director	$0	$0	$0
PETER GOODHAND	DIRECTOR	1.00	Director	$0	$0	$0
CHRISTINA HARTMAN	SECRETARY	1.00	Officer Director	$0	$0	$0
HUGH HEMPEL	DIRECTOR	1.00	Director	$0	$0	$0
RAM IYER	DIRECTOR	1.00	Director	$0	$0	$0
WALT KOWTONIUK	CHAIR	1.00	Officer Director	$0	$0	$0
NEIL KUMAR	DIRECTOR	1.00	Director	$0	$0	$0
CAROLINE LOEWY	DIRECTOR	1.00	Director	$0	$0	$0
KATHERINE MAYNARD	VICE CHAIR	1.00	Officer Director	$0	$0	$0
INDU NAVAR	DIRECTOR	1.00	Director	$0	$0	$0
DAVID PEARCE	DIRECTOR	1.00	Director	$0	$0	$0
JOHN REYNDERS	DIRECTOR	1.00	Director	$0	$0	$0
MORRIE RUFFIN	DIRECTOR	1.00	Director	$0	$0	$0
ALVIN SHIH	DIRECTOR	1.00	Director	$0	$0	$0
CHARLENE RIGBY	CEO	40.00	Officer	$322,542	$75	$322,617
VICTORIA WEISS	SENIOR DIRECTOR, FINANCE	24.00	Officer	$124,450	$0	$124,450
TIMOTHY R EHRHARD	SENIOR DIRECTOR, IT	40.00	Highest	$170,000	$78	$170,078
LAUREN ALFORD	SENIOR DIRECTOR, MARKETING COMMUNICATION	40.00	Highest	$165,000	$78	$165,078
KARMEN TRZUPEK	SENIOR DIRECTOR, SCIENTIFIC PROGRAMS	40.00	Highest	$162,097	$6,378	$168,475
VANESSA VOGEL-FARLEY	SENIOR DIRECTOR, RESEARCH DATA ANALYTICS & GOVERNA	40.00		$160,000	$72	$160,072
MARIA DELLA ROCCA	SENIOR DIRECTOR, SUPPORT & EDUCATION	40.00		$160,779	$72	$160,851

Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year	Revenue	Expenses	Assets	Net Income
2024	No data	No data	No data	No data
2023	$8,469,402	$8,561,859	$2,099,140	$-92,457
2022	$5,557,435	$7,700,189	$2,294,462	$-2,142,754
2021	$5,883,997	$5,557,417	$3,315,841	$326,580
2020	$5,567,077	$5,166,425	$3,087,118	$400,652
2019	$6,988,193	$6,464,707	$2,925,050	$523,486
2018	$4,930,932	$4,476,426	$1,746,498	$454,506