GLOBAL GENES

EIN: 263331487 501(c)(3) Diseases & Disorders

WASHINGTON, DC

Total Revenue
$8,469,402
Total Expenses
$8,561,859
Total Assets
$2,099,140
Net Assets
$457,737
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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year
2008
Legal Domicile
CA
Principal Officer
CHARLENE SON RIGBY
Phone
9492487273
Tax Period
2023-01-01 to 2023-12-31

GLOBAL GENES, founded in 2008, is a community nonprofit in the Diseases & Disorders sector that reported $8.5M in total revenue in fiscal year 2023. Revenue surged 52% from the prior year, signaling strong growth momentum.

Mission

GLOBAL GENES STRIVES TO CONNECT, EMPOWER AND INSPIRE THE RARE DISEASE COMMUNITY.

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2023)

Revenue Breakdown

Contributions & Grants $6,410,826
Program Service Revenue $2,055,089
Investment Income $3,487
Other Revenue $0
TOTAL REVENUE $8,469,402

Expense Breakdown

Grants Paid $274,880
Salaries & Benefits $4,277,732
Fundraising Expenses $441,938
Program Expenses $6,822,737
Other Expenses $4,009,247
TOTAL EXPENSES $8,561,859

Year-over-Year Comparison

2023 2022 Change
Revenue $8,469,402 $5,557,435 +0.5%
Expenses $8,561,859 $7,700,189 +0.1%
Net Income $-92,457 $-2,142,754 -1.0%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

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Governance

Voting Members
18
Independent Members
16
Employees
41
Volunteers
17

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
7
$704,931
Total Directors
18
$257,864
Key Employees
0
$0
Highest Compensated
3
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
NICOLE R BOICE FOUNDER & CHIEF MISSION OFFICER 40.00
Officer Director
$257,792 $72 $257,864
BETSY BOGARD DIRECTOR 1.00
Director
$0 $0 $0
KHRYSTAL DAVIS DIRECTOR 1.00
Director
$0 $0 $0
ILANA FOGELMAN DIRECTOR 1.00
Director
$0 $0 $0
SIMON FROST CFO 1.00
Officer Director
$0 $0 $0
PETER GOODHAND DIRECTOR 1.00
Director
$0 $0 $0
CHRISTINA HARTMAN SECRETARY 1.00
Officer Director
$0 $0 $0
HUGH HEMPEL DIRECTOR 1.00
Director
$0 $0 $0
RAM IYER DIRECTOR 1.00
Director
$0 $0 $0
WALT KOWTONIUK CHAIR 1.00
Officer Director
$0 $0 $0
NEIL KUMAR DIRECTOR 1.00
Director
$0 $0 $0
CAROLINE LOEWY DIRECTOR 1.00
Director
$0 $0 $0
KATHERINE MAYNARD VICE CHAIR 1.00
Officer Director
$0 $0 $0
INDU NAVAR DIRECTOR 1.00
Director
$0 $0 $0
DAVID PEARCE DIRECTOR 1.00
Director
$0 $0 $0
JOHN REYNDERS DIRECTOR 1.00
Director
$0 $0 $0
MORRIE RUFFIN DIRECTOR 1.00
Director
$0 $0 $0
ALVIN SHIH DIRECTOR 1.00
Director
$0 $0 $0
CHARLENE RIGBY CEO 40.00
Officer
$322,542 $75 $322,617
VICTORIA WEISS SENIOR DIRECTOR, FINANCE 24.00
Officer
$124,450 $0 $124,450
TIMOTHY R EHRHARD SENIOR DIRECTOR, IT 40.00
Highest
$170,000 $78 $170,078
LAUREN ALFORD SENIOR DIRECTOR, MARKETING COMMUNICATION 40.00
Highest
$165,000 $78 $165,078
KARMEN TRZUPEK SENIOR DIRECTOR, SCIENTIFIC PROGRAMS 40.00
Highest
$162,097 $6,378 $168,475
VANESSA VOGEL-FARLEY SENIOR DIRECTOR, RESEARCH DATA ANALYTICS & GOVERNA 40.00
$160,000 $72 $160,072
MARIA DELLA ROCCA SENIOR DIRECTOR, SUPPORT & EDUCATION 40.00
$160,779 $72 $160,851
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2024 No data No data No data No data
2023 $8,469,402 $8,561,859 $2,099,140 $-92,457
2022 $5,557,435 $7,700,189 $2,294,462 $-2,142,754
2021 $5,883,997 $5,557,417 $3,315,841 $326,580
2020 $5,567,077 $5,166,425 $3,087,118 $400,652
2019 $6,988,193 $6,464,707 $2,925,050 $523,486
2018 $4,930,932 $4,476,426 $1,746,498 $454,506
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