FAMILIAL DYSAUTONOMIA NOW FOUNDATION FD NOW

EIN: 263531031 501(c)(3) Medical Research

Buffalo Grove, IL

Total Revenue
$289,025
Total Expenses
$233,939
Total Assets
$1,146,133
Net Assets
$1,146,133
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Financial Vulnerability Assessment (Tuckman-Chang)

4 risk indicators measuring financial stability and operational resilience

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Financial Trends

Organization Details

Formation Year
2009
Legal Domicile
IL
Principal Officer
ANN SLAW
Phone
8479130455
Tax Period
2024-08-01 to 2025-07-31

FAMILIAL DYSAUTONOMIA NOW FOUNDATION FD NOW, founded in 2009, is a small nonprofit in the Medical Research sector that reported $199K in total revenue in fiscal year 2019. Revenue decreased 14% compared to the prior year. Net assets of $783K represent 47 months of operating reserves.

Mission

To discover new treatments and cures for patients with famalial dysautonomia, a rare, fatal, genetic disease present at birth

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Trantor Score

Financial Health Score (300–850) · Liquidity · Solvency · Sustainability · Efficiency

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Liquidity (40%) • Solvency (30%) • Sustainability (20%) • Efficiency (10%)

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Financial Overview (2024)

Revenue Breakdown

Contributions & Grants $244,764
Program Service Revenue $0
Investment Income $44,207
Other Revenue $54
TOTAL REVENUE $289,025

Expense Breakdown

Grants Paid $176,400
Salaries & Benefits $0
Fundraising Expenses $0
Program Expenses $217,915
Other Expenses $57,539
TOTAL EXPENSES $233,939

Year-over-Year Comparison

2024 2023 Change
Revenue $289,025 $298,955 0.0%
Expenses $233,939 $235,102 0.0%
Net Income $55,086 $63,853 -0.1%
Key Indicators
Grants to Organizations Grants to Individuals Lobbying Political Activity Foreign Activities Donor Advised Fund Schedule B Required
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Financial Health Indicators

Comprehensive financial analysis: Altman Z-Score, liquidity, solvency, sustainability, efficiency, and growth metrics

Financial Distress Indicator

Liquidity & Cash Position

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Altman Z-Score • Liquidity Ratios • Solvency Analysis • Growth Indicators • Efficiency Metrics

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Governance

Voting Members
8
Independent Members
8
Employees
N/A
Volunteers
8

Governance Policies

Conflict of Interest Policy
Whistleblower Policy
Document Retention Policy

Special Practices & Reported Activities

Operated a School
Operated a Hospital
Provided First Class Travel
Reported Conflict of Interest
Reported Asset Diversion
Excess Benefit Transaction
Made Political Expenditures
Engaged in Lobbying
Operated Donor Advised Fund
Maintained Art Collections
Filed Form 720

Compensation of Officers, Directors & Key Employees

Total Officers
3
$0
Total Directors
8
$0
Key Employees
0
$0
Highest Compensated
0
reported
Name Title Hours/Week Role Reportable Comp Other Comp Total
ANN SLAW JD PRESIDENT 40.00
Officer Director
$0 $0 $0
KEN SLAW PHD VICE PRESIDENT 4.00
Officer Director
$0 $0 $0
ANDREA GREENFIELD TREASURER 4.00
Officer Director
$0 $0 $0
RUTH WOODRUFF JD ADVISORY BOARD 1.00
Director
$0 $0 $0
TARA D SCHIMMEL MS ED NY REGIONAL REPRESENTATIVE 1.00
Director
$0 $0 $0
CAROL ALTERMAN RN fl regional representative 1.00
Director
$0 $0 $0
pat white advisory board 1.00
Director
$0 $0 $0
Terry finesmith horwich jd aDVISORY BOARD 1.00
Director
$0 $0 $0
Note: Compensation data is self-reported by the organization on their Form 990. "Reportable Comp" includes salary, bonuses, and other reportable compensation from the organization and related organizations. "Other Comp" includes benefits, deferred compensation, and non-taxable benefits.

Historical Data

Year Revenue Expenses Assets Net Income
2025 $289,025 $233,939 $1,146,133 $55,086
2024 $298,955 $235,102 $1,084,316 $63,853
2023 $363,863 $226,852 $1,031,053 $137,011
2022 $293,462 $226,342 $882,138 $67,120
2021 $230,833 $203,083 $811,730 $27,750
2020 $198,758 $206,405 $783,451 $-7,647
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